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2024 Journal Article Population‐level 5‐year event‐free survival for children with cancer in AustraliaYoulden, Danny R., Baade, Peter D., Gottardo, Nicolas G., Moore, Andrew S., Valery, Patricia C. and Pole, Jason D. (2024). Population‐level 5‐year event‐free survival for children with cancer in Australia. Pediatric Blood and Cancer, 71 (10) e31195, 1-11. doi: 10.1002/pbc.31195 |
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2024 Journal Article What is measured matters: A scoping review of analysis methods used for qualitative patient reported experience measure dataEngstrom, Teyl, Shteiman, Max, Kelly, Kim, Sullivan, Clair and Pole, Jason D. (2024). What is measured matters: A scoping review of analysis methods used for qualitative patient reported experience measure data. International Journal of Medical Informatics, 190 105559, 1-9. doi: 10.1016/j.ijmedinf.2024.105559 |
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2024 Conference Publication Data linkage of routinely collected qualitative health data: Using qualitative patient reported experience measures to understand the impact of digital hospitals on patientsEngstrom, Teyl, Sullivan, Clair, Thompson, Shirley, Daly, Jacqueline and Pole, Jason D. (2024). Data linkage of routinely collected qualitative health data: Using qualitative patient reported experience measures to understand the impact of digital hospitals on patients. International Population Data Linkage Conference 2024, Chicago, IL United States, 15 -18 September 2024. Swansea, Wales United Kingdom: Swansea University. doi: 10.23889/ijpds.v9i5.2509 |
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2024 Journal Article From many voices, one question: community co-design of a population-based qualitative cancer research studyAyre, Susannah K., Johnston, Elizabeth A., Bourdaniotis, Xanthia E., Zajdlewicz, Leah, Beesley, Vanessa L., Pole, Jason D., Hansen, Aaron, Gasper, Harry, Cossio, Danica, Lock, Gemma and Goodwin, Belinda C. (2024). From many voices, one question: community co-design of a population-based qualitative cancer research study. PLoS One, 19 (8) e0309361, 1-22. doi: 10.1371/journal.pone.0309361 |
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2024 Journal Article Examining emotional and behavioural trajectories in siblings of children with life-limiting conditionsTay, Joanne, Widger, Kimberley, Steele, Rose, Stremler, Robyn and Pole, Jason D. (2024). Examining emotional and behavioural trajectories in siblings of children with life-limiting conditions. BMC Palliative Care, 23 (1) 205, 205. doi: 10.1186/s12904-024-01535-y |
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2024 Journal Article Implementing AI in Hospitals to Achieve a Learning Health System: Systematic Review of Current Enablers and BarriersKamel Rahimi, Amir, Pienaar, Oliver, Ghadimi, Moji, Canfell, Oliver J., Pole, Jason D., Shrapnel, Sally, van der Vegt, Anton H. and Sullivan, Clair (2024). Implementing AI in Hospitals to Achieve a Learning Health System: Systematic Review of Current Enablers and Barriers. Journal of Medical Internet Research, 26 e49655, 1-29. doi: 10.2196/49655 |
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2024 Journal Article Preterm birth, family income, and intergenerational income mobilityAhmed, Asma M., Pullenayegum, Eleanor, McDonald, Sarah D., Beltempo, Marc, Premji, Shahirose S., Shoukry, Roaa, Pole, Jason D., Bacchini, Fabiana, Shah, Prakesh S. and Pechlivanoglou, Petros (2024). Preterm birth, family income, and intergenerational income mobility. JAMA Network Open, 7 (6) e2415921, e2415921-6. doi: 10.1001/jamanetworkopen.2024.15921 |
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2024 Conference Publication Testicular germ cell tumor survival among children, adolescents, and young adults: a population-based retrospective cohort studyAjaj, Rand, Lau, Cindy, Gupta, Sumit, Baxter, Nancy N., Sutradhar, Rinku, Pole, Jason D., Malkiel, Sarah, Shaikh, Furqan and Nathan, Paul C. (2024). Testicular germ cell tumor survival among children, adolescents, and young adults: a population-based retrospective cohort study. 2024 ASCO Annual Meeting, Chicago, IL United States, 31 May - 4 June 2023. Alexandria, VA United States: American Society of Clinical Oncology. doi: 10.1200/jco.2024.42.16_suppl.10035 |
