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Dr Helen Haydon
Dr

Helen Haydon

Email: 
Phone: 
+61 7 3176 4462

Overview

Background

Helen works across a range of projects in both the research and consultancy arms of the Centre for Online Health, Centre for Health Services Research. Her focus is on the effective use of technology to increase access to health interventions (e.g. online psychoeducational tools for carers; telehealth implementation, telemental health and allied health) and increasing health literacy in the community (e.g. dementia knowledge and digital health). She is particularly interested in using health technology to promote quality end-of-life care. Her current projects aim to increase care closer to home for people with dementia and with life-limiting illnesses (e.g. telepalliative care). In 2023, she was awarded a 3-year National Palliative Care Project Grant funding to lead a national palliative care telementoring project - Palliative Care ECHO. Other research includes: evaluation of telepalliative care services (e.g. patient/ carer outcomes and perceptions and staff perceptions); mental health interventions via telehealth and social media and; online psychoeducational support for carers of people with primary brain tumours in order to increase quality of life and mental wellbeing.

Helen coordinates a range of COH consultancy projects.

She is a Registered Psychologist with clinical experience working with a range of issues and diverse populations and has over ten years’ experience teaching and facilitating workshops on psychology and health communication.

Availability

Dr Helen Haydon is:
Available for supervision
Media expert

Qualifications

  • Bachelor of Psychology, Queensland University of Technology
  • Bachelor (Honours) of Psychological Science, Queensland University of Technology
  • Doctor of Philosophy, Queensland University of Technology
  • Graduate Diploma of Aged Health Care, University of Tasmania

Research interests

  • Palliative Telehealth Services

    I lead a program of telepalliative care projects including: implementation of a national telementoring program for non-specialist health professionals to upskill in palliative care and evaluation of Queensland telepalliative care services.

  • PsychoOncology

    I am involved in an Australian program of research, funded by the MRFF, to develop and evaluate an online intervention for caregivers of people with brain tumours. This program of research has several minor projects attached to it and resulted in my contrribution to the Psycho-Oncology Telehealth Recommendations.

  • Voluntary Assisted Dying

    An emerging area of research, I am interested in the use of telehealth to assist with accessing Voluntary Assisted Dying (VAD) in Australia. Current federal legislation places some restrictions on the use of 'carriage services', including telehealth. These restrictions appear arbitrary and causes confusion and concern among health professionals delivering VAD. Problematically, it increases the inequity in access to VAD for ptoentally eligible people with a terminal illness who live in rural and remote areas.

Research impacts

Year

Impact measures

2023

Invited participant to Parliamentary Friends of Palliative Care Event - Australian Parliament

Invited guest to the Australian Institute of International Affairs Queensland Annual Dinner with Senator Murray Watt at Queensland Parliamentary Annexe

Invited speaker to IndOZ Conference 2023 - A meeting between Indonesian and Australian industry, government and business to discuss partnerships and opportunities.

Invited speaker to the Queensland Health Allied Health Clinical Educator Forum

Invitation to speak at the Brisbane Cancer Conference - Ms Monica Taylor will speak on my behalf

Invited guest and exhibitor (promoting my palliative care work) at the Brisbane North PHN Palliative Care Evening for Primary Care

Invited guest (only research focussed guest) at the Queensland Voluntary Assisted Dying Implementation Conference

Contributed to development of the Psycho-Oncollogy Telehealth Recommendations

2022

Course leader for the Australia Awards in Indonesia - Upskilling Indonesian government and industry personnel in digital health implementation and evaluation.

Invited to meet with DFAT personnel at the Australian Embassy - Jakarta, Indonesia to discuss transnational digital health collaboration needs and potentials.

Developed and facilitated a telementoring Palliative Care service reaching national and international participants.

2021

Co-developed a telementoring dementia service with Queensland Aboriginal and Islander Health Council services

2020

Involvement in the delivery of numerous webinars to support the rapid uptake of telehealth during COVID-19. These included a recorded webinar for the Western Queensland PHN and the Centre for Online Health Telehealth Forum which reached people across Australia and overseas. I am also involved in webinars and podcasts, planned for September, for two multinational pharmaceutical companies.

Contribution to online publishing and promotion of Quick Guides for Telehealth (Caffery, Hobson, Mothershaw, Haydon, Snoswell, Thomas, Zurynski, Smith K-L, Clay & Smith AC). https://espace.library.uq.edu.au/view/UQ:6eb6f3b

Highlighting the use of telehealth during COVID-19 restrictions in a Croakey article, Snoswell, Mehrotra, Thomas, Smith K, Haydon, Caffery & Smith AC. "Making the most of telehealth in COVID-19 responses, and beyond" March 2020 https://espace.library.uq.edu.au/view/UQ:3d6cf9d

2019

UQ Partners in Research Excellence Award - Commendation

Atom Film Award Finalist – Co-Director of DREAMT: Using telehealth to support Aboriginal and Torres Strait Islander People with dementia

Works

Search Professor Helen Haydon’s works on UQ eSpace

77 works between 2016 and 2024

1 - 20 of 77 works

2024

Journal Article

A cost-consequence analysis of the Queensland specialist palliative rural telehealth (SPaRTa) service

Snoswell, Centaine L., Smith, Anthony C., Grove, Graham, Broadbent, Andrew, Caffery, Liam J., Thomas, Emma, Kelly, Jaimon and Haydon, Helen M. (2024). A cost-consequence analysis of the Queensland specialist palliative rural telehealth (SPaRTa) service. Progress in Palliative Care, 32 (5), 1-8. doi: 10.1080/09699260.2024.2374601

A cost-consequence analysis of the Queensland specialist palliative rural telehealth (SPaRTa) service

2024

Journal Article

Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention

Faris, Mona M, Dhillon, Haryana M, Campbell, Rachel, Halkett, Georgia Kb, Chan, Raymond J, Haydon, Helen M, Sansom-Daly, Ursula M, Koh, Eng-Siew, Ownsworth, Tamara, Nowak, Anna K, Kelly, Brian, Leonard, Robyn, Pike, Kerryn E, Legge, Dianne M, Pinkham, Mark B, Agar, Meera R, Shaw, Joanne and The BRAINS Program Group (2024). Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention. JNCI Cancer Spectrum, 8 (4) pkae034. doi: 10.1093/jncics/pkae034

Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention

2024

Journal Article

Telephone versus video consultations: A systematic review of comparative effectiveness studies and guidance for choosing the most appropriate modality

Caffery, Liam J, Catapan, Soraia De Camargo, Taylor, Monica L, Kelly, Jaimon T, Haydon, Helen M, Smith, Anthony C and Snoswell, Centaine L (2024). Telephone versus video consultations: A systematic review of comparative effectiveness studies and guidance for choosing the most appropriate modality. Journal of Telemedicine and Telecare, 1357633X241232464. doi: 10.1177/1357633x241232464

Telephone versus video consultations: A systematic review of comparative effectiveness studies and guidance for choosing the most appropriate modality

2024

Journal Article

Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study

Cooper, Claire, Gilchrist, Jemma, Beatty, Lisa, Kirsten, Laura, Sharpe, Louise, Zomerdijk, Nienke, Grier, Maree, Turner, Jane, Hobbs, Kim, Haydon, Helen M., Dhillon, Haryana, Kelly, Brian and Shaw, Joanne (2024). Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study. Journal of Psychosocial Oncology Research and Practice, 6 (1). doi: 10.1097/or9.0000000000000123

Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study

2023

Journal Article

Exploratory multi-methods evaluation of an online intervention for carers of people with high grade glioma

Haydon, Helen M, Blackler, Alethea, Nowak, Anna K., Langbecker, Danette, Collier, Justin and Halkett, Georgia (2023). Exploratory multi-methods evaluation of an online intervention for carers of people with high grade glioma. Neuro-Oncology Practice, 10 (6), 544-554. doi: 10.1093/nop/npad032

Exploratory multi-methods evaluation of an online intervention for carers of people with high grade glioma

2023

Journal Article

Development and validation of the Digital Health Acceptability Questionnaire

Haydon, Helen M., Major, Taylor, Kelly, Jaimon T., Catapan, Soraia de C., Caffery, Liam J., Smith, Anthony C., Gallegos-Rejas, Victor, Thomas, Emma E., Banbury, Annie and Snoswell, Centaine L. (2023). Development and validation of the Digital Health Acceptability Questionnaire. Journal of Telemedicine and Telecare, 29 (10_suppl), 8S-15S. doi: 10.1177/1357633X231202279

Development and validation of the Digital Health Acceptability Questionnaire

2023

Journal Article

Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services

Gallegos-Rejas, Victor M., Kelly, Jaimon T., Snoswell, Centaine L., Haydon, Helen M., Banbury, Annie, Thomas, Emma E., Major, Taylor, Caffery, Liam J., Smith, Anthony C. and de Camargo Catapan, Soraia (2023). Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services. Journal of Telemedicine and Telecare, 29 (10_suppl), 24S-29S. doi: 10.1177/1357633X231197945

Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services

2023

Journal Article

Cost-effectiveness of remote patient monitoring for First Nations peoples living with diabetes in regional Australia

