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2024

Journal Article

Clinical utility and psychometric properties of tools for early detection of developmental concerns and disability in young children: a scoping review

Burgess, Andrea, Luke, Carly, Jackman, Michelle, Wotherspoon, Jane, Whittingham, Koa, Benfer, Katherine, Goodman, Sarah, Caesar, Rebecca, Nesakumar, Tiffney, Bora, Samudragupta, Honeyman, David, Copplin, Danielle, Reedman, Sarah, Cairney, John, Reid, Natasha, Boyd, Roslyn N. and Sakzewski, Leanne (2024). Clinical utility and psychometric properties of tools for early detection of developmental concerns and disability in young children: a scoping review. Developmental Medicine and Child Neurology. doi: 10.1111/dmcn.16076

Clinical utility and psychometric properties of tools for early detection of developmental concerns and disability in young children: a scoping review

2024

Journal Article

Relationship between early infant motor repertoire and neurodevelopment on the hammersmith infant neurological examination in a developmentally vulnerable first nations cohort

Luke, Carly, Mick-Ramsamy, Leeann, Bos, Arend F., Benfer, Katherine A., Bosanquet, Margot, Gordon, Anya, Williams, Hailey, Taifalos, Chloe, Smith, Maria, Leishman, Shaneen, Oakes, Ellena, Kentish, Megan, McNamara, Lynda, Ware, Robert S. and Boyd, Roslyn N. (2024). Relationship between early infant motor repertoire and neurodevelopment on the hammersmith infant neurological examination in a developmentally vulnerable first nations cohort. Early Human Development, 192 106004. doi: 10.1016/j.earlhumdev.2024.106004

Relationship between early infant motor repertoire and neurodevelopment on the hammersmith infant neurological examination in a developmentally vulnerable first nations cohort

2024

Journal Article

Sleep problems in a population-based cohort of primary school age children with Cerebral Palsy

Whittingham, Koa, Benfer, Kath, Sakzewski, Leanne, Wotherspoon, Jane, Burgess, Andrea, Comans, Tracy, Keramat, Syed Afoz, Ware, Robert S. and Boyd, Roslyn N. (2024). Sleep problems in a population-based cohort of primary school age children with Cerebral Palsy. Research in Developmental Disabilities, 147 104690, 104690. doi: 10.1016/j.ridd.2024.104690

Sleep problems in a population-based cohort of primary school age children with Cerebral Palsy

2024

Journal Article

Efficacy of early intervention for infants with cerebral palsy in an LMIC: An RCT

Benfer, Katherine A., Whittingham, Koa, Ware, Robert S., Ghosh, Asis Kumar, Chowdhury, Sayak, Moula, Golam, Samanta, Sandip, Khan, Naila Zaman, Bell, Kristie L., Oftedal, Stina, Bandaranayake, Sasaka, Salt, Alison T., Bhattacharya, Anjan, Maiti, Pradip, Tripathi, Santanu K., Morgan, Cathy, Novak, Iona and Boyd, Roslyn N. (2024). Efficacy of early intervention for infants with cerebral palsy in an LMIC: An RCT. Pediatrics, 153 (4) e2023063854, 1-15. doi: 10.1542/peds.2023-063854

Efficacy of early intervention for infants with cerebral palsy in an LMIC: An RCT

2024

Journal Article

The evolution of nutrition management in children with severe neurological impairment with a focus on cerebral palsy

Oftedal, Stina, McCormack, Siobhan, Stevenson, Richard, Benfer, Katherine, Boyd, Roslyn N. and Bell, Kristie (2024). The evolution of nutrition management in children with severe neurological impairment with a focus on cerebral palsy. Journal of Human Nutrition and Dietetics. doi: 10.1111/jhn.13277

The evolution of nutrition management in children with severe neurological impairment with a focus on cerebral palsy

2023

Journal Article

Study protocol: peer delivered early intervention (Learning through Everyday Activities with Parents for Infants at risk of Cerebral Palsy: LEAP-CP) for First Nation Australian infants at high risk of cerebral palsy – an RCT study

Benfer, Katherine, Boyd, Roslyn N, Roe, Yvette, Fagan, Ruth, Luke, Carly, Mick-Ramsamy, Leeann, Whittingham, Koa, Novak, Iona, Bosanquet, Margot, McNamara, Lynda, Khandaker, Gulam, Fogarty, Lucy, Cadet-James, Yvonne, Ruben, Alan, Comans, Tracy, Smith, Anthony and Ware, Robert S (2023). Study protocol: peer delivered early intervention (Learning through Everyday Activities with Parents for Infants at risk of Cerebral Palsy: LEAP-CP) for First Nation Australian infants at high risk of cerebral palsy – an RCT study. BMJ Open, 13 (3) e059531, 1-16. doi: 10.1136/bmjopen-2021-059531

Study protocol: peer delivered early intervention (Learning through Everyday Activities with Parents for Infants at risk of Cerebral Palsy: LEAP-CP) for First Nation Australian infants at high risk of cerebral palsy – an RCT study

2023

Journal Article

School readiness of children at high risk of cerebral palsy randomised to early neuroprotection and neurorehabilitation: protocol for a follow-up study of participants from four randomised clinical trials

Boyd, Roslyn N., Novak, Iona, Morgan, Catherine, Bora, Samudragupta, Sakzewski, Leanne, Ware, Robert S., Comans, Tracy, Fahey, Michael Collingwood, Whittingham, Koa, Trost, Stewart, Pannek, Kerstin, Pagnozzi, Alex, Mcintyre, Sarah, Badawi, Nadia, Smithers Sheedy, Hayley, Palmer, Kirsten Rebecca, Burgess, Andrea, Keramat, Afroz, Bell, Kristie, Hines, Ashleigh, Benfer, Katherine, Gascoigne-Pees, Laura, Leishman, Shaneen and Oftedal, Stina (2023). School readiness of children at high risk of cerebral palsy randomised to early neuroprotection and neurorehabilitation: protocol for a follow-up study of participants from four randomised clinical trials. BMJ Open, 13 (2) e068675, 1-17. doi: 10.1136/bmjopen-2022-068675

School readiness of children at high risk of cerebral palsy randomised to early neuroprotection and neurorehabilitation: protocol for a follow-up study of participants from four randomised clinical trials

2022

Journal Article

Examining the content and outcomes of training in dysphagia and mealtime management: a systematic review informing co-design of new training

Reddacliff, Courtney, Hemsley, Bronwyn, Smith, Rebecca, Dalton, Sayne, Jones, Sarah, Fitzpatrick, Amy, Given, Fiona, Kelly, Jack, Lawson, Xanthe, Darcy, Simon, Debono, Deborah, Benfer, Kath and Balandin, Susan (2022). Examining the content and outcomes of training in dysphagia and mealtime management: a systematic review informing co-design of new training. American Journal of Speech-Language Pathology, 31 (3), 1535-1552. doi: 10.1044/2022_ajslp-21-00231

Examining the content and outcomes of training in dysphagia and mealtime management: a systematic review informing co-design of new training

2022

Journal Article

Cognitive, academic, executive and psychological functioning in children with spastic motor type cerebral palsy: influence of extent, location, and laterality of brain lesions

Laporta-Hoyos, Olga, Pannek, Kerstin, Pagnozzi, Alex M., Whittingham, Koa, Wotherspoon, Jane, Benfer, Kath, Fiori, Simona, Ware, Robert S. and Boyd, Roslyn N. (2022). Cognitive, academic, executive and psychological functioning in children with spastic motor type cerebral palsy: influence of extent, location, and laterality of brain lesions. European Journal of Paediatric Neurology, 38, 33-46. doi: 10.1016/j.ejpn.2022.02.004

Cognitive, academic, executive and psychological functioning in children with spastic motor type cerebral palsy: influence of extent, location, and laterality of brain lesions

2022

Journal Article

Mini-EDACS: development of the eating and drinking ability classification system for young children with cerebral palsy

Sellers, Diane, Pennington, Lindsay, Bryant, Elizabeth, Benfer, Katherine, Weir, Kelly, Aboagye, Sonia and Morris, Christopher (2022). Mini-EDACS: development of the eating and drinking ability classification system for young children with cerebral palsy. Developmental Medicine and Child Neurology, 64 (7), 897-906. doi: 10.1111/dmcn.15172

Mini-EDACS: development of the eating and drinking ability classification system for young children with cerebral palsy

2022

Journal Article

Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

Luke, Carly R., Benfer, Katherine, Mick-Ramsamy, Leeann, Ware, Robert S., Reid, Natasha, Bos, Arend F., Bosanquet, Margot and Boyd, Roslyn N. (2022). Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol. BMJ Open, 12 (1) e053646, e053646. doi: 10.1136/bmjopen-2021-053646

Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

2021

Journal Article

Efficacy of early interventions with active parent implementation in low-and-middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review

Branjerdporn, Nataya, Benfer, Katherine, Crawford, Emma, Ziviani, Jenny, Boyd, Roslyn N. and Sakzewski, Leanne (2021). Efficacy of early interventions with active parent implementation in low-and-middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review. Disability and Rehabilitation, 44 (23), 1-15. doi: 10.1080/09638288.2021.1989063

Efficacy of early interventions with active parent implementation in low-and-middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review

2021

Journal Article

Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India

Branjerdporn, Nataya, Crawford, Emma, Ziviani, Jenny, Boyd, Roslyn N., Benfer, Katherine and Sakzewski, Leanne (2021). Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India. Research in Developmental Disabilities, 113 103957, 1-9. doi: 10.1016/j.ridd.2021.103957

Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India

2020

Journal Article

The pediatric subjective global nutrition assessment classifies more children with cerebral palsy as malnourished compared with anthropometry

Bell, Kristie L., Benfer, Katherine A., Ware, Robert S., Patrao, Tania A., Garvey, Josephine J., Haddow, Rachel, Boyd, Roslyn N., Davies, Peter S.W., Arvedson, Joan C. and Weir, Kelly A. (2020). The pediatric subjective global nutrition assessment classifies more children with cerebral palsy as malnourished compared with anthropometry. Journal of the Academy of Nutrition and Dietetics, 120 (11), 1893-1901. doi: 10.1016/j.jand.2020.04.012

The pediatric subjective global nutrition assessment classifies more children with cerebral palsy as malnourished compared with anthropometry

2019

Journal Article

Development and validation of a screening tool for feeding/swallowing difficulties and undernutrition in children with cerebral palsy

Bell, Kristie L, Benfer, Katherine A., Ware, Robert S., Patrao, Tania A., Garvey, Josephine J., Arvedson, Joan C., Boyd, Roslyn N., Davies, Peter S.W. and Weir, Kelly A. (2019). Development and validation of a screening tool for feeding/swallowing difficulties and undernutrition in children with cerebral palsy. Developmental Medicine and Child Neurology, 61 (10) dmcn.14220, 1175-1181. doi: 10.1111/dmcn.14220

Development and validation of a screening tool for feeding/swallowing difficulties and undernutrition in children with cerebral palsy

2018

Journal Article

Community-based parent-delivered early detection and intervention programme for infants at high risk of cerebral palsy in a low-resource country (Learning through Everyday Activities with Parents (LEAP-CP): protocol for a randomised controlled trial

Benfer, Katherine A., Novak, Iona, Morgan, Catherine, Whittingham, Koa, Khan, Naila Zaman, Ware, Robert S., Bell, Kristie L., Bandaranayake, Sasaka, Salt, Alison, Ghosh, Asis Kumar, Bhattacharya, Anjan, Samanta, Sandip, Moula, Golam, Bose, Dilip, Tripathi, Santanu and Boyd, Roslyn N. (2018). Community-based parent-delivered early detection and intervention programme for infants at high risk of cerebral palsy in a low-resource country (Learning through Everyday Activities with Parents (LEAP-CP): protocol for a randomised controlled trial. BMJ Open, 8 (6) e017204, e021186. doi: 10.1136/bmjopen-2017-021186

Community-based parent-delivered early detection and intervention programme for infants at high risk of cerebral palsy in a low-resource country (Learning through Everyday Activities with Parents (LEAP-CP): protocol for a randomised controlled trial

2017

Journal Article

Oropharyngeal Dysphagia and Cerebral Palsy

Benfer, Katherine A., Weir, Kelly A., Bell, Kristie L., Ware, Robert S., Davies, Peter S. W. and Boyd, Roslyn N. (2017). Oropharyngeal Dysphagia and Cerebral Palsy. Pediatrics, 140 (6) e20170731, 1-11. doi: 10.1542/peds.2017-0731

Oropharyngeal Dysphagia and Cerebral Palsy

2017

Journal Article

Parent-reported indicators for detecting feeding and swallowing difficulties and undernutrition in preschool-aged children with cerebral palsy

Benfer, Katherine A., Weir, Kelly A., Ware, Robert S., Davies, Peter S. W., Arvedson, Joan, Boyd, Roslyn N and Bell, Kristie L (2017). Parent-reported indicators for detecting feeding and swallowing difficulties and undernutrition in preschool-aged children with cerebral palsy. Developmental Medicine and Child Neurology, 59 (11), 1181-1187. doi: 10.1111/dmcn.13498

Parent-reported indicators for detecting feeding and swallowing difficulties and undernutrition in preschool-aged children with cerebral palsy

2017

Journal Article

Hazardous child labor in Nepal: The case of brick kilns

Lamar, Stephen, O'Leary, Patrick, Chui, Cheryl, Benfer, Katherine, Zug, Sebastian and Jordan, Lucy P. (2017). Hazardous child labor in Nepal: The case of brick kilns. Child Abuse and Neglect, 72, 312-325. doi: 10.1016/j.chiabu.2017.08.011

Hazardous child labor in Nepal: The case of brick kilns

2017

Journal Article

PREDICT-CP: study protocol of implementation of comprehensive surveillance to predict outcomes for school-aged children with cerebral palsy

Boyd, Roslyn N., Davies, Peter S. W., Ziviani, Jenny, Trost, Stewart, Barber, Lee, Ware, Robert, Rose, Stephen, Whittingham, Koa, Sakzewski, Leanne, Bell, Kristie, Carty, Christopher, Obst, Steven, Benfer, Katherine, Reedman, Sarah, Edwards, Priya, Kentish, Megan, Copeland, Lisa, Weir, Kelly, Davenport, Camilla, Brooks, Denise, Coulthard, Alan, Pelekanos, Rebecca, Guzzetta, Andrea, Fiori, Simona, Wynter, Meredith, Finn, Christine, Burgess, Andrea, Morris, Kym, Walsh, John ... Scuffham, Paul A. (2017). PREDICT-CP: study protocol of implementation of comprehensive surveillance to predict outcomes for school-aged children with cerebral palsy. BMJ Open, 7 (7) e014950, e014950. doi: 10.1136/bmjopen-2016-014950

PREDICT-CP: study protocol of implementation of comprehensive surveillance to predict outcomes for school-aged children with cerebral palsy