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2024 Journal Article Psychiatric disorders in childhood cancer survivors: A retrospective matched cohort study of inpatient hospitalisations and community-based mental health services utilisation in Western AustraliaAbdalla, Tasnim, Preen, David B., Pole, Jason D., Walwyn, Thomas, Bulsara, Max, Ives, Angela, Choong, Catherine S. and Ohan, Jeneva L (2024). Psychiatric disorders in childhood cancer survivors: A retrospective matched cohort study of inpatient hospitalisations and community-based mental health services utilisation in Western Australia. Australian and New Zealand Journal of Psychiatry, 58 (6), 515-527. doi: 10.1177/00048674241233871 |
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2024 Journal Article Implementation remains the biggest challenge to the effective use of PROMs and PREMs, so what can we do about it?Bull, Claudia and Pole, Jason D (2024). Implementation remains the biggest challenge to the effective use of PROMs and PREMs, so what can we do about it?. International Journal for Quality in Health Care, 36 (2) mzae029. doi: 10.1093/intqhc/mzae029 |
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2024 Journal Article Patient Reported Fatigue Among Adolescent and Young Adult Cancer Patients Compared to Non-Cancer Patients: A Systematic Review and Meta-AnalysisForbes, Cheryl, Tanner, Sarah, Engstrom, Teyl, Lee, Wen Ray, Patel, Dhaval, Walker, Rick, Bradford, Natalie and Pole, Jason D. (2024). Patient Reported Fatigue Among Adolescent and Young Adult Cancer Patients Compared to Non-Cancer Patients: A Systematic Review and Meta-Analysis. Journal of Adolescent and Young Adult Oncology, 13 (2), 242-250. doi: 10.1089/jayao.2023.0094 |
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2024 Journal Article Second malignant neoplasms within 5 years from first primary diagnosis in pediatric oncology patients in Canada: a population-based retrospective cohort studyRicci, Christina, Subburaj, Divya, Lim, Kate, Shukla, Neetu, Kaur, Jaskiran, Xie, Lin, Laverty, Meghan, Zakaria, Dianne, Pole, Jason, Pelland-Marcotte, Marie-Claude, Barber, Randy, Israels, Sara J., Tran, Thai-Hoa, Oberoi, Sapna, Renzi, Samuele, MacDonald, Tamara, Sung, Lillian and Kulkarni, Ketan (2024). Second malignant neoplasms within 5 years from first primary diagnosis in pediatric oncology patients in Canada: a population-based retrospective cohort study. Frontiers in Oncology, 14 1376652, 1-14. doi: 10.3389/fonc.2024.1376652 |
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2024 Journal Article Physical function patient‐reported outcomes among adolescent and young adult cancer survivors: a systematic reviewTanner, Sarah, Engstrom, Teyl, Forbes, Cheryl, Patel, Dhaval, Lee, Wen Ray, Walker, Rick, Bradford, Natalie and Pole, Jason D. (2024). Physical function patient‐reported outcomes among adolescent and young adult cancer survivors: a systematic review. Cancer Medicine, 13 (6) e7046, e7046. doi: 10.1002/cam4.7046 |
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2024 Journal Article Development and validation of thromboembolism diagnostic algorithms in children with cancer from real-world dataAthale, Uma, Halton, Jacqueline, Gayowsky, Anastasia, Chan, Anthony K. C. and Pole, Jason D. (2024). Development and validation of thromboembolism diagnostic algorithms in children with cancer from real-world data. Pediatric Research, 96 (3), 695-701. doi: 10.1038/s41390-024-03082-x |
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2024 Journal Article Childhood cancer models of survivorship care: a scoping review of elements of care and reported outcomesBradford, Natalie, Chan, Raymond Javan, Skrabal Ross, Xiomara, Thamm, Carla, Sharwood, Erin, Pole, Jason, Cashion, Christine and Nekhlyudov, Larissa (2024). Childhood cancer models of survivorship care: a scoping review of elements of care and reported outcomes. Journal of Cancer Survivorship, 1-17. doi: 10.1007/s11764-024-01610-6 |
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2023 Journal Article Study protocol for The GOAL Trial: comprehensive geriatric assessment for frail older people with chronic kidney disease to increase attainment of patient-identified goals—a cluster randomised controlled trialLogan, B., Viecelli, A. K., Johnson, D. W., Aquino, E. M., Bailey, J., Comans, T. A., Gray, L. C., Hawley, C. M., Hickey, L. E., Janda, M., Jaure, A., Jose, M. D., Kalaw, E., Kiriwandeniya, C., Matsuyama, M., Mihala, G., Nguyen, K. H., Pascoe, E., Pole, J. D., Polkinghorne, K. R., Pond, D., Raj, R., Reidlinger, D. M., Scholes-Robertson, N., Varghese, J., Wong, G., Hubbard, R. E., Buckle, Graham, Carswell, Phil ... on behalf of The GOAL Trial Investigators (2023). Study protocol for The GOAL Trial: comprehensive geriatric assessment for frail older people with chronic kidney disease to increase attainment of patient-identified goals—a cluster randomised controlled trial. Trials, 24 (1) 365. doi: 10.1186/s13063-023-07363-4 |
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2023 Journal Article Machine learning clinical prediction models for acute kidney injury: the impact of baseline creatinine on prediction efficacyKamel Rahimi, Amir, Ghadimi, Moji, van der Vegt, Anton H., Canfell, Oliver J., Pole, Jason D., Sullivan, Clair and Shrapnel, Sally (2023). Machine learning clinical prediction models for acute kidney injury: the impact of baseline creatinine on prediction efficacy. BMC Medical Informatics and Decision Making, 23 (1) 207, 1-14. doi: 10.1186/s12911-023-02306-0 |
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2023 Journal Article Rates and predictors of visits to primary care physicians during and after treatment of childhood acute lymphoblastic leukemia: a population‐based cohort studyBreakey, Vicky R., Sutradhar, Rinku, Nathan, Paul C., Patel, Serina, Wheaton, Laura, Li, Qing, Bassal, Mylene, Gibson, Paul, Pole, Jason D., Athale, Uma and Gupta, Sumit (2023). Rates and predictors of visits to primary care physicians during and after treatment of childhood acute lymphoblastic leukemia: a population‐based cohort study. Pediatric Blood and Cancer, 70 (10) e30610, 1-10. doi: 10.1002/pbc.30610 |
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2023 Journal Article Medical imaging utilization and associated radiation exposure in children with down syndromeMarlow, Emily C., Ducore, Jonathan M., Kwan, Marilyn L., Bowles, Erin J. A., Greenlee, Robert T., Pole, Jason D., Rahm, Alanna K., Stout, Natasha K., Weinmann, Sheila, Smith-Bindman, Rebecca and Miglioretti, Diana L. (2023). Medical imaging utilization and associated radiation exposure in children with down syndrome. PLoS One, 18 (9) e0289957, 1-14. doi: 10.1371/journal.pone.0289957 |
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2023 Journal Article Cancer data quality and harmonization in Europe: the experience of the BENCHISTA Project – international benchmarking of childhood cancer survival by stageLopez-Cortes, Angela, Didonè, Fabio, Botta, Laura, Hjalgrim, Lisa L., Jakab, Zsuzsanna, Nieto, Adela Canete, Stiller, Charles, Zeller, Bernward, Gatta, Gemma, Pritchard-Jones, Kathy, Aitken, Joanne, O'Neill, Leisa, Hackl, Monika, Ladenstein, Ruth, Van Eycken, Elizabeth, Van Damme, Nancy, Frazier, Lindsay, De Camargo, Beatriz, Santos, Marceli de Oliveira, Valerianova, Zdravka, Konstantinov, Dobrin, Gupta, Sumit, Pole, Jason D., Sekerija, Mario, Stary, Jan, Sterba, Jaroslav, Hjalgrim, Lisa L., Winther, Jeanette F., Paapsi, Keiu ... and The BENCHISTA Project Working Group (2023). Cancer data quality and harmonization in Europe: the experience of the BENCHISTA Project – international benchmarking of childhood cancer survival by stage. Frontiers in Oncology, 13 1232451, 1-14. doi: 10.3389/fonc.2023.1232451 |
