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Dr Catherine Franklin
Dr

Catherine Franklin

Email: 
Phone: 
+61 7 3163 1625

Overview

Background

Dr Cathy Franklin is Director of the Queensland Centre of Excellence in Intellectual Disability and Autism Health. As a psychiatrist and researcher, she has spent two decades improving health and mental health outcomes for people with intellectual disability and those on the autism spectrum through clinical care, service innovation, education and applied research.

Cathy is recognised as an Australian expert in her field, serving on the RANZCP Committee for the Section of Psychiatry of Intellectual and Developmental Disability, and the Executive Committee of the Australian Association of Developmental Disability Medicine.

As an ardent advocate, Dr Franklin’s submission to the Queensland Parliament Mental Health Select Committee in 2022 helped raise the profile of this area of need. The Committee subsequently made a recommendation that was accepted, leading to a Queensland Government $51.5M investment over four years to establish a Centre of Excellence and 12 intellectual and developmental disability mental health teams statewide.

Cathy's research centres on improving health outcomes for people with intellectual disability and those on the autism spectrum. She has expertise in Down syndrome and is an international expert in Down syndrome regression disorder.

Cathy has successfully led successful applications to secure over $11M in competitive research and project funding in the last seven years. She also led her centre's partnership in the University of New South Wales consortium that secured $23.9M (2022-2026) to establish the National Centre of Excellence in Intellectual Disability Health.

Key projects Dr Franklin has led include the co-designed EASY Health project ($3.2M 2020-2026), which introduced Australia's first online education for mainstream clinicians featuring actors with disabilities. Now available across Queensland Health and mandated in national Medicare Urgent Care Clinics, this education is transforming clinician perspectives and improving equitable access to healthcare.

Cathy is also Chief Investigator on the Bridge to Better Health project, a $1.4M NHMRC-funded initiative building primary care nurses' capacity to deliver healthcare and improve outcomes for people with intellectual disability.

Cathy helped establish the Down Syndrome Medical Interest Group-Australia and co-chairs the Regression and Mental Health workgroup of the Down Syndrome Medical Interest Group-USA. She leads her centre's contribution to the international Down syndrome consortium led by Massachusetts General Hospital.

In 2020 she was awarded the Mater Research Sister Regis Dunne award for Outstanding Contribution to research relative to opportunity and in 2025, the Women in Technology "Lifting Communities" award.

Availability

Dr Catherine Franklin is:
Available for supervision
Media expert

Qualifications

  • Bachelor of Medicine and Surgery and Medical Science, The University of Queensland
  • Masters (Research), The University of Queensland
  • Senior Member, Australian Association of Developmental Disability Medicine, Australian Association of Developmental Disability Medicine
  • Member, Down Syndrome Medical Interest Group-USA, Down Syndrome Medical Interest Group-USA
  • Fellow, Royal Australian and New Zealand College of Psychiatrists, Royal Australian and New Zealand College of Psychiatrists
  • Member, Society for the Study of Behavioural Phenotypes, Society for the Study of Behavioural Phenotypes

Research impacts

Cathy, along with colleague Dr Katie Brooker, made a submission and gave evidence at the Queensland Parliament Mental Health Select Committee in 2022, outlining the evidence around the difficulties that people with intellectual disabitliy and those on the autism spectrum experience when accessing healthcare. The Committee made a number of recommendations, including that there should be a Queensland Centre of Excellence established in this area. The Queensland Government accepted this recommendation and is funding a new Queensland Centre of Excellence in Intellectual and Developmental Disability Mental Health.

Works

Search Professor Catherine Franklin’s works on UQ eSpace

82 works between 2011 and 2026

1 - 20 of 82 works

2026

Journal Article

Diagnostic complexities of autism and psychosis: A commentary on the ANZJP GRADE guidelines for the management of schizophrenia

Chalmers, Kirk, Laurie, Kirsty, Suetani, Shuichi, Franklin, Catherine, Scott, James G and Parker, Stephen (2026). Diagnostic complexities of autism and psychosis: A commentary on the ANZJP GRADE guidelines for the management of schizophrenia. Australian & New Zealand Journal of Psychiatry 00048674261461986. doi: 10.1177/00048674261461986

Diagnostic complexities of autism and psychosis: A commentary on the ANZJP GRADE guidelines for the management of schizophrenia

2026

Journal Article

Opinion: On the reasons for underutilization of ECT in individuals with intellectual and developmental disability

Johnston, Melanie, Brooker, Katie and Franklin, Catherine (2026). Opinion: On the reasons for underutilization of ECT in individuals with intellectual and developmental disability. Frontiers in Psychiatry, 17 1810364, 1-5. doi: 10.3389/fpsyt.2026.1810364

Opinion: On the reasons for underutilization of ECT in individuals with intellectual and developmental disability

2026

Journal Article

Immunosuppressive Therapies in Down Syndrome Regression Disorder: A Prospective Observational Cohort Study (N2.002)

Santoro, Jonathan, Kazerooni, Lilia, Lucas, Maeve, Yousuf, Mariam, Otey, Samuel, Nguyen, Lina, Anadani, Nidhiben, Manning, Melanie, Rachubinski, Angela, Kammeyer, Ryan, Spinazzi, Noemi, Franklin, Catherine, Quinn, Eileen, Espinosa, Joaquin and Rafii, Michael (2026). Immunosuppressive Therapies in Down Syndrome Regression Disorder: A Prospective Observational Cohort Study (N2.002). Neurology, 106 (11_Supplement_1) 681. doi: 10.1212/wnl.0000000000213058

Immunosuppressive Therapies in Down Syndrome Regression Disorder: A Prospective Observational Cohort Study (N2.002)

2026

Conference Publication

Panel discussion: bipolar disorder in intellectual and developmental disabilities

Porter, R., Torr, J., Franklin, C. and Khaira, A. (2026). Panel discussion: bipolar disorder in intellectual and developmental disabilities. RANZCP 2026 Congress, Melbourne, VIC Australia, 3-7 May 2026. London, United Kingdom: SAGE Publications.

Panel discussion: bipolar disorder in intellectual and developmental disabilities

2026

Conference Publication

Adapting psychiatric care for individuals with intellectual disability and those on the autism spectrum

Johnston, M., Brooker, K., Foley, K-R and Franklin, C. (2026). Adapting psychiatric care for individuals with intellectual disability and those on the autism spectrum. RANZCP 2026 Congress, Melbourne, VIC, Australia, 3 - 7 May 2026. London, United Kingdom: Sage Publications. doi: 10.1177/0004867426143478

Adapting psychiatric care for individuals with intellectual disability and those on the autism spectrum

2026

Conference Publication

Down syndrome regression disorder: an autoimmune disease?

Waugh, R., Johnston, M., Choi, Y. Kwon, Waldmann, J. Y., Franklin, C., Parker, S. and Hagn, M. (2026). Down syndrome regression disorder: an autoimmune disease?. RANZCP 2026 Congress, Melbourne, VIC, Australia, 3 - 7 May 2026. London, United Kingdom: SAGE Publications.

Down syndrome regression disorder: an autoimmune disease?

2026

Conference Publication

Asking the right questions: development of a guided interview tool for psychiatric assessment of individuals with intellectual disability

Johnston, M., Brooker, K., Simpson, N., Coops, N., Konz, R. and Franklin, C. (2026). Asking the right questions: development of a guided interview tool for psychiatric assessment of individuals with intellectual disability. RANZCP 2026 Congress, Melbourne, VIC Australia, 3-7 May 2026. London, United Kingdom: Sage Publications. doi: 10.1177/0004867426143478

Asking the right questions: development of a guided interview tool for psychiatric assessment of individuals with intellectual disability

2026

Conference Publication

‘Nothing about us, without us’: integrating lived experience of intellectual disability and autism to improve mental health care

Brooker, K., Culla, C., De Greef, R., Johnston, M., Beck, C. and Franklin, C. (2026). ‘Nothing about us, without us’: integrating lived experience of intellectual disability and autism to improve mental health care. RANZCP 2026 Congress, Melbourne, VIC Australia, 3 - 7 May 2026. London, United Kingdom: Sage Publications. doi: 10.1177/0004867426143478

‘Nothing about us, without us’: integrating lived experience of intellectual disability and autism to improve mental health care

2026

Conference Publication

Trauma-informed guidelines for intellectual disability health services

Foley, K-R, Porter, M., Giesberts, A., De Greef, R., Wyborn, J., Whittle, E., Brooker, K., Trollor, J., Johnston, M. and Franklin, C. (2026). Trauma-informed guidelines for intellectual disability health services. RANZCP 2026 Congress, Melbourne, VIC Australia, 3-7 May 2026. London, United Kingdom: SAGE Publications.

Trauma-informed guidelines for intellectual disability health services

2026

Journal Article

A comparative effectiveness study of lorazepam or IVIg versus no treatment for Down syndrome regression disorder

Santoro, Jonathan D., Jafarpour, Saba, Rezvan, Panteha Hayati, Khoshnood, Mellad M., Vogel, Benjamin N., Nguyen, Lina, Kazerooni, Lilia, Spinazzi, Noemi A., Anadani, Nidhiben, Fisher, Kristen S., Filipink, Robyn A., Manning, Melanie A., Franklin, Cathy, Quinn, Eileen A. and Rafii, Michael S. (2026). A comparative effectiveness study of lorazepam or IVIg versus no treatment for Down syndrome regression disorder. Neurology and Therapy, 15 (3), 1099-1120. doi: 10.1007/s40120-026-00906-2

A comparative effectiveness study of lorazepam or IVIg versus no treatment for Down syndrome regression disorder

2026

Journal Article

The detection of Down syndrome arthritis in clinical practice: a multicenter, international pilot and feasibility study of a Down syndrome‐specific musculoskeletal screening tool

Jones, Jordan T., Talib, Nasreen, Cramer, Emily, Valentini, Diletta, Baumer, Nicole, Sargado, Sabrina, Oreskovic, Nicolas M., Santoro, Stephanie L., Krell, Kavita, Santoro, Jonathan D., Vellody, Kishore, McCormick, Andrew, Franklin, Catherine, Kishnani, Priya, Hart, Sarah, Spiridigliozzi, Gail, Kitchen, Jacqueline and Skotko, Brian G. (2026). The detection of Down syndrome arthritis in clinical practice: a multicenter, international pilot and feasibility study of a Down syndrome‐specific musculoskeletal screening tool. American Journal of Medical Genetics Part A, 200 (3) e64290, 653-660. doi: 10.1002/ajmg.a.64290

The detection of Down syndrome arthritis in clinical practice: a multicenter, international pilot and feasibility study of a Down syndrome‐specific musculoskeletal screening tool

2026

Other Outputs

Interim Report: Evaluation of the Primary Care Enhancement Program (Phase 2)

Boyle, Fran, Lilly, Kieren J., Kocar, Sebastian, Yousef, Noor, Dean, Julie, Lohan, Aditi, Chatterton, Mary Lou, Lee, Yong Yi, Maturi, Jenny, Brooker, Katie, Franklin, Catherine and Marrington, Shelby (2026). Interim Report: Evaluation of the Primary Care Enhancement Program (Phase 2). Brisbane, QLD, Australia: Institute for Social Science Research.

Interim Report: Evaluation of the Primary Care Enhancement Program (Phase 2)

2026

Journal Article

Serum and cerebral folate are normal in Down Syndrome Regression Disorder

Santoro, Jonathan D., Silverman, Mackenzie, Kazerooni, Lilia, Otey, Samuel T., Lucas, Maeve C., Yousuf, Mariam M., Koshnood, Mellad M., Spinazzi, Noemi A., Quinn, Eileen A., Franklin, Catherine, Liu, Taryn R., Jeste, Shafali S. and Rafii, Michael S. (2026). Serum and cerebral folate are normal in Down Syndrome Regression Disorder. Molecular autism, 17 (1). doi: 10.1186/s13229-026-00703-6

Serum and cerebral folate are normal in Down Syndrome Regression Disorder

2026

Journal Article

Immunosuppression in down syndrome regression disorder: a prospective observational cohort study

Santoro, Jonathan D, Kazerooni, Lilia, Lucas, Maeve C, Yousuf, Mariam M, Otey, Samuel T, Bouchard, Samuel, Frost, Kevin C, Nguyen, Lina, Anadani, Nidhiben A, Mahmud, Asef, Manning, Melanie A, Rachubinski, Angela L, Kammeyer, Ryan M, Patel, Lina, Koster, Lindsey E A, van Eeghen, Agnies M, Spinazzi, Noemi A, Franklin, Catherine, Quinn, Eileen A, Espinosa, Joaquin M and Rafii, Michael S (2026). Immunosuppression in down syndrome regression disorder: a prospective observational cohort study. Brain Communications, 8 (3) fcag203, 3. doi: 10.1093/braincomms/fcag203

Immunosuppression in down syndrome regression disorder: a prospective observational cohort study

2025

Journal Article

Health professional education in autism and intellectual disability: systematic review

Franklin, Catherine, Green, Sinead, Brooker, Katie, de Greef, Ruby, Meurk, Carla and Heffernan, Edward (2025). Health professional education in autism and intellectual disability: systematic review. BJPsych Open, 11 (6) e238, 1-18. doi: 10.1192/bjo.2025.10842

Health professional education in autism and intellectual disability: systematic review

2025

Journal Article

Caregiver perceived barriers to diagnosis and care in Down syndrome regression disorder