Snoswell, Centaine L, Vitangcol, Kathryn J.., Haydon, Helen M., Gray, Leonard C., Leedie, Floyd, Smith, Anthony C. and Caffery, Liam J. (2023). Cost-effectiveness of remote patient monitoring for First Nations peoples living with diabetes in regional Australia. Journal of Telemedicine and Telecare, 29 (10_suppl), 3S-7S. doi: 10.1177/1357633x231214019

Cost-effectiveness of remote patient monitoring for First Nations peoples living with diabetes in regional Australia

2023

Conference Publication

Does the digital divide impact acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services

Gallegos-Rejas, Victor, Kelly, Jaimon, Snoswell, Centaine, Haydon, Helen, Banbury, Annie, Thomas, Emma, Major, Taylor, Caffery, Liam, Smith, Anthony and De Camargo Catapan, Soraia (2023). Does the digital divide impact acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.

Does the digital divide impact acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services

2023

Conference Publication

Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study

De Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023. Brisbane, QLD Australia: The University of Queensland.

Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study

2023

Conference Publication

Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth

De Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023. Brisbane, QLD Australia: The University of Queensland.

Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth

2023

Conference Publication

Trust and confidence in using telehealth by phone and video in people with chronic kidney disease: a cross-sectional study

de Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Trust and confidence in using telehealth by phone and video in people with chronic kidney disease: a cross-sectional study. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.

Trust and confidence in using telehealth by phone and video in people with chronic kidney disease: a cross-sectional study

2023

Conference Publication

Development and validation of the Research-based Acceptability Questionnaire (RAQ)

Haydon H.M., Major, T., Kelly, J., Catapan, S.C., Caffery, L., Smith, A.C., Gallegos-Rejas, V., Thomas, E.E., Banbury, A. and Snoswell, C.L. (2023). Development and validation of the Research-based Acceptability Questionnaire (RAQ). 23rd Conference on Successes and Failures in Telehealth (SFT-23), Adelaide, SA Australia, 27 - 29 November 2023.

Development and validation of the Research-based Acceptability Questionnaire (RAQ)

2023

Conference Publication

Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth

de Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Isbel, Nicole, Johnson, David and Campbell, Katrina (2023). Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.

Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth

2023

Conference Publication

Development and validation of the Digital Health Acceptability Questionnaire

Major, T., Haydon, H., De Camargo Catapan, S., Kelly, J. T., Caffery, L., Smith, A., Gallegos Rejas, V., Thomas, E., Banbury, A. and Snoswell, C. (2023). Development and validation of the Digital Health Acceptability Questionnaire. Successes and Failures in Telehealth 2023, Adelaide, SA Australia, 27-29 November 2023.

Development and validation of the Digital Health Acceptability Questionnaire

2023

Conference Publication

Cost-effectiveness of the remote patient monitoring program for First Nations peoples living with diabetes

Snoswell, Centaine L., Vitangcol, Kathryn, Haydon, Helen M., Gray, Len, Smith, Anthony C., Leedie, Floyd and Caffery, Liam (2023). Cost-effectiveness of the remote patient monitoring program for First Nations peoples living with diabetes. 23rd Conference on Successes and Failures in Telehealth (SFT-23), Adelaide, SA Australia, 27 - 29 November 2023.

Cost-effectiveness of the remote patient monitoring program for First Nations peoples living with diabetes

2023

Conference Publication

Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter service

Gallegos-Rejas, Victor M., Kelly, Jaimon T., Snoswell, Centaine L., Haydon, Helen M., Banbury, Annie, Thomas, Emma E., Major, Taylor, Caffery, Liam J., Smith, Anthony C. and de Camargo-Catapan, Soraia (2023). Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter service. 2023 Successes and Failures in Telehealth (SFT-23) Conference, Adelaide, SA Australia, 27-29 November 2023.

Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter service

2023

Journal Article

Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study

Catapan, Soraia de Camargo, Haydon, Helen M., Hickman, Ingrid J., Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina L., Mayr, Hannah L., Canfell, Oliver, Scuffham, Paul, Burton, Nicola, Caffery, Liam J., Smith, Anthony C. and Kelly, Jaimon T. (2023). Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study. Journal of Telemedicine and Telecare, 29 (10_suppl), 16S-23S. doi: 10.1177/1357633x231202275

Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study

2023

Journal Article

A cross-sectional study exploring equity of access to telehealth in culturally and linguistically diverse communities in a major health service

Gallegos-Rejas, Victor M., Kelly, Jaimon T., Lucas, Karen, Snoswell, Centaine L., Haydon, Helen M., Pager, Sue, Smith, Anthony C. and Thomas, Emma E. (2023). A cross-sectional study exploring equity of access to telehealth in culturally and linguistically diverse communities in a major health service. Australian Health Review, 47 (6), 721-728. doi: 10.1071/ah23125

A cross-sectional study exploring equity of access to telehealth in culturally and linguistically diverse communities in a major health service

2023

Journal Article

Digital health literacy to enhance workforce skills and clinical effectiveness: a response to 'Digital health literacy: helpful today, dependency tomorrow? Contingency planning in a digital age'

Haydon, Helen M., Snoswell, Centaine L, Jones, Cindy, Carey, Melissa, Taylor, Melissa, Horstmanshof, Louise, Hicks, Richard, Lotfaliany, Mojtaba and Banbury, Annie (2023). Digital health literacy to enhance workforce skills and clinical effectiveness: a response to 'Digital health literacy: helpful today, dependency tomorrow? Contingency planning in a digital age'. Australasian Journal on Ageing, 42 (4), 803-804. doi: 10.1111/ajag.13257

Digital health literacy to enhance workforce skills and clinical effectiveness: a response to 'Digital health literacy: helpful today, dependency tomorrow? Contingency planning in a digital age'

Funding

Current funding

  • 2024 - 2025
    SPaRTa Grief & Bereavement Service ¿ Health professional perspectives
    Gold Coast Hospital and Health Services
    Open grant
  • 2024 - 2025
    SPaRTa Grief & Bereavement Service ¿ Research Support for the Needs Analysis
    Gold Coast Hospital and Health Services
    Open grant
  • 2023 - 2026
    Expanding Palliative Care ECHO: Implementation and evaluation of a nationwide palliative care telementoring program
    Commonwealth Department of Health
    Open grant
  • 2023 - 2026
    Digital nutrition model of care to improve Chronic Kidney Disease management in Northern Australia
    CRC for Developing Northern Australia
    Open grant
  • 2023 - 2025
    Health-e-Regions: expansion and evaluation of telehealth services in rural and remote communities (Western Downs and Gladstone)
    QGC Pty Limited
    Open grant
  • 2023 - 2024
    Elder ECHO
    National Aboriginal Community Controlled Health Organisation
    Open grant
  • 2020 - 2025
    Brain cancer Rehabilitation, Assessment, Interventions of Survivor Needs (BRAIN) (MRFF Brain Cancer Survivorship administered by University of Sydney)
    University of Sydney
    Open grant

Past funding

  • 2022 - 2023
    A mixed-methods study to evaluate the trust and confidence in telehealth in chronic kidney disease
    University of Queensland In-kind/Indirect Funding
    Open grant
  • 2021 - 2022
    Implementation and evaluation of a statewide palliative care telementoring service: Palliative Care ECHO
    UQ Knowledge Exchange & Translation Fund
    Open grant
  • 2021 - 2022
    Improving equity of telelehealth access across Metro South Health
    UQ Knowledge Exchange & Translation Fund
    Open grant
  • 2021
    Embedding remote monitoring into practice: A review of the evidence and service recommendations
    Queensland Health
    Open grant
  • 2020 - 2022
    Implementation and evaluation of a Telementoring Dementia Care Service: DementiaECHO
    Indigenous Australians' Health Programme
    Open grant
  • 2020 - 2023
    Evaluation of the state-wide rural and remote supportive and specialist palliative care telehealth service
    Gold Coast Hospital and Health Services
    Open grant

Supervision

Availability

Dr Helen Haydon is:
Available for supervision

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Available projects

  • The Role of Telehealth in Voluntary Assisted Dying

    Using strict eligibility criteria, Voluntary Assisted Dying (VAD) laws are now passed in all Australian states. VAD permits an eligible person with a terminal illness to end their life through either self-administration or practitioner-administration of a VAD medication. VAD enables “people who are suffering and dying to choose the manner and timing of their death”. Although choice is a central tenet of VAD, people living in rural and remote locations lack choice if local health services are not providers.

    Telehealth effectively increases access to healthcare for such underserved populations. However, under federal legislation it may be a criminal offence for clinicians to discuss VAD via telehealth. Clinicians are uncertain about how to support people in rural and remote communities. Overseas, when appropriate, telehealth supports people to access VAD. This research investigates the impact of using (or not using) telehealth as a means of accessing VAD services on clinicians and consumers.

Supervision history

Current supervision

Completed supervision

Media

Enquiries

Contact Dr Helen Haydon directly for media enquiries about:

  • telehealth
  • telehealth palliative
  • telepalliative

Need help?

For help with finding experts, story ideas and media enquiries, contact our Media team:

communications@uq.edu.au