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2021 Journal Article Conducting clinical trials during the COVID-19 pandemic-a collaborative trial network responseRobison, Laura, Cho, Yeoungjee, Viecelli, Andrea K., Johnson, David W., Hawley, Carmel M., Valks, Andrea, Paul-Brent, Peta-Anne, Stastny, Ruth, Varghese, Julie, Kiriwandeniya, Charani, Pascoe, Elaine M., Vergara, Liza A., Fahim, Magid A., Boudville, Neil, Krishnasamy, Rathika and Reidlinger, Donna (2021). Conducting clinical trials during the COVID-19 pandemic-a collaborative trial network response. Trials, 22 (1) 278, 278. doi: 10.1186/s13063-021-05200-0 |
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2021 Journal Article Impact of deceased donor with acute kidney injury on subsequent kidney transplant outcomes-an ANZDATA registry analysisPei, Juan, Cho, Yeoungjee, See, Yong Pey, Pascoe, Elaine M., Viecelli, Andrea K., Francis, Ross S., Van Eps, Carolyn, Isbel, Nicole M., Campbell, Scott B., Clayton, Philip A., Chapman, Jeremy, Collins, Michael, Lim, Wai, Tang, Wen, Wong, Germaine, Hawley, Carmel M. and Johnson, David W. (2021). Impact of deceased donor with acute kidney injury on subsequent kidney transplant outcomes-an ANZDATA registry analysis. PLoS One, 16 (3) e0249000, e0249000. doi: 10.1371/journal.pone.0249000 |
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2021 Journal Article Patient-led identification and prioritization of exercise interventions for fatigue on dialysis: A workshop reportJu, Angela, Scholes-Robertson, Nicole, Johnson, David W., Cho, Yeoungjee, Van Zwieten, Anita, Manera, Karine, Howell, Martin, Viecelli, Andrea K., Jesudason, Shilpanjali, Evangelidis, Nicole, Polkinghorne, Kevan, Gutman, Talia, Wyburn, Kate, Craig, Jonathan C and Tong, Allison (2021). Patient-led identification and prioritization of exercise interventions for fatigue on dialysis: A workshop report. Clinical Kidney Journal, 14 (3), 831-839. doi: 10.1093/ckj/sfz200 |
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2021 Journal Article A systematic review of scope and consistency of outcome measures for physical fitness in chronic kidney disease trialsJegatheesan, Dev K., Modderman, Richard, Krishnasamy, Rathika, Tong, Allison, Coombes, Jeff S., Viecelli, Andrea K., Johnson, David W. and Isbel, Nicole (2021). A systematic review of scope and consistency of outcome measures for physical fitness in chronic kidney disease trials. Kidney International Reports, 6 (5), 1280-1288. doi: 10.1016/j.ekir.2021.02.010 |
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2021 Journal Article Development of an international Delphi survey to establish core outcome domains for trials in adults with glomerular diseaseCarter, Simon A., Logeman, Charlotte, Howell, Martin, Cattran, Dan, Lightstone, Liz, Bagga, Arvind, Barbour, Sean J., Barratt, Jonathan, Boletis, John, Caster, Dawn J., Coppo, Rosanna, Fervenza, Fernando C., Floege, Jürgen, Hladunewich, Michelle A., Hogan, Jonathan J., Kitching, A. Richard, Lafayette, Richard A., Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H., Scholes-Robertson, Nicole, Trimarchi, Hérnan, Zhang, Hong, Cho, Yeoungjee, Dunn, Louese, Gipson, Debbie S., Liew, Adrian, Sautenet, Benedicte, Viecelli, Andrea K. ... Craig, Jonathan C. (2021). Development of an international Delphi survey to establish core outcome domains for trials in adults with glomerular disease. Kidney International, 100 (4), 881-893. doi: 10.1016/j.kint.2021.04.027 |
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2021 Journal Article Perspectives on blood pressure by patients on haemo- and peritoneal dialysisEvangelidis, Nicole, Sautenet, Benedicte, Manera, Karine E., Howell, Martin, Craig, Jonathan C., Viecelli, Andrea K., O'Lone, Emma, Scholes-Robertson, Nicole, Johnson, David W., Cho, Yeoungjee, Tomson, Charles, Wheeler, David C. and Tong, Allison (2021). Perspectives on blood pressure by patients on haemo- and peritoneal dialysis. Nephrology, 26 (1) nep.13775, 62-69. doi: 10.1111/nep.13775 |
