
Overview
Background
Down syndrome
Dr Cuskelly is the Director of the long running Down Syndrome Research Program based at The University of Queensland. In addition to her interests in the development of individuals with Down syndrome she has research interests in the psycho-social functioning of individuals with intellectual disability, family functioning in families with a child with a disability, and self-regulation and mastery motivation in vulnerable groups.
Availability
- Dr Monica Cuskelly is:
- Available for supervision
- Media expert
Fields of research
Research interests
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Development of individuals with Down syndrome
Program of research that includes a longitudinal study of cognition, motor development and adaptive behaviour that has been in operation for 40 years. Research has also focused on self-regulation, mastery motivation and psycho-social functioning.
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Family functioning in families with a child with a disability
Experience of family members, including siblings, of having a child with a disability in the family.
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Development and self-regulation in vulnerable populations
Research has focused on children with intellectual disability, but has also included children born prematurely
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Aspirations for the future of young people with intelelctual dsiability and their families
Examination of aspirations and the facilitators and barriers to achieving a full and satisfying life as an adult.
Works
Search Professor Monica Cuskelly’s works on UQ eSpace
Featured
2012
Journal Article
Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study
Couzens, Donna, Haynes, Michele and Cuskelly, Monica (2012). Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study. Journal of Applied Research in Intellectual Disabilities, 25 (5), 396-413. doi: 10.1111/j.1468-3148.2011.00673.x
Featured
2012
Journal Article
Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome
Gilmore, Linda and Cuskelly, Monica (2012). Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome. Journal of Family Studies, 18 (1), 28-35. doi: 10.5172/jfs.2012.18.1.28
Featured
2011
Journal Article
Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition)
Couzens, Donna, Cuskelly, Monica and Haynes, Michele A. (2011). Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition). American Journal on Intellectual and Developmental Disabilities, 116 (3), 181-204. doi: 10.1352/1944-7558-116.3.181
Featured
2011
Journal Article
Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome
Gilmore, Linda and Cuskelly, Monica (2011). Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome. American Journal on Intellectual and Developmental Disabilities, 116 (2), 153-164. doi: 10.1352/1944-7558-116.2.153
Featured
2009
Journal Article
Families of children with Down syndrome: What we know and what we need to know
Cuskelly, M., Hauser-Cram, P. and Van Riper, M. (2009). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome Research and Practice, 12 (3), 202-210.
Featured
2007
Journal Article
Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms
Cuskelly, M. and Gilmore, L. (2007). Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms. Journal of Intellectual & Developmental Disability, 32 (3), 214-221. doi: 10.1080/13668250701549450
2024
Journal Article
Home–school interactions relating to students with disability: a document analysis of Australian policy and guidelines
Vlcek, Samantha, Cuskelly, Monica, Somerton, Michelle and Pedersen, Scott (2024). Home–school interactions relating to students with disability: a document analysis of Australian policy and guidelines. Qualitative Research Journal. doi: 10.1108/qrj-07-2024-0162
2024
Journal Article
Research to reduce the use of restrictive practices: a response to recommendation 6.38 of the Disability Royal Commission
Cuskelly, Monica and Crates, Nicola (2024). Research to reduce the use of restrictive practices: a response to recommendation 6.38 of the Disability Royal Commission. Research and Practice in Intellectual and Developmental Disabilities, 11 (2), 1-17. doi: 10.1080/23297018.2024.2349036
2024
Journal Article
Mastery Motivation from Early Childhood to Young Adulthood in a Sample of Individuals with Down Syndrome Using Parental Report
Gilmore, Linda and Cuskelly, Monica (2024). Mastery Motivation from Early Childhood to Young Adulthood in a Sample of Individuals with Down Syndrome Using Parental Report. International Journal of Disability, Development and Education, 72 (1), 1-10. doi: 10.1080/1034912x.2024.2355619
2024
Journal Article
The use of proxy measurement of internal states in people with intellectual disability: A scoping review
Webb, Kristen, Cuskelly, Monica and Owen, Ceridwen (2024). The use of proxy measurement of internal states in people with intellectual disability: A scoping review. Journal of Applied Research in Intellectual Disabilities, 37 (4) e13241, e13241. doi: 10.1111/jar.13241
2024
Journal Article
Preparing adults with intellectual disabilities for their future: how do support services staff view their role?
Cuskelly, Monica, Moni, Karen, McMahon, Mary, Jobling, Anne and Lloyd, Jan (2024). Preparing adults with intellectual disabilities for their future: how do support services staff view their role?. Journal of Applied Research in Intellectual Disabilities, 37 (1) e13180, e13180. doi: 10.1111/jar.13180
2024
Journal Article
The Parenting Sense of Competence scale: updating a classic
Gilmore, Linda and Cuskelly, Monica (2024). The Parenting Sense of Competence scale: updating a classic. Child: Care, Health and Development, 50 (1) e13173, 1-11. doi: 10.1111/cch.13173
2023
Journal Article
Factors related to parenting styles of Chinese mothers of children with and without intellectual disability
Su, H., Cuskelly, M. and Gilmore, L. (2023). Factors related to parenting styles of Chinese mothers of children with and without intellectual disability. Journal of Intellectual Disability Research, 67 (6), 573-587. doi: 10.1111/jir.13029
2022
Journal Article
Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021)
Cuskelly, Monica (2022). Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021). Research and Practice in Intellectual and Developmental Disabilities, 9 (2) 2051114, 1-10. doi: 10.1080/23297018.2022.2051114
2022
Journal Article
The National Disability Insurance Scheme: voices of adults with intellectual disabilities
Lloyd, Janette, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2022). The National Disability Insurance Scheme: voices of adults with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 9 (1), 1-9. doi: 10.1080/23297018.2021.2004382
2021
Journal Article
From research to reality: Australian evidence-based practice in autism education
Garrad, Traci-Ann, Rayner, Christopher, Pedersen, Scott and Cuskelly, Monica (2021). From research to reality: Australian evidence-based practice in autism education. Journal of Research in Special Educational Needs, 21 (4), 381-391. doi: 10.1111/1471-3802.12537
2021
Journal Article
Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action
Mudwari, Nabaraj, Cuskelly, Monica, Murphy, Carol, Beasy, Kim and Aryal, Nirmal (2021). Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action. Teachers and Curriculum, 21 (1), 71-76. doi: 10.15663/tandc.v21i1.356
2021
Journal Article
Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19
Mudwari, Nabaraj, Beasy, Kim, Murphy, Carol and Cuskelly, Monica (2021). Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19. Journal of Ethnic and Cultural Studies, 8 (4), 286-306. doi: 10.29333/ejecs/828
2021
Journal Article
Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review
Opoku, Maxwell Peprah, Cuskelly, Monica, Pedersen, Scott J. and Rayner, Christopher S. (2021). Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review. European Journal of Special Needs Education, 36 (4), 577-592. doi: 10.1080/08856257.2020.1779979
2021
Journal Article
Correction to: Perceptions of Support in Chinese Mothers of a Child with Intellectual Disability (Journal of Developmental and Physical Disabilities, (2018), 30, 4, (509-525), 10.1007/s10882-018-9599-8)
Su, Hui, Cuskelly, Monica, Gilmore, Linda and Sullivan, Karen (2021). Correction to: Perceptions of Support in Chinese Mothers of a Child with Intellectual Disability (Journal of Developmental and Physical Disabilities, (2018), 30, 4, (509-525), 10.1007/s10882-018-9599-8). Journal of Developmental and Physical Disabilities, 34 (3), 547-547. doi: 10.1007/s10882-021-09812-x
Funding
Supervision
Availability
- Dr Monica Cuskelly is:
- Available for supervision
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Supervision history
Completed supervision
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2016
Master Philosophy
Evaluating disability service managers' beliefs about performance improvement strategies: An exploratory study using Gilbert's Behavior Engineering Model
Principal Advisor
Other advisors: Professor Annemaree Carroll
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2016
Doctor Philosophy
Parenting Style and Parent-Child Relationships of Indonesian Parents of Children with and without Autism Spectrum Disorders (ASD)
Principal Advisor
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2011
Doctor Philosophy
Experiences of Family Carers of Adults with Intellectual Disabilities: Demands, Stressors and Satisfactions
Principal Advisor
Other advisors: Professor Annemaree Carroll
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2008
Doctor Philosophy
Cognitive Development in Down Syndrome: A Longitudinal Study of Subtest Scores on the Stanford-Binet: Fourth Edition SB:IV
Principal Advisor
Other advisors: Dr Anne Jobling
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2007
Doctor Philosophy
THE INFLUENCE OF CHILDREN'S PERCEPTIONS OF CONNECTEDNESS TO THEIR FAMILIES, SCHOOL, AND PEERS ON THEIR PSYCHOSOCIAL FUNCTIONING
Principal Advisor
Other advisors: Professor Annemaree Carroll
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2021
Doctor Philosophy
An Exploration of the NDIS Planning Process from the Perspectives of Adults with Intellectual Disability and their Families
Associate Advisor
Other advisors: Dr Karen Moni
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2021
Doctor Philosophy
Children with occupational performance and participation challenges: Optimising their participation in community leisure opportunities
Associate Advisor
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2017
Doctor Philosophy
An exploration of parental decisions to transfer children from regular to special schools
Associate Advisor
Other advisors: Dr Karen Moni
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2017
Doctor Philosophy
Chinese Tertiary Teachers' Motivation, Their Use of Motivational Strategies, and Their Students' Achievement within the Context of Studying English as a Foreign Language
Associate Advisor
Other advisors: Dr Jana Visnovska
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2014
Master Philosophy
Early Intervention Services for Children with Physical Disabilities: Family Centredness and Parent Satisfaction
Associate Advisor
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2014
Doctor Philosophy
Beliefs of early-childhood teachers towards cooperative learning in the chilean context
Associate Advisor
Other advisors: Professor Robyn Gillies
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2013
Doctor Philosophy
Using Participatory Research to Investigate what Literacy Looks Like for Adults with Intellectual Disability
Associate Advisor
Other advisors: Dr Karen Moni
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2012
Doctor Philosophy
The Influence of Parental Power on the Development of Shame in Young Children
Associate Advisor
Other advisors: Professor Annemaree Carroll
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2008
Doctor Philosophy
Community - Based Introduction Model Triple P Positive Parenting program in Japanese Society
Associate Advisor
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2007
Doctor Philosophy
THE ROLE OF FLUENCY IN MATHEMATICAL DEVELOPMENT: FACTORS ASSOCIATED WITH EARLY LEARNING DIFFICULTIES IN MATHEMATICS
Associate Advisor
Other advisors: Emeritus Professor John Elkins
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2006
Master Philosophy
FACTORS AFFECTING THE LEARNING OUTCOMES OF INDIGINEOUS STUDENTS IN ELEMENTARY SCHOOL: THE CASE OF SHASART SUKSA SCHOOL, CHIANG RAI PROVINCE, THAILAND
Associate Advisor
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2006
Doctor Philosophy
PHYSICAL ACTIVITY LEISURE-TIME PARTICIPATION OF BOYS WITH DEVELOPMENTAL COORDINATION DISORDER
Associate Advisor
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2005
Doctor Philosophy
Women's labour lost - Mothers' labour's cost: Workforce participation when children have disabilities
Associate Advisor
Other advisors: Emeritus Professor Linda Rosenman
Media
Enquiries
Contact Dr Monica Cuskelly directly for media enquiries about:
- Children and motivation
- Developmental psychology
- Disability - family relationships
- Down syndrome - development
- Family relationships and children with disabilities
- Motivation - in children
- Psychology - developmental
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