Overview
Background
Dr Helen Haydon is a Senior Research Fellow and Registered Psychologist at the University of Queensland. She has national standing, and an emerging international reputation, as a digital health researcher with a focus on aged and palliative care, psycho-oncology and carer wellbeing. She leads 3 applied nationwide digital health research programs: 1/ Palliative Care ECHO, a Federally funded National Palliative Care Project that connects services and upskills health professionals across Australia in palliative care; 2/ Elder ECHO, a telementoring program to support the National Aboriginal Community Controlled Health Organisation’s (NACCHO) Elder Care Support workforce in the delivery of Culturally safe aged care and; 3/ Caring for the Carer, an online intervention for carers of people with brain tumour. http://caringforthecarer.org.au/
Other research includes: evaluation of telepalliative care services (e.g. patient/ carer outcomes and perceptions and staff perceptions); voluntary assisted dying; technology supported grief and bereavement support and; digital mental health.
She is a Registered Psychologist with clinical experience working with a range of issues and diverse populations and has over ten years’ experience teaching and facilitating workshops on psychology and health communication.
Availability
- Dr Helen Haydon is:
- Available for supervision
- Media expert
Fields of research
Qualifications
- Bachelor of Psychology, Queensland University of Technology
- Bachelor (Honours) of Psychological Science, Queensland University of Technology
- Doctor of Philosophy, Queensland University of Technology
- Graduate Diploma of Aged Health Care, University of Tasmania
Research interests
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PsychoOncology
I am involved in an Australian program of research, funded by the MRFF, to develop and evaluate an online intervention for caregivers of people with brain tumours. This program of research has several minor projects attached to it and resulted in my contrribution to the Psycho-Oncology Telehealth Recommendations.
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Palliative Virtual / Digital Health Services
I lead a program of telepalliative care projects including: implementation of a national telementoring program for non-specialist health professionals to upskill in palliative care and evaluation of Queensland telepalliative care services.
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Voluntary Assisted Dying
An emerging area of research, I am interested in the use of telehealth to assist with accessing Voluntary Assisted Dying (VAD) in Australia. Current federal legislation places some restrictions on the use of 'carriage services', including telehealth. These restrictions appear arbitrary and causes confusion and concern among health professionals delivering VAD. Problematically, it increases the inequity in access to VAD for potentially eligible people with a terminal illness who live in rural and remote areas. I am also examining the impact of implementation on the Australian health workforce.
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Grief Literacy and Compassionate Communities
There is a need to increase death and grief literacy in Australia, within communities and health professionals. Particularly within Residential Aged Care Homes, I am exploring ways in which to increase death and grief literacy, one of which is building Compassionate Communities.
Research impacts
Dr Haydon’s research expertise intersects digital/virtual health implementation and evaluation, palliative care, psychology, psycho-oncology, First Nations aged care and consumer-led digital health.
She leads two national programs which increase health professionals’ capacity to deliver care regardless of geographic location. 1/ Palliative Care ECHO, a National Palliative Care Project funded by the Department of Health, Disability and Ageing, has an average monthly attendance of 200 health professionals from all states and territories. Evaluation results show participants report increased palliative care knowledge, improved confidence to care for someone with a life-limiting illness in their community and decreased professional isolation – supporting a sustainable rural workforce. 2/ Approximately 70 Elder Care Support staff (from all states and territories) attend Elder ECHO monthly, with participants reporting strong peer support and enhanced aged care knowledge. Elder ECHO is delivered in partnership with the National Aboriginal Community Controlled Health Organisation (NACCHO). The regular virtual sessions are fostering a meaningful communication channel between Elder Care Support staff working in communities and the federal government, supporting the rollout of Aged Care Reform.
Finally, Helen leads one of five streams of the national MRFF BRAINS program of work. Caring for the Carer, http://caringforthecarer.org.au/ is an online intervention providing psychoeducational support to carers of people with brain tumour.
Works
Search Professor Helen Haydon’s works on UQ eSpace
2023
Conference Publication
Development and validation of the Research-based Acceptability Questionnaire (RAQ)
Haydon H.M., Major, T., Kelly, J., Catapan, S.C., Caffery, L., Smith, A.C., Gallegos-Rejas, V., Thomas, E.E., Banbury, A. and Snoswell, C.L. (2023). Development and validation of the Research-based Acceptability Questionnaire (RAQ). 23rd Conference on Successes and Failures in Telehealth (SFT-23), Adelaide, SA Australia, 27 - 29 November 2023.
2023
Conference Publication
Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth
de Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Isbel, Nicole, Johnson, David and Campbell, Katrina (2023). Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.
2023
Conference Publication
Development and validation of the Digital Health Acceptability Questionnaire
Major, T., Haydon, H., De Camargo Catapan, S., Kelly, J. T., Caffery, L., Smith, A., Gallegos Rejas, V., Thomas, E., Banbury, A. and Snoswell, C. (2023). Development and validation of the Digital Health Acceptability Questionnaire. Successes and Failures in Telehealth 2023, Adelaide, SA Australia, 27-29 November 2023.
2023
Conference Publication
Does the digital divide impact acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services
Gallegos-Rejas, Victor, Kelly, Jaimon, Snoswell, Centaine, Haydon, Helen, Banbury, Annie, Thomas, Emma, Major, Taylor, Caffery, Liam, Smith, Anthony and De Camargo Catapan, Soraia (2023). Does the digital divide impact acceptability and trust in telehealth? Results from a national survey including people requiring interpreter services. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.
2023
Conference Publication
Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study
De Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023. Brisbane, QLD Australia: The University of Queensland.
2023
Conference Publication
Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth
De Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Development and validation of a survey instrument to measure patients’ trust and confidence in using telehealth. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023. Brisbane, QLD Australia: The University of Queensland.
2023
Conference Publication
Trust and confidence in using telehealth by phone and video in people with chronic kidney disease: a cross-sectional study
de Camargo Catapan, Soraia, Haydon, Helen, Hickman, Ingrid, Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina, Mayr, Hannah, Canfell, Oliver, Scuffham, Paul, Caffery, Liam, Smith, Anthony and Kelly, Jaimon (2023). Trust and confidence in using telehealth by phone and video in people with chronic kidney disease: a cross-sectional study. 23rd Conference on Successes and Failures in Telehealth, Adelaide, SA Australia, 27 - 29 November 2023.
2023
Conference Publication
Cost-effectiveness of the remote patient monitoring program for First Nations peoples living with diabetes
Snoswell, Centaine L., Vitangcol, Kathryn, Haydon, Helen M., Gray, Len, Smith, Anthony C., Leedie, Floyd and Caffery, Liam (2023). Cost-effectiveness of the remote patient monitoring program for First Nations peoples living with diabetes. 23rd Conference on Successes and Failures in Telehealth (SFT-23), Adelaide, SA Australia, 27 - 29 November 2023.
2023
Conference Publication
Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter service
Gallegos-Rejas, Victor M., Kelly, Jaimon T., Snoswell, Centaine L., Haydon, Helen M., Banbury, Annie, Thomas, Emma E., Major, Taylor, Caffery, Liam J., Smith, Anthony C. and de Camargo-Catapan, Soraia (2023). Does the requirement for an interpreter impact experience with telehealth modalities, acceptability and trust in telehealth? Results from a national survey including people requiring interpreter service. 2023 Successes and Failures in Telehealth (SFT-23) Conference, Adelaide, SA Australia, 27-29 November 2023.
2023
Journal Article
Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study
Catapan, Soraia de Camargo, Haydon, Helen M., Hickman, Ingrid J., Webb, Lindsey, Isbel, Nicole, Johnson, David, Campbell, Katrina L., Mayr, Hannah L., Canfell, Oliver, Scuffham, Paul, Burton, Nicola, Caffery, Liam J., Smith, Anthony C. and Kelly, Jaimon T. (2023). Trust and confidence in using telehealth in people with chronic kidney disease: A cross-sectional study. Journal of Telemedicine and Telecare, 29 (10_suppl), 16S-23S. doi: 10.1177/1357633x231202275
2023
Journal Article
A cross-sectional study exploring equity of access to telehealth in culturally and linguistically diverse communities in a major health service
Gallegos-Rejas, Victor M., Kelly, Jaimon T., Lucas, Karen, Snoswell, Centaine L., Haydon, Helen M., Pager, Sue, Smith, Anthony C. and Thomas, Emma E. (2023). A cross-sectional study exploring equity of access to telehealth in culturally and linguistically diverse communities in a major health service. Australian Health Review, 47 (6), 721-728. doi: 10.1071/ah23125
2023
Journal Article
Digital health literacy to enhance workforce skills and clinical effectiveness: a response to 'Digital health literacy: helpful today, dependency tomorrow? Contingency planning in a digital age'
Haydon, Helen M., Snoswell, Centaine L, Jones, Cindy, Carey, Melissa, Taylor, Melissa, Horstmanshof, Louise, Hicks, Richard, Lotfaliany, Mojtaba and Banbury, Annie (2023). Digital health literacy to enhance workforce skills and clinical effectiveness: a response to 'Digital health literacy: helpful today, dependency tomorrow? Contingency planning in a digital age'. Australasian Journal on Ageing, 42 (4), 803-804. doi: 10.1111/ajag.13257
2023
Journal Article
Psychological factors that contribute to the use of video consultations in healthcare: a systematic review
Haydon, Helen M., Fowler, James A., Taylor, Monica L., Smith, Anthony C. and Caffery, Liam J. (2023). Psychological factors that contribute to the use of video consultations in healthcare: a systematic review. Journal of Medical Internet Research, 26 e54636, 1-18. doi: 10.2196/54636
2023
Journal Article
Factors that may threaten or protect the wellbeing of staff working in paediatric intensive care environments
Crowe, Liz, Young, Jeanine, Smith, Anthony C. and Haydon, Helen M. (2023). Factors that may threaten or protect the wellbeing of staff working in paediatric intensive care environments. Intensive and Critical Care Nursing, 78 103476, 1-6. doi: 10.1016/j.iccn.2023.103476
2023
Journal Article
Consumers' experiences, preferences, and perceptions of effectiveness in using telehealth for cancer care in Australia
Banbury, Annie, Taylor, Monica, Caffery, Liam, Der Vartanian, Carolyn, Haydon, Helen, Mendis, Roshni, Ng, Kawai and Smith, Anthony (2023). Consumers' experiences, preferences, and perceptions of effectiveness in using telehealth for cancer care in Australia. Asia - Pacific Journal of Clinical Oncology, 19 (6), 752-761. doi: 10.1111/ajco.14002
2023
Conference Publication
Digital divide or digital exclusion: Do allied health professionals’ assumptions drive use of telehealth?
Cook, R., Haydon, H. M., Thomas, E. E., Ward, E. C., Ross, J.-A. and Caffery, L. J. (2023). Digital divide or digital exclusion: Do allied health professionals’ assumptions drive use of telehealth?. THRIVE Allied Health Symposium, TRI – Translational Research Institute, Brisbane, QLD Australia, 2 August 2023.
2023
Journal Article
Telehealth adoption in cancer clinical trials: an Australian perspective
Thomas, Emma E., Kelly, Jaimon T., Taylor, Monica L., Mendis, Roshni, Banbury, Annie, Haydon, Helen, Catto, Janessa, Der Vartanian, Carolyn, Smith, Anthony C. and Caffery, Liam J. (2023). Telehealth adoption in cancer clinical trials: an Australian perspective. Asia - Pacific Journal of Clinical Oncology, 19 (4), 549-558. doi: 10.1111/ajco.13899
2023
Journal Article
How do consumers prefer their care delivered: In-person, telephone or videoconference?
Snoswell, Centaine L., Haydon, Helen M., Kelly, Jaimon T., Thomas, Emma E., Caffery, Liam J. and Smith, Anthony C. (2023). How do consumers prefer their care delivered: In-person, telephone or videoconference?. Journal of Telemedicine and Telecare, 30 (10), 1357633X231160333-1562. doi: 10.1177/1357633x231160333
2023
Journal Article
Challenges and opportunities in providing dementia care for Aboriginal and Torres Strait Islander peoples living in rural and remote areas
Haydon, Helen M., Smith, Anthony C., Gleed, Lauren, Neuhaus, Maike, Lawton, Sheryl and Caffery, Liam J. (2023). Challenges and opportunities in providing dementia care for Aboriginal and Torres Strait Islander peoples living in rural and remote areas. Dementia, 22 (1), 197-217. doi: 10.1177/14713012221138825
2022
Conference Publication
Telehealth utilisation in a diverse region in Queensland, Australia: A cross-sectional study
Gallegos-Rejas, Victor M., Kelly, Jaimon T., Lucas, Karen, Snoswell, Centaine L., Haydon, Helen M., Pager, Sue, Smith, Anthony C. and Thomas, Emma (2022). Telehealth utilisation in a diverse region in Queensland, Australia: A cross-sectional study. Successes and Failures in Telehealth Conference 2022, Brisbane, QLD Australia, 9-11 November 2022.
Funding
Current funding
Supervision
Availability
- Dr Helen Haydon is:
- Available for supervision
Before you email them, read our advice on how to contact a supervisor.
Available projects
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The Role of Telehealth in Voluntary Assisted Dying or any Assisted Dying topic
Using strict eligibility criteria, Voluntary Assisted Dying (VAD) laws are now passed in all Australian states. VAD permits an eligible person with a terminal illness to end their life through either self-administration or practitioner-administration of a VAD medication. VAD enables “people who are suffering and dying to choose the manner and timing of their death”. Although choice is a central tenet of VAD, people living in rural and remote locations lack choice if local health services are not providers.
Telehealth effectively increases access to healthcare for such underserved populations. However, under federal legislation it may be a criminal offence for clinicians to discuss VAD via telehealth. Clinicians are uncertain about how to support people in rural and remote communities. Overseas, when appropriate, telehealth supports people to access VAD. This research investigates the impact of using (or not using) telehealth as a means of accessing VAD services on clinicians and consumers.
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Open to supervising in all things digital/virtual health, especially palliative care (including grief), aged care and psycho-oncology
Supervision history
Current supervision
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Doctor Philosophy
The feasibility of the decentralised clinical trial model in Australia
Principal Advisor
Other advisors: Associate Professor Nicole Hartley, Associate Professor Chelsea Dobbins
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Master Philosophy
Building grief literacy in residential aged care facilities in rural Far North Queensland as part of a virtual care model.
Principal Advisor
Other advisors: Dr Centaine Snoswell
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Doctor Philosophy
AI companions: opportunities and risks for the wellbeing of Australian adolescent girls
Associate Advisor
Other advisors: Professor Liam Caffery, Dr Centaine Snoswell
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Doctor Philosophy
Integrating telehealth into allied health services
Associate Advisor
Other advisors: Professor Elizabeth Ward, Professor Liam Caffery, Dr Emma Thomas
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Master Philosophy
Optimising cancer pharmacy care for patients with serious mental illness
Associate Advisor
Other advisors: Dr Centaine Snoswell
Completed supervision
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2022
Doctor Philosophy
Understanding the Risk and Protective Factors for Burnout and Wellbeing of Staff Working in the Paediatric Intensive Care Unit: PICU Staff Wellbeing
Principal Advisor
Other advisors: Professor Anthony Smith
Media
Enquiries
Contact Dr Helen Haydon directly for media enquiries about:
- telehealth
- telehealth palliative
- telepalliative
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