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2021

Journal Article

Core outcome measures for trials in people with coronavirus disease 2019: Respiratory failure, multiorgan failure, shortness of breath, and recovery

Tong, Allison, Baumgart, Amanda, Evangelidis, Nicole, Viecelli, Andrea K., Carter, Simon A., Azevedo, Luciano Cesar, Cooper, Tess, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Elliott, Julian H., Hannan, Elyssa, Horby, Peter, Howell, Martin, Ju, Angela, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Manera, Karine E., Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Needham, Dale M. ... Craig, Jonathan C. (2021). Core outcome measures for trials in people with coronavirus disease 2019: Respiratory failure, multiorgan failure, shortness of breath, and recovery. Critical Care Medicine, 49 (3), 503-516. doi: 10.1097/CCM.0000000000004817

Core outcome measures for trials in people with coronavirus disease 2019: Respiratory failure, multiorgan failure, shortness of breath, and recovery

2021

Journal Article

Socio-economic disparity, access to care and patient-relevant outcomes after kidney allograft failure

Wong, Yun Hui Sheryl, Wong, Germaine, Johnson, David W., McDonald, Stephen, Clayton, Philip, Boudville, Neil, Viecelli, Andrea K., Lok, Charmaine, Pilmore, Helen, Hawley, Carmel, Roberts, Matthew A., Walker, Rachael, Ooi, Esther, Polkinghorne, Kevan R. and Lim, Wai H. (2021). Socio-economic disparity, access to care and patient-relevant outcomes after kidney allograft failure. Transplant International, 34 (11), 2329-2340. doi: 10.1111/tri.14002

Socio-economic disparity, access to care and patient-relevant outcomes after kidney allograft failure

2021

Journal Article

Perspectives on blood pressure by patients on haemo- and peritoneal dialysis

Evangelidis, Nicole, Sautenet, Benedicte, Manera, Karine E., Howell, Martin, Craig, Jonathan C., Viecelli, Andrea K., O'Lone, Emma, Scholes-Robertson, Nicole, Johnson, David W., Cho, Yeoungjee, Tomson, Charles, Wheeler, David C. and Tong, Allison (2021). Perspectives on blood pressure by patients on haemo- and peritoneal dialysis. Nephrology, 26 (1) nep.13775, 62-69. doi: 10.1111/nep.13775

Perspectives on blood pressure by patients on haemo- and peritoneal dialysis

2021

Journal Article

Perspectives on ability to work from patients’ receiving dialysis and caregivers: analysis of data from the global SONG initiative

Rajkumar, Ramya, Baumgart, Amanda, Martin, Adam, Tong, Allison, Evangelidis, Nicole, Manera, Karine E., Cho, Yeoungjee, Johnson, David W., Viecelli, Andrea, Shen, Jenny, Guha, Chandana, Scholes-Robertson, Nicole, Howell, Martin and Craig, Jonathan C. (2021). Perspectives on ability to work from patients’ receiving dialysis and caregivers: analysis of data from the global SONG initiative. Journal of Nephrology, 35 (1), 255-266. doi: 10.1007/s40620-021-01105-y

Perspectives on ability to work from patients’ receiving dialysis and caregivers: analysis of data from the global SONG initiative

2020

Journal Article

Peritoneal dialysis versus haemodialysis for people commencing dialysis

Pei, Juan, Ethier, Isabelle, Hudson, Rebecca E, Hawley, Carmel M, Johnson, David W, Campbell, Scott B, Francis, Ross S, Wong, Germaine, Craig, Jonathan C, Viecelli, Andrea K and Cho, Yeoungjee (2020). Peritoneal dialysis versus haemodialysis for people commencing dialysis. Cochrane Database of Systematic Reviews, 2020 (11) CD013800. doi: 10.1002/14651858.CD013800

Peritoneal dialysis versus haemodialysis for people commencing dialysis

2020

Journal Article

Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED study

See, Yong Pey, Cho, Yeoungjee, Pascoe, Elaine M., Cass, Alan, Irish, Ashley, Voss, David, Polkinghorne, Kevan R., Hooi, Lai Seong, Ong, Loke-Meng, Paul-Brent, Peta-Anne, Kerr, Peter G., Mori, Trevor A., Hawley, Carmel M., Johnson, David W. and Viecelli, Andrea K. (2020). Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED study. Kidney360, 1 (11), 1259-1269. doi: 10.34067/kid.0002732020

Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED study

2020

Journal Article

Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia

Duncanson, Emily, Bennett, Paul N., Viecelli, Andrea, Dansie, Kathryn, Handke, William, Tong, Allison, Palmer, Suetonia, Jesudason, Shilpanjali, McDonald, Stephen P. and Morton, Rachael L. (2020). Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia. BMJ Open, 10 (11) e039014, e039014. doi: 10.1136/bmjopen-2020-039014

Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia

2020

Journal Article

Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study

Ethier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Viecelli, Andrea K., Campbell, Scott B., van Eps, Carolyn, Isbel, Nicole M., Cooper, Bruce A., Harris, David C., Pollock, Carol A., Wong, Muh Geot and Johnson, David W. (2020). Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study. PLoS ONE, 15 (11 November) e0242254, 1-14. doi: 10.1371/journal.pone.0242254

Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study

2020

Journal Article

Core outcomes set for trials in people with coronavirus disease 2019

Tong, Allison, Elliott, Julian H., Azevedo, Luciano Cesar, Baumgart, Amanda, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Cho, Yeoungjee, Cooper, Tess, Crowe, Sally, Douglas, Ivor S., Evangelidis, Nicole, Flemyng, Ella, Hannan, Elyssa, Horby, Peter, Howell, Martin, Lee, Jaehee, Liu, Emma, Lorca, Eduardo, Lynch, Deena, Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Manera, Karine E., McLeod, Charlie, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad ... Craig, Jonathan C. (2020). Core outcomes set for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1622-1635. doi: 10.1097/CCM.0000000000004585

Core outcomes set for trials in people with coronavirus disease 2019

2020

Journal Article

Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers

Baumgart, Amanda, Manera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Ruiz, Lorena, Wang, Angela Yee-Moon, Yip, Terence, Fung, Samuel K.S., Tong, Matthew, Lee, Achilles, Cho, Yeoungjee, Viecelli, Andrea K., Sautenet, Benedicte, Teixeira-Pinto, Armando, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Scholes-Robertson, Nicole, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin and Tong, Allison (2020). Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrology Dialysis Transplantation, 35 (11), 1949-1958. doi: 10.1093/ndt/gfaa127

Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers

2020

Journal Article

Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis

Ethier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Roberts, Matthew A., Semple, David, Nadeau-Fredette, Annie-Claire, Sypek, Matthew P., Viecelli, Andrea, Campbell, Scott, van Eps, Carolyn, Isbel, Nicole M. and Johnson, David W. (2020). Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis. Nephrology Dialysis Transplantation, 35 (11), 1938-1949. doi: 10.1093/ndt/gfaa002

Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis

2020

Journal Article

International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019

Evangelidis, Nicole, Tong, Allison, Howell, Martin, Teixeira-Pinto, Armando, Elliott, Julian H., Azevedo, Luciano Cesar, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Horby, Peter, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Marshall, John C., McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad, Povoa, Pedro, Reid, Mark, Sakr, Yasser, Shen, Ning, Smyth, Alan R., Snelling, Tom, Strippoli, Giovanni F. M. ... Craig, Jonathan C. (2020). International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1612-1621. doi: 10.1097/CCM.0000000000004584

International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019

2020

Journal Article

Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrument

Ju, Angela, Teixeira-Pinto, Armando, Tong, Allison, Smith, Alice C., Unruh, Mark, Davison, Sara N., Dapueto, Juan, Dew, Mary Amanda, Fluck, Richard, Germain, Michael J., Jassal, Sarbjit V., Obrador, Gregorio T., O’donoghue, Donal, Viecelli, Andrea K., Strippoli, Giovanni, Ruospo, Marinella, Timofte, Delia, Sharma, Ankit, Au, Eric, Howell, Martin, Costa, Daniel S. J., Anumudu, Samaya, Craig, Jonathan C. and Rutherford, Claudia (2020). Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrument. Clinical Journal of the American Society of Nephrology, 15 (11), 1614-1621. doi: 10.2215/CJN.05880420

Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrument

2020

Conference Publication

THE GOAL TRIAL PROTOCOL: Comprehensive Geriatric Assessment for Frail Older People With Chronic Kidney Disease to increase attainment of patient-identified goals - A cluster randomised controlled trial

Logan, B., Viecelli, A. K., Johnson, D. W., Tong, A., Comans, T., Janda, M., Pond, C., Pascoe, E., Peel, N. M., Gray, L., Pole, J., Polkinghorne, K., Jose, M., Gordon, E. H., Scholes-Robertson, N., Bailey, J., Robison, L., Hawley, C., Varghese, J., Kiriwandeniya, C., Reidlinger, D. and Hubbard, R. E. (2020). THE GOAL TRIAL PROTOCOL: Comprehensive Geriatric Assessment for Frail Older People With Chronic Kidney Disease to increase attainment of patient-identified goals - A cluster randomised controlled trial. 55th Annual Scientific Meeting of the Australian and New Zealand Society of Nephrology (ANZSN), Online, 28 November‐2 December 2020. Richmond, VIC Australia: Wiley-Blackwell.