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2021 Journal Article Socio-economic disparity, access to care and patient-relevant outcomes after kidney allograft failureWong, Yun Hui Sheryl, Wong, Germaine, Johnson, David W., McDonald, Stephen, Clayton, Philip, Boudville, Neil, Viecelli, Andrea K., Lok, Charmaine, Pilmore, Helen, Hawley, Carmel, Roberts, Matthew A., Walker, Rachael, Ooi, Esther, Polkinghorne, Kevan R. and Lim, Wai H. (2021). Socio-economic disparity, access to care and patient-relevant outcomes after kidney allograft failure. Transplant International, 34 (11), 2329-2340. doi: 10.1111/tri.14002 |
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2021 Journal Article Perspectives on ability to work from patients’ receiving dialysis and caregivers: analysis of data from the global SONG initiativeRajkumar, Ramya, Baumgart, Amanda, Martin, Adam, Tong, Allison, Evangelidis, Nicole, Manera, Karine E., Cho, Yeoungjee, Johnson, David W., Viecelli, Andrea, Shen, Jenny, Guha, Chandana, Scholes-Robertson, Nicole, Howell, Martin and Craig, Jonathan C. (2021). Perspectives on ability to work from patients’ receiving dialysis and caregivers: analysis of data from the global SONG initiative. Journal of Nephrology, 35 (1), 255-266. doi: 10.1007/s40620-021-01105-y |
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2021 Journal Article Core outcome measures for trials in people with coronavirus disease 2019: Respiratory failure, multiorgan failure, shortness of breath, and recoveryTong, Allison, Baumgart, Amanda, Evangelidis, Nicole, Viecelli, Andrea K., Carter, Simon A., Azevedo, Luciano Cesar, Cooper, Tess, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Elliott, Julian H., Hannan, Elyssa, Horby, Peter, Howell, Martin, Ju, Angela, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Manera, Karine E., Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Needham, Dale M. ... Craig, Jonathan C. (2021). Core outcome measures for trials in people with coronavirus disease 2019: Respiratory failure, multiorgan failure, shortness of breath, and recovery. Critical Care Medicine, 49 (3), 503-516. doi: 10.1097/CCM.0000000000004817 |
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2020 Journal Article Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED studySee, Yong Pey, Cho, Yeoungjee, Pascoe, Elaine M., Cass, Alan, Irish, Ashley, Voss, David, Polkinghorne, Kevan R., Hooi, Lai Seong, Ong, Loke-Meng, Paul-Brent, Peta-Anne, Kerr, Peter G., Mori, Trevor A., Hawley, Carmel M., Johnson, David W. and Viecelli, Andrea K. (2020). Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED study. Kidney360, 1 (11), 1259-1269. doi: 10.34067/kid.0002732020 |
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2020 Journal Article Peritoneal dialysis versus haemodialysis for people commencing dialysisPei, Juan, Ethier, Isabelle, Hudson, Rebecca E, Hawley, Carmel M, Johnson, David W, Campbell, Scott B, Francis, Ross S, Wong, Germaine, Craig, Jonathan C, Viecelli, Andrea K and Cho, Yeoungjee (2020). Peritoneal dialysis versus haemodialysis for people commencing dialysis. Cochrane Database of Systematic Reviews, 2020 (11) CD013800. doi: 10.1002/14651858.CD013800 |
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2020 Journal Article Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in AustraliaDuncanson, Emily, Bennett, Paul N., Viecelli, Andrea, Dansie, Kathryn, Handke, William, Tong, Allison, Palmer, Suetonia, Jesudason, Shilpanjali, McDonald, Stephen P. and Morton, Rachael L. (2020). Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia. BMJ Open, 10 (11) e039014. doi: 10.1136/bmjopen-2020-039014 |
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2020 Journal Article Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrumentJu, Angela, Teixeira-Pinto, Armando, Tong, Allison, Smith, Alice C., Unruh, Mark, Davison, Sara N., Dapueto, Juan, Dew, Mary Amanda, Fluck, Richard, Germain, Michael J., Jassal, Sarbjit V., Obrador, Gregorio T., O’donoghue, Donal, Viecelli, Andrea K., Strippoli, Giovanni, Ruospo, Marinella, Timofte, Delia, Sharma, Ankit, Au, Eric, Howell, Martin, Costa, Daniel S. J., Anumudu, Samaya, Craig, Jonathan C. and Rutherford, Claudia (2020). Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrument. Clinical Journal of the American Society of Nephrology, 15 (11), 1614-1621. doi: 10.2215/CJN.05880420 |
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2020 Journal Article Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL studyEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Viecelli, Andrea K., Campbell, Scott B., van Eps, Carolyn, Isbel, Nicole M., Cooper, Bruce A., Harris, David C., Pollock, Carol A., Wong, Muh Geot and Johnson, David W. (2020). Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study. PLoS ONE, 15 (11 November) e0242254, 1-14. doi: 10.1371/journal.pone.0242254 |
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2020 Journal Article International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019Evangelidis, Nicole, Tong, Allison, Howell, Martin, Teixeira-Pinto, Armando, Elliott, Julian H., Azevedo, Luciano Cesar, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Horby, Peter, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Marshall, John C., McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad, Povoa, Pedro, Reid, Mark, Sakr, Yasser, Shen, Ning, Smyth, Alan R., Snelling, Tom, Strippoli, Giovanni F. M. ... Craig, Jonathan C. (2020). International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1612-1621. doi: 10.1097/CCM.0000000000004584 |
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2020 Journal Article Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregiversBaumgart, Amanda, Manera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Ruiz, Lorena, Wang, Angela Yee-Moon, Yip, Terence, Fung, Samuel K.S., Tong, Matthew, Lee, Achilles, Cho, Yeoungjee, Viecelli, Andrea K., Sautenet, Benedicte, Teixeira-Pinto, Armando, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Scholes-Robertson, Nicole, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin and Tong, Allison (2020). Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrology Dialysis Transplantation, 35 (11), 1949-1958. doi: 10.1093/ndt/gfaa127 |
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2020 Journal Article Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysisEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Roberts, Matthew A., Semple, David, Nadeau-Fredette, Annie-Claire, Sypek, Matthew P., Viecelli, Andrea, Campbell, Scott, van Eps, Carolyn, Isbel, Nicole M. and Johnson, David W. (2020). Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis. Nephrology Dialysis Transplantation, 35 (11), 1938-1949. doi: 10.1093/ndt/gfaa002 |
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2020 Journal Article Core outcomes set for trials in people with coronavirus disease 2019Tong, Allison, Elliott, Julian H., Azevedo, Luciano Cesar, Baumgart, Amanda, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Cho, Yeoungjee, Cooper, Tess, Crowe, Sally, Douglas, Ivor S., Evangelidis, Nicole, Flemyng, Ella, Hannan, Elyssa, Horby, Peter, Howell, Martin, Lee, Jaehee, Liu, Emma, Lorca, Eduardo, Lynch, Deena, Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Manera, Karine E., McLeod, Charlie, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad ... Craig, Jonathan C. (2020). Core outcomes set for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1622-1635. doi: 10.1097/CCM.0000000000004585 |
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2020 Journal Article Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New ZealandEthier, Isabelle, Cho, Yeoungjee, Davies, Christopher E., Hawley, Carmel M., Campbell, Scott B., Isbel, Nicole M., Pascoe, Elaine M., Polkinghorne, Kevan R., Roberts, Matthew, See, Emily J., Semple, David, van Eps, Carolyn, Viecelli, Andrea K. and Johnson, David W. (2020). Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand. Nephrology, 26 (2) e13782, e13782-163. doi: 10.1111/nep.13782 |
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2020 Journal Article A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group studyLogeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri and Tong, Allison (2020). A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study. BMJ Open, 10 (10) e038005, e038005. doi: 10.1136/bmjopen-2020-038005 |