Alag, Anya, Nishimori, Nicole A., Kazerooni, Lilia, Lucas, Maeve C., Huh, David J., Yousuf, Mariam M., Jafarpour, Saba, Franklin, Cathy, Quinn, Eileen A. and Santoro, Jonathan D. (2025). Caregiver perceived barriers to diagnosis and care in Down syndrome regression disorder. American Journal of Medical Genetics Part A, 200 (2) e64274, e64274-406. doi: 10.1002/ajmg.a.64274

Caregiver perceived barriers to diagnosis and care in Down syndrome regression disorder

2025

Conference Publication

Panel discussion: Places and spaces

Harpur, Paul, Faragher, Rhonda, Roger, Michelle, Ellam, Kathy, Franklin, Cathy, Povey, Jenny, Thorpe, Karen and Turpin, Merrill (2025). Panel discussion: Places and spaces. UQ’s Disability Research Workshop, Brisbane, QLD, Australia, 17 July 2025.

Panel discussion: Places and spaces

2025

Conference Publication

Experiences in accessing electroconvulsive therapy for individuals with intellectual and developmental disabilities: a case series

Johnston, M., Mcauliffe, J. and Franklin, C. (2025). Experiences in accessing electroconvulsive therapy for individuals with intellectual and developmental disabilities: a case series. RANZCP 2025 Congress, Gold Coast, QLD Australia, 4-8 May 2025. London, United Kingdom: Sage Publications.

Experiences in accessing electroconvulsive therapy for individuals with intellectual and developmental disabilities: a case series

2025

Conference Publication

Nuances of neurodevelopmental psychiatry in adolescents and young adults

Johnston, M., Choi, Y. K., McAullife, J. and Franklin, C. (2025). Nuances of neurodevelopmental psychiatry in adolescents and young adults. RANZCP 2025 Congress, Gold Coast, QLD Australia, 4-8 May 2025. London, United Kingdom: Sage Publications. doi: 10.1177/00048674251327789

Nuances of neurodevelopmental psychiatry in adolescents and young adults

2025

Conference Publication

The Queensland intellectual and developmental disability mental health network: expanding collaborative practice in Queensland

Franklin, C., Johnston, M., Brooker, K., Jenkins, K., Livingstone, A. and Shatananda, S. (2025). The Queensland intellectual and developmental disability mental health network: expanding collaborative practice in Queensland. RANZCP 2025 Congress, Gold Coast, QLD Australia, 4-8 May 2025. London, United Kingdom: Sage Publications. doi: 10.1177/00048674251327789

The Queensland intellectual and developmental disability mental health network: expanding collaborative practice in Queensland

Funding

Current funding

  • 2026 - 2030
    Enhancing Access to Healthcare for People with Intellectual Disabilities: A Multi-Tiered Sedation Model (Externally led MRFF IHOPID by Flinders University)
    Flinders University
    Open grant
  • 2024 - 2026
    Evaluation of the Primary Care Enhancement Program Phase 2
    Commonwealth Department of Health and Aged Care
    Open grant
  • 2023 - 2028
    Bridge to Better Health: A Cluster Randomised Controlled Trial for Capacity Building in Intellectual Disability Health for General Practice
    NHMRC Targeted Research
    Open grant
  • 2022 - 2027
    EASY Health: Enhancing Access to Services for Your Health
    Mater Misericordiae Ltd
    Open grant

Past funding

  • 2020 - 2022
    Development and evaluation of educational and self-management resources for people with intellectual and developmental disability living with diabetes and their support people: Diabetes to the Point
    Diabetes Australia Research Program
    Open grant
  • 2019 - 2020
    The RAPID (Reducing Antipsychotics in People with Intellectual Disability) study
    Endeavour Foundation
    Open grant
  • 2014 - 2021
    Project 3.015C Health and Wellbeing for Adults (Autism CRC)
    CRC for Living with Autism Spectrum Disorders (Autism CRC Limited)
    Open grant
  • 2013 - 2021
    Project 3.012RCb Program 3 Base Resourcing
    CRC for Living with Autism Spectrum Disorders (Autism CRC Limited)
    Open grant

Supervision

Availability

Dr Catherine Franklin is:
Available for supervision

Looking for a supervisor? Read our advice on how to choose a supervisor.

Media

Enquiries

Contact Dr Catherine Franklin directly for media enquiries about:

  • autism mental health
  • autistic adults
  • chemical restraint in intellectual disability
  • disability royal commission
  • intellectual disability mental health

Need help?

For help with finding experts, story ideas and media enquiries, contact our Media team:

communications@uq.edu.au