Overview
Background
Dr Helen Haydon is a Senior Research Fellow and Registered Psychologist at the University of Queensland. She has national standing, and an emerging international reputation, as a digital health researcher with a focus on aged and palliative care, psycho-oncology and carer wellbeing. She leads 3 applied nationwide digital health research programs: 1/ Palliative Care ECHO, a Federally funded National Palliative Care Project that connects services and upskills health professionals across Australia in palliative care; 2/ Elder ECHO, a telementoring program to support the National Aboriginal Community Controlled Health Organisation’s (NACCHO) Elder Care Support workforce in the delivery of Culturally safe aged care and; 3/ Caring for the Carer, an online intervention for carers of people with brain tumour. http://caringforthecarer.org.au/
Other research includes: evaluation of telepalliative care services (e.g. patient/ carer outcomes and perceptions and staff perceptions); voluntary assisted dying; technology supported grief and bereavement support and; digital mental health.
She is a Registered Psychologist with clinical experience working with a range of issues and diverse populations and has over ten years’ experience teaching and facilitating workshops on psychology and health communication.
Availability
- Dr Helen Haydon is:
- Available for supervision
- Media expert
Fields of research
Qualifications
- Bachelor of Psychology, Queensland University of Technology
- Bachelor (Honours) of Psychological Science, Queensland University of Technology
- Doctor of Philosophy, Queensland University of Technology
- Graduate Diploma of Aged Health Care, University of Tasmania
Research interests
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PsychoOncology
I am involved in an Australian program of research, funded by the MRFF, to develop and evaluate an online intervention for caregivers of people with brain tumours. This program of research has several minor projects attached to it and resulted in my contrribution to the Psycho-Oncology Telehealth Recommendations.
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Palliative Virtual / Digital Health Services
I lead a program of telepalliative care projects including: implementation of a national telementoring program for non-specialist health professionals to upskill in palliative care and evaluation of Queensland telepalliative care services.
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Voluntary Assisted Dying
An emerging area of research, I am interested in the use of telehealth to assist with accessing Voluntary Assisted Dying (VAD) in Australia. Current federal legislation places some restrictions on the use of 'carriage services', including telehealth. These restrictions appear arbitrary and causes confusion and concern among health professionals delivering VAD. Problematically, it increases the inequity in access to VAD for potentially eligible people with a terminal illness who live in rural and remote areas. I am also examining the impact of implementation on the Australian health workforce.
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Grief Literacy and Compassionate Communities
There is a need to increase death and grief literacy in Australia, within communities and health professionals. Particularly within Residential Aged Care Homes, I am exploring ways in which to increase death and grief literacy, one of which is building Compassionate Communities.
Research impacts
Dr Haydon’s research expertise intersects digital/virtual health implementation and evaluation, palliative care, psychology, psycho-oncology, First Nations aged care and consumer-led digital health.
She leads two national programs which increase health professionals’ capacity to deliver care regardless of geographic location. 1/ Palliative Care ECHO, a National Palliative Care Project funded by the Department of Health, Disability and Ageing, has an average monthly attendance of 200 health professionals from all states and territories. Evaluation results show participants report increased palliative care knowledge, improved confidence to care for someone with a life-limiting illness in their community and decreased professional isolation – supporting a sustainable rural workforce. 2/ Approximately 70 Elder Care Support staff (from all states and territories) attend Elder ECHO monthly, with participants reporting strong peer support and enhanced aged care knowledge. Elder ECHO is delivered in partnership with the National Aboriginal Community Controlled Health Organisation (NACCHO). The regular virtual sessions are fostering a meaningful communication channel between Elder Care Support staff working in communities and the federal government, supporting the rollout of Aged Care Reform.
Finally, Helen leads one of five streams of the national MRFF BRAINS program of work. Caring for the Carer, http://caringforthecarer.org.au/ is an online intervention providing psychoeducational support to carers of people with brain tumour.
Works
Search Professor Helen Haydon’s works on UQ eSpace
2025
Journal Article
Development and validation of novel scales to measure trust and confidence in using telephone and video consultation scales in people with chronic kidney disease
de Camargo Catapan, Soraia, Haydon, Helen M., Santiago, Pedro H. R., Hickman, Ingrid J., Webb, Lindsey, Isbel, Nicole, Johnson, David W., Mayr, Hannah L., Canfell, Oliver J., Scuffham, Paul, Burton, Nicola W., Smith, Anthony C. and Kelly, Jaimon T. (2025). Development and validation of novel scales to measure trust and confidence in using telephone and video consultation scales in people with chronic kidney disease. Journal of Telemedicine and Telecare 1357633X251338950, 1357633X251338950. doi: 10.1177/1357633X251338950
2025
Journal Article
Telephone versus video consultations: a systematic review of consumer and provider preferences
Snoswell, Centaine L., Haydon, Helen M., Catapan, Soraia de Camargo, Kelly, Jaimon T., Thomas, Emma E., Neil, Laura J., Taylor, Monica L., Smith, Anthony C. and Caffery, Liam J. (2025). Telephone versus video consultations: a systematic review of consumer and provider preferences. Journal of Telemedicine and Telecare, 1357633X251341199. doi: 10.1177/1357633x251341199
2025
Journal Article
Co-designing a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with a brain tumour
Campbell, R., Shaw, J. M., Banks, H., Carlick, T., Faris, M. M., Jeon, M. S., Legge, D., Foster, C., Leonard, R., Chan, R. J., Agar, M. R., Miller, A., Dhillon, H. M., McDougall, Emma, Buster, Jessica, Vitangcol, Kathryn, Virtue-Griffiths, Sian, Lyne, Melinda, Fazon, Tiffany, Chen, Jill, Lion, Katarzyna, Milley, Kristi, Rhee, Joel, Sansom-Daly, Ursula, Rankin, Nicole, Pike, Kerryn, Ownsworth, Tamara, Nowak, Anna, Koh, Eng-Siew ... Blackler, Thea (2025). Co-designing a web-based intervention (RESTORE) to support self-management of cancer-related fatigue in people living with a brain tumour. Supportive Care in Cancer, 33 (5) 426, 5. doi: 10.1007/s00520-025-09471-0
2025
Journal Article
‘Don't assume, ask’: a collaboration with consumers, interpreters, clinicians and health service staff to increase video telehealth in culturally and linguistically diverse groups
Kelly, Jaimon T., Taylor, Monica L., Gallegos‐Rejas, Victor M., Pager, Susan, Catapan, Soraia de Camargo, Lucas, Karen, Bogicevic, Angel, Smith, Anthony C., Snoswell, Centaine, Haydon, Helen M. and Thomas, Emma E. (2025). ‘Don't assume, ask’: a collaboration with consumers, interpreters, clinicians and health service staff to increase video telehealth in culturally and linguistically diverse groups. Health Expectations, 28 (2) e70232, 1-8. doi: 10.1111/hex.70232
2025
Journal Article
Digital divide or digital exclusion? Do allied health professionals’ assumptions drive use of telehealth?
Cook, Renee, Haydon, Helen M., Thomas, Emma E., Ward, Elizabeth C., Ross, Julie-Anne, Webb, Clare, Harris, Michael, Hartley, Carina, Burns, Clare L., Vivanti, Angela P., Carswell, Phillip and Caffery, Liam J. (2025). Digital divide or digital exclusion? Do allied health professionals’ assumptions drive use of telehealth?. Journal of Telemedicine and Telecare, 31 (3), 376-385. doi: 10.1177/1357633x231189846
2025
Journal Article
Telehealth-facilitated palliative care enables more people to die at home: An analysis of clinical outcomes and service activity data
Haydon, Helen M., Lotfaliany, Mojtaba, Broadbent, Andrew, Snoswell, Centaine L., Smith, Anthony C., Brydon, Julie-Ann, Caffery, Liam J. and Thomas, Emma E. (2025). Telehealth-facilitated palliative care enables more people to die at home: An analysis of clinical outcomes and service activity data. BMC Palliative Care, 24 (1) 22, 1-8. doi: 10.1186/s12904-024-01622-0
2025
Journal Article
Trust and confidence in telehealth-delivered services: a nation-wide cross-sectional study
Catapan, Soraia de Camargo, Snoswell, Centaine L., Haydon, Helen M., Banbury, Annie, Thomas, Emma E, Caffery, Liam J., Smith, Anthony C. and Kelly, Jaimon (2025). Trust and confidence in telehealth-delivered services: a nation-wide cross-sectional study. Health Marketing Quarterly, 42 (1), 48-66. doi: 10.1080/07359683.2024.2422202
2024
Conference Publication
Developing and delivering telehealth training for staff at residential aged care homes in a Primary Health Network covering urban, regional and rural areas
Banbury, A., Mendis, R., Kelly, J., Thomas, E., Snoswell, C., Caffery, L., Haydon, H. and Smith, A. (2024). Developing and delivering telehealth training for staff at residential aged care homes in a Primary Health Network covering urban, regional and rural areas. Successes and Failures in Telehealth 24, Brisbane, QLD Australia, 13 - 15 November 2024.
2024
Conference Publication
What affects a carer's decision to seek support for themselves? A systematic review to understand psychological support-seeking among carers
Banks, Hannah, Laidsaar-Powell, Rebekah, Dhillon, Haryana, Haydon, Helen M., Giunta, Sarah, Webb, Kyra and Shaw, Joanne (2024). What affects a carer's decision to seek support for themselves? A systematic review to understand psychological support-seeking among carers. COSA's 51st Annual Scientific Meeting: Bridging gaps, building progress, breaking down disparities, Gold Coast, QLD Australia, 13 -15 November 2024. Chichester, West Sussex United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/ajco.14117
2024
Conference Publication
Impacts of VAD on health professionals and support provided: a literature review
Haydon, Helen and Feng, Jack (2024). Impacts of VAD on health professionals and support provided: a literature review. VADCON24, Brisbane, QLD Australia, 27-28 October 2014.
2024
Journal Article
A cost-consequence analysis of the Queensland specialist palliative rural telehealth (SPaRTa) service
Snoswell, Centaine L., Smith, Anthony C., Grove, Graham, Broadbent, Andrew, Caffery, Liam J., Thomas, Emma, Kelly, Jaimon and Haydon, Helen M. (2024). A cost-consequence analysis of the Queensland specialist palliative rural telehealth (SPaRTa) service. Progress in Palliative Care, 32 (5), 326-333. doi: 10.1080/09699260.2024.2374601
2024
Journal Article
Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention
Faris, Mona M, Dhillon, Haryana M, Campbell, Rachel, Halkett, Georgia Kb, Chan, Raymond J, Haydon, Helen M, Sansom-Daly, Ursula M, Koh, Eng-Siew, Ownsworth, Tamara, Nowak, Anna K, Kelly, Brian, Leonard, Robyn, Pike, Kerryn E, Legge, Dianne M, Pinkham, Mark B, Agar, Meera R, Shaw, Joanne and The BRAINS Program Group (2024). Unmet needs in people with high-grade glioma: defining criteria for stepped care intervention. JNCI Cancer Spectrum, 8 (4) pkae034. doi: 10.1093/jncics/pkae034
2024
Journal Article
Corrigendum to ‘‘The clinical effectiveness of telehealth: A systematic review of meta-analyses from 2010 to 2019.’’
Snoswell, Centaine L., Chelberg, Georgina, De Guzman, Keshia R., Haydon, Helen M., Thomas, Emma E., Caffery, Liam J. and Smith, Anthony C. (2024). Corrigendum to ‘‘The clinical effectiveness of telehealth: A systematic review of meta-analyses from 2010 to 2019.’’. Journal of Telemedicine and Telecare, 30 (10), 1667-1667. doi: 10.1177/1357633X241262510
2024
Journal Article
Telephone versus video consultations: A systematic review of comparative effectiveness studies and guidance for choosing the most appropriate modality
Caffery, Liam J., De Camargo Catapan, Soraia, Taylor, Monica L., Kelly, Jaimon T., Haydon, Helen M., Smith, Anthony C. and Snoswell, Centaine L. (2024). Telephone versus video consultations: A systematic review of comparative effectiveness studies and guidance for choosing the most appropriate modality. Journal of Telemedicine and Telecare, 1357633X241232464. doi: 10.1177/1357633x241232464
2024
Conference Publication
What factors influence preferences for telephone and video consultations? A multinomial regression analysis using national survey data
Mendis, Roshni, Neil, Laura, Haydon, Helen, Kelly, Jaimon, Thomas, Emma, Smith, Anthony and Snoswell, Centaine (2024). What factors influence preferences for telephone and video consultations? A multinomial regression analysis using national survey data. Successes and Failures in Telehealth Conference, Brisbane, QLD, Australia, 13-15 November 2024.
2024
Journal Article
Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study
Cooper, Claire, Gilchrist, Jemma, Beatty, Lisa, Kirsten, Laura, Sharpe, Louise, Zomerdijk, Nienke, Grier, Maree, Turner, Jane, Hobbs, Kim, Haydon, Helen M., Dhillon, Haryana, Kelly, Brian and Shaw, Joanne (2024). Development of psycho-oncology telehealth guidelines: a modified Delphi consensus study. Journal of Psychosocial Oncology Research and Practice, 6 (1) 123. doi: 10.1097/or9.0000000000000123
2023
Journal Article
Exploratory multi-methods evaluation of an online intervention for carers of people with high grade glioma
Haydon, Helen M, Blackler, Alethea, Nowak, Anna K., Langbecker, Danette, Collier, Justin and Halkett, Georgia (2023). Exploratory multi-methods evaluation of an online intervention for carers of people with high grade glioma. Neuro-Oncology Practice, 10 (6), 544-554. doi: 10.1093/nop/npad032
2023
Journal Article
Development and validation of the Digital Health Acceptability Questionnaire
Haydon, Helen M., Major, Taylor, Kelly, Jaimon T., Catapan, Soraia de C., Caffery, Liam J., Smith, Anthony C., Gallegos-Rejas, Victor, Thomas, Emma E., Banbury, Annie and Snoswell, Centaine L. (2023). Development and validation of the Digital Health Acceptability Questionnaire. Journal of Telemedicine and Telecare, 29 (10_suppl), 8S-15S. doi: 10.1177/1357633X231202279
2023
Journal Article
Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services
Gallegos-Rejas, Victor M., Kelly, Jaimon T., Snoswell, Centaine L., Haydon, Helen M., Banbury, Annie, Thomas, Emma E., Major, Taylor, Caffery, Liam J., Smith, Anthony C. and de Camargo Catapan, Soraia (2023). Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services. Journal of Telemedicine and Telecare, 29 (10_suppl), 24S-29S. doi: 10.1177/1357633X231197945
2023
Journal Article
Cost-effectiveness of remote patient monitoring for First Nations peoples living with diabetes in regional Australia
Snoswell, Centaine L, Vitangcol, Kathryn J.., Haydon, Helen M., Gray, Leonard C., Leedie, Floyd, Smith, Anthony C. and Caffery, Liam J. (2023). Cost-effectiveness of remote patient monitoring for First Nations peoples living with diabetes in regional Australia. Journal of Telemedicine and Telecare, 29 (10_suppl), 3S-7S. doi: 10.1177/1357633x231214019
Funding
Current funding
Supervision
Availability
- Dr Helen Haydon is:
- Available for supervision
Before you email them, read our advice on how to contact a supervisor.
Available projects
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The Role of Telehealth in Voluntary Assisted Dying or any Assisted Dying topic
Using strict eligibility criteria, Voluntary Assisted Dying (VAD) laws are now passed in all Australian states. VAD permits an eligible person with a terminal illness to end their life through either self-administration or practitioner-administration of a VAD medication. VAD enables “people who are suffering and dying to choose the manner and timing of their death”. Although choice is a central tenet of VAD, people living in rural and remote locations lack choice if local health services are not providers.
Telehealth effectively increases access to healthcare for such underserved populations. However, under federal legislation it may be a criminal offence for clinicians to discuss VAD via telehealth. Clinicians are uncertain about how to support people in rural and remote communities. Overseas, when appropriate, telehealth supports people to access VAD. This research investigates the impact of using (or not using) telehealth as a means of accessing VAD services on clinicians and consumers.
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Open to supervising in all things digital/virtual health, especially palliative care (including grief), aged care and psycho-oncology
Supervision history
Current supervision
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Doctor Philosophy
The feasibility of the decentralised clinical trial model in Australia
Principal Advisor
Other advisors: Associate Professor Nicole Hartley, Associate Professor Chelsea Dobbins
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Master Philosophy
Building grief literacy in residential aged care facilities in rural Far North Queensland as part of a virtual care model.
Principal Advisor
Other advisors: Dr Centaine Snoswell
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Master Philosophy
Optimising cancer pharmacy care for patients with serious mental illness
Associate Advisor
Other advisors: Dr Centaine Snoswell
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Doctor Philosophy
AI companions: opportunities and risks for the wellbeing of Australian adolescent girls
Associate Advisor
Other advisors: Professor Liam Caffery, Dr Centaine Snoswell
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Doctor Philosophy
Integrating telehealth into allied health services
Associate Advisor
Other advisors: Professor Elizabeth Ward, Professor Liam Caffery, Dr Emma Thomas
Completed supervision
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2022
Doctor Philosophy
Understanding the Risk and Protective Factors for Burnout and Wellbeing of Staff Working in the Paediatric Intensive Care Unit: PICU Staff Wellbeing
Principal Advisor
Other advisors: Professor Anthony Smith
Media
Enquiries
Contact Dr Helen Haydon directly for media enquiries about:
- telehealth
- telehealth palliative
- telepalliative
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