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2026 Journal Article Review of the Pathology of Muscle in Amyotrophic Lateral SclerosisKatz, Matthew, Robertson, Thomas, Ngo, Shyuan T., Yarlagadda, Sai, Henderson, Robert D., McCombe, Pamela A. and Noakes, Peter G. (2026). Review of the Pathology of Muscle in Amyotrophic Lateral Sclerosis. International Journal of Molecular Sciences, 27 (6), 2802. doi: 10.3390/ijms27062802 |
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2026 Journal Article Blood Lactate as a Prognostic Biomarker for Survival and Weight Loss in Amyotrophic Lateral Sclerosis: An Exploratory–Validation StudyNakamura, Ryutaro, Steyn, Frederik J., Kobashi, Shuhei, Ogawa, Nobuhiro, Kitamura, Akihiro, Yamakawa, Isamu, Henderson, Robert D., Ngo, Shyuan T. and Urushitani, Makoto (2026). Blood Lactate as a Prognostic Biomarker for Survival and Weight Loss in Amyotrophic Lateral Sclerosis: An Exploratory–Validation Study. Annals of Neurology ana.78184. doi: 10.1002/ana.78184 |
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2026 Journal Article Assessment of language and executive functions in ALS: the brief executive Language screenRobinson, Gail A., Phillips, Mia R., Horne, Kristina, Ceslis, Amelia, McCombe, Pamela A. and Henderson, Robert D. (2026). Assessment of language and executive functions in ALS: the brief executive Language screen. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 1-11. doi: 10.1080/21678421.2025.2607398 |
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2026 Journal Article Lower-limb biomechanics in motor neuron disease: a joint-level perspective of gait disruptionHoldom, Cory J., Williamson, James L., O’Reilly, Georgia, Henderson, Robert D., Neville, Sally, Ngo, Shyuan T., Dick, Taylor J. M. and Steyn, Frederik J. (2026). Lower-limb biomechanics in motor neuron disease: a joint-level perspective of gait disruption. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 27 (1-2), 44-54. doi: 10.1080/21678421.2025.2523945 |
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2025 Journal Article Co-Design and Non-Randomised Pilot Evaluation of Resources Developed to Optimise Saliva Management in People with Motor Neurone DiseaseTaubert, Shana, Collins, Annette, Henderson, Robert, McCombe, Pamela, Tang, Lily, Kramer, Katrina, Wishart, Laurelie and Burns, Clare (2025). Co-Design and Non-Randomised Pilot Evaluation of Resources Developed to Optimise Saliva Management in People with Motor Neurone Disease. Healthcare, 13 (21) 2813, 2813. doi: 10.3390/healthcare13212813 |
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2025 Conference Publication Evaluating the impact of weight loss and accuracy of energy equations in Australians with amyotrophic lateral sclerosisSewell-Green, A., Capstick, R., Matthews-Rensch, K., Ngo, S., Henderson, R. and Steyn, F. (2025). Evaluating the impact of weight loss and accuracy of energy equations in Australians with amyotrophic lateral sclerosis. Clinical Nutrition ESPEN, 69, 1072. doi: 10.1016/j.clnesp.2025.07.788 |
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2025 Journal Article To treat or not to treat: a scoping review of speech treatment for dysarthria in amyotrophic lateral sclerosis (ALS)Whelan, Brooke-Mai, Aldridge, Danielle, Ruhle, Jessica, Whitelock, Persephone, Taubert, Shana, Collins, Annette, Kearney, Elaine, Charania, Salma, Henderson, Robert D., Wallace, Sarah J., Mitchell, Claire, Stipancic, Kaila L., Kuruvilla-Dugdale, Mili and Vogel, Adam P. (2025). To treat or not to treat: a scoping review of speech treatment for dysarthria in amyotrophic lateral sclerosis (ALS). Healthcare, 13 (19) 2434, 1-22. doi: 10.3390/healthcare13192434 |
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2025 Journal Article Segmentation of the human tongue musculature using MRI: Field guide and validation in motor neuron diseaseShaw, Thomas B., Ribeiro, Fernanda L., Zhu, Xiangyun, Aiