Dr Monica Cuskelly
Dr

Monica Cuskelly

Email: 

Background

Down syndrome

Dr Cuskelly is the Director of the long running Down Syndrome Research Program based at The University of Queensland. In addition to her interests in the development of individuals with Down syndrome she has research interests in the psycho-social functioning of individuals with intellectual disability, family functioning in families with a child with a disability, and self-regulation and mastery motivation in vulnerable groups.

Availability

Dr Monica Cuskelly is:
Available for supervision
Media expert

Fields of research

Clinical sciences Education

Research interests

  • Development of individuals with Down syndrome

    Program of research that includes a longitudinal study of cognition, motor development and adaptive behaviour that has been in operation for 40 years. Research has also focused on self-regulation, mastery motivation and psycho-social functioning.

  • Family functioning in families with a child with a disability

    Experience of family members, including siblings, of having a child with a disability in the family.

  • Development and self-regulation in vulnerable populations

    Research has focused on children with intellectual disability, but has also included children born prematurely

  • Aspirations for the future of young people with intelelctual dsiability and their families

    Examination of aspirations and the facilitators and barriers to achieving a full and satisfying life as an adult.

Search Professor Monica Cuskelly’s works on UQ eSpace

200 works between 1991 and 2024
All (200) Journal Article (135) Book Chapter (19) Conference Publication (34) Book (7) Other Outputs (2) Edited Outputs (3)

1 - 20 of 200 works

Featured

2012

Journal Article

Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study

Couzens, Donna, Haynes, Michele and Cuskelly, Monica (2012). Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study. Journal of Applied Research in Intellectual Disabilities, 25 (5), 396-413. doi: 10.1111/j.1468-3148.2011.00673.x

Individual and environmental characteristics associated with cognitive development in Down syndrome: a longitudinal study

Featured

2012

Journal Article

Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome

Gilmore, Linda and Cuskelly, Monica (2012). Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome. Journal of Family Studies, 18 (1), 28-35. doi: 10.5172/jfs.2012.18.1.28

Parenting satisfaction and self-efficacy: a longitudinal study of mothers of children with Down syndrome

Featured

2011

Journal Article

Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition)

Couzens, Donna, Cuskelly, Monica and Haynes, Michele A. (2011). Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition). American Journal on Intellectual and Developmental Disabilities, 116 (3), 181-204. doi: 10.1352/1944-7558-116.3.181

Cognitive development and down syndrome: Age-related change on the Stanford-Binet test (Fourth Edition)

Featured

2011

Journal Article

Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome

Gilmore, Linda and Cuskelly, Monica (2011). Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome. American Journal on Intellectual and Developmental Disabilities, 116 (2), 153-164. doi: 10.1352/1944-7558-116.2.153

Observational assessment and maternal reports of motivation in children and adolescents with Down Syndrome

Featured

2009

Journal Article

Families of children with Down syndrome: What we know and what we need to know

Cuskelly, M., Hauser-Cram, P. and Van Riper, M. (2009). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome Research and Practice, 12 (3), 202-210.

Families of children with Down syndrome: What we know and what we need to know

Featured

2007

Journal Article

Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms

Cuskelly, M. and Gilmore, L. (2007). Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms. Journal of Intellectual & Developmental Disability, 32 (3), 214-221. doi: 10.1080/13668250701549450

Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms

2024

Journal Article

Home–school interactions relating to students with disability: a document analysis of Australian policy and guidelines

Vlcek, Samantha, Cuskelly, Monica, Somerton, Michelle and Pedersen, Scott (2024). Home–school interactions relating to students with disability: a document analysis of Australian policy and guidelines. Qualitative Research Journal. doi: 10.1108/qrj-07-2024-0162

Home–school interactions relating to students with disability: a document analysis of Australian policy and guidelines

2024

Journal Article

Research to reduce the use of restrictive practices: a response to recommendation 6.38 of the Disability Royal Commission

Cuskelly, Monica and Crates, Nicola (2024). Research to reduce the use of restrictive practices: a response to recommendation 6.38 of the Disability Royal Commission. Research and Practice in Intellectual and Developmental Disabilities, 1-17. doi: 10.1080/23297018.2024.2349036

Research to reduce the use of restrictive practices: a response to recommendation 6.38 of the Disability Royal Commission

2024

Journal Article

Mastery Motivation from Early Childhood to Young Adulthood in a Sample of Individuals with Down Syndrome Using Parental Report

Gilmore, Linda and Cuskelly, Monica (2024). Mastery Motivation from Early Childhood to Young Adulthood in a Sample of Individuals with Down Syndrome Using Parental Report. International Journal of Disability, Development and Education, 1-10. doi: 10.1080/1034912x.2024.2355619

Mastery Motivation from Early Childhood to Young Adulthood in a Sample of Individuals with Down Syndrome Using Parental Report

2024

Journal Article

The use of proxy measurement of internal states in people with intellectual disability: A scoping review

Webb, Kristen, Cuskelly, Monica and Owen, Ceridwen (2024). The use of proxy measurement of internal states in people with intellectual disability: A scoping review. Journal of Applied Research in Intellectual Disabilities, 37 (4) e13241. doi: 10.1111/jar.13241

The use of proxy measurement of internal states in people with intellectual disability: A scoping review

2024

Journal Article

The Parenting Sense of Competence scale: updating a classic

Gilmore, Linda and Cuskelly, Monica (2024). The Parenting Sense of Competence scale: updating a classic. Child: Care, Health and Development, 50 (1) e13173, 1-11. doi: 10.1111/cch.13173

The Parenting Sense of Competence scale: updating a classic

2024

Journal Article

Preparing adults with intellectual disabilities for their future: how do support services staff view their role?

Cuskelly, Monica, Moni, Karen, McMahon, Mary, Jobling, Anne and Lloyd, Jan (2024). Preparing adults with intellectual disabilities for their future: how do support services staff view their role?. Journal of Applied Research in Intellectual Disabilities, 37 (1) e13180, e13180. doi: 10.1111/jar.13180

Preparing adults with intellectual disabilities for their future: how do support services staff view their role?

2023

Journal Article

Factors related to parenting styles of Chinese mothers of children with and without intellectual disability

Su, H., Cuskelly, M. and Gilmore, L. (2023). Factors related to parenting styles of Chinese mothers of children with and without intellectual disability. Journal of Intellectual Disability Research, 67 (6), 573-587. doi: 10.1111/jir.13029

Factors related to parenting styles of Chinese mothers of children with and without intellectual disability

2022

Journal Article

Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021)

Cuskelly, Monica (2022). Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021). Research and Practice in Intellectual and Developmental Disabilities, 9 (2) 2051114, 1-10. doi: 10.1080/23297018.2022.2051114

Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas: reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021)

2022

Journal Article

The National Disability Insurance Scheme: voices of adults with intellectual disabilities

Lloyd, Janette, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2022). The National Disability Insurance Scheme: voices of adults with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 9 (1), 1-9. doi: 10.1080/23297018.2021.2004382

The National Disability Insurance Scheme: voices of adults with intellectual disabilities

2021

Journal Article

From research to reality: Australian evidence-based practice in autism education

Garrad, Traci-Ann, Rayner, Christopher, Pedersen, Scott and Cuskelly, Monica (2021). From research to reality: Australian evidence-based practice in autism education. Journal of Research in Special Educational Needs, 21 (4), 381-391. doi: 10.1111/1471-3802.12537

From research to reality: Australian evidence-based practice in autism education

2021

Journal Article

Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action

Mudwari, Nabaraj, Cuskelly, Monica, Murphy, Carol, Beasy, Kim and Aryal, Nirmal (2021). Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action. Teachers and Curriculum, 21 (1), 71-76. doi: 10.15663/tandc.v21i1.356

Impact of COVID-19 on refugee-background students during school shut down in Australia: A call for action

2021

Journal Article

National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?

Lloyd, Janette, Moni, Karen, Cuskelly, Monica and Jobling, Anne (2021). National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?. Disability and Society, 38 (1), 1-9. doi: 10.1080/09687599.2021.1907548

National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?

2021

Journal Article

Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19

Mudwari, Nabaraj, Beasy, Kim, Murphy, Carol and Cuskelly, Monica (2021). Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19. Journal of Ethnic and Cultural Studies, 8 (4), 286-306. doi: 10.29333/ejecs/828

Views of adolescent bhutanese refugees on home learning during school shutdown across the period of covid-19

2021

Journal Article

Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review

Opoku, Maxwell Peprah, Cuskelly, Monica, Pedersen, Scott J. and Rayner, Christopher S. (2021). Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review. European Journal of Special Needs Education, 36 (4), 577-592. doi: 10.1080/08856257.2020.1779979

Applying the theory of planned behaviour in assessments of teachers’ intentions towards practicing inclusive education: a scoping review

Past funding

  • 2012 - 2016
    Constructing futures: An investigation of the aspirations of young adults with an intellectual disability and their parents
    ARC Linkage Projects
    Open grant
  • 2011 - 2012
    Constructing futures: Career development of individuals with an intellectual disability
    UQ FirstLink Scheme
    Open grant
  • 2010 - 2016
    Evaluation of the Evolve behaviour support service
    Disability Services Queensland
    Open grant
  • 2008 - 2016
    Early intervention services for children with a physical disability
    Disability Services Queensland
    Open grant
  • 2007 - 2009
    Self-regulation in very low birthweight/very preterm 2 and 4 year olds: A comparison study.
    ARC Linkage Projects
    Open grant
  • 2005
    RDG_Enabling Grant_Strategic
    University of Queensland Research Development Grants Scheme
    Open grant
  • 2004 - 2006
    The development of the capacity to delay gratification in children with an intellectual disability
    ARC Discovery Projects
    Open grant
  • 2001 - 2003
    The effectiveness of person-centred planning on the quality of life of adults with an intellectual disability living in the community
    ARC Collaborative Grant (SPIRT)
    Open grant
  • 2000
    What factors are associated with healthy eating and physical activity in young people with Down Syndrome?
    ARC Australian Research Council (Small grants)
    Open grant
  • 1999
    A cross-cultural study of self-imposed delay of gratification
    ARC Australian Research Council (Small grants)
    Open grant
  • 1999
    Control of pituitary hormone secretion by PACAP
    Mayne Bequest Fund
    Open grant
  • 1999
    Evaluation of the newly discovered prolactin releasing peptides (PRP31 and PRP20)
    ARC Australian Research Council (Small grants)
    Open grant
  • 1999
    The developmental progression of motovation over the early years of schooling: Personal characteristics, parental influences, and academic experience
    ARC Australian Research Council (Small grants)
    Open grant
  • 1998
    Polactin expression during lactation in the marsupial brushtail possum
    ARC Australian Research Council (Small grants)
    Open grant
  • 1998
    Pregnancy and Lactation in the Marsupial Bandicoot, Isoodon Macrourus
    UQ External Support Enabling Grant
    Open grant
  • 1997
    Dopamine and noradrenaline as prolactin release-inhibiting factors
    UQ External Support Enabling Grant
    Open grant
  • 1997 - 1999
    Dopamine D1 receptors in the ventromedial hypothalamus and the control of prolactin secretion
    NHMRC Project Grant
    Open grant
  • 1997
    Health knowledge and bebaviours in adolescents with down syndrome
    University of Queensland New Staff Research Grant
    Open grant
  • 1997
    Hypothalamic neuropeptides that rugulate pituitary hormone secretion
    ARC Australian Research Council (Small grants)
    Open grant
  • 1995 - 1997
    Hormonal control of growth and organ development in the brushtail possum
    ARC Australian Research Council (Large grants)
    Open grant
  • 1995
    Maternal support for exploratory behaviour: Implications for mastery motivation
    ARC Australian Research Council (Small grants)
    Open grant
  • 1995 - 1997
    Parenting employment-decisions and family functioning in community context: Normative features and disability specific factors
    ARC Australian Research Council (Large grants)
    Open grant

Availability

Dr Monica Cuskelly is:
Available for supervision

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Supervision history

Completed supervision

Enquiries

Contact Dr Monica Cuskelly directly for media enquiries about:

  • Children and motivation
  • Developmental psychology
  • Disability - family relationships
  • Down syndrome - development
  • Family relationships and children with disabilities
  • Motivation - in children
  • Psychology - developmental

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