THE GOAL TRIAL PROTOCOL: Comprehensive Geriatric Assessment for Frail Older People With Chronic Kidney Disease to increase attainment of patient-identified goals - A cluster randomised controlled trial

2020

Journal Article

Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand

Ethier, Isabelle, Cho, Yeoungjee, Davies, Christopher E., Hawley, Carmel M., Campbell, Scott B., Isbel, Nicole M., Pascoe, Elaine M., Polkinghorne, Kevan R., Roberts, Matthew, See, Emily J., Semple, David, van Eps, Carolyn, Viecelli, Andrea K. and Johnson, David W. (2020). Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand. Nephrology, 26 (2) e13782, e13782-163. doi: 10.1111/nep.13782

Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand

2020

Journal Article

A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

Logeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri and Tong, Allison (2020). A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study. BMJ Open, 10 (10) e038005, e038005. doi: 10.1136/bmjopen-2020-038005

A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

2020

Conference Publication

Scope and Consistency of Physical Fitness Outcome Measures in CKD: A Systematic Review

Jegatheesan, Dev K., Modderman, Richard S., Krishnasamy, Rathika, Tong, Allison, Coombes, Jeff S., Viecelli, Andrea K., Johnson, David W. and Isbel, Nicole (2020). Scope and Consistency of Physical Fitness Outcome Measures in CKD: A Systematic Review. Kidney Week, Online, 19-25 October 2020. Washington, DC United States: American Society of Nephrology. doi: 10.1681/asn.20203110s1845b

Scope and Consistency of Physical Fitness Outcome Measures in CKD: A Systematic Review

2020

Conference Publication

Variability and Trends over Time and Across Centers in Hemodialysis Weekly Duration in Australia and New Zealand

Ethier, Isabelle, Cho, Yeoung Jee, Davies, Christopher E., Hawley, Carmel, Campbell, Scott B., Isbel, Nicole, Pascoe, Elaine, Polkinghorne, Kevan, Roberts, Matthew A., See, Emily J., Semple, David, Van Eps, Carolyn L., Viecelli, Andrea K. and Johnson, David W. (2020). Variability and Trends over Time and Across Centers in Hemodialysis Weekly Duration in Australia and New Zealand. Kidney Week, Online, 19-25 October 2020. Washington, DC United States: American Society of Nephrology. doi: 10.1681/asn.20203110s1383a

Variability and Trends over Time and Across Centers in Hemodialysis Weekly Duration in Australia and New Zealand

2020

Conference Publication

Rate of Decline in Residual Kidney Function Before and After Peritoneal Dialysis Initiation: A Post Hoc Analysis of the IDEAL Study

Ethier, Isabelle, Cho, Yeoung Jee, Hawley, Carmel, Pascoe, Elaine, Viecelli, Andrea K., Campbell, Scott B., Van Eps, Carolyn L., Isbel, Nicole, Cooper, Bruce A., Harris, David, Pollock, Carol A., Wong, Muh Geot and Johnson, David W. (2020). Rate of Decline in Residual Kidney Function Before and After Peritoneal Dialysis Initiation: A Post Hoc Analysis of the IDEAL Study. Kidney Week, Online, 19-25 October 2020. Washington, DC United States: American Society of Nephrology. doi: 10.1681/asn.20203110s150b

Rate of Decline in Residual Kidney Function Before and After Peritoneal Dialysis Initiation: A Post Hoc Analysis of the IDEAL Study

2020

Journal Article

Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals

O’Lone, Emma, Howell, Martin, Viecelli, Andrea K., Craig, Jonathan C., Tong, Allison, Sautenet, Benedicte, Herrington, William G., Herzog, Charles A., Jafar, Tazeen H., Jardine, Meg, Krane, Vera, Levin, Adeera, Malyszko, Jolanta, Rocco, Michael V., Strippoli, Giovanni, Tonelli, Marcello, Wang, Angela Yee-Moon, Wanner, Christoph, Zannad, Faiez, Winkelmayer, Wolfgang C. and Wheeler, David C. (2020). Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals. Nephrology Dialysis Transplantation, 35 (10), 1761-1769. doi: 10.1093/ndt/gfaa008

Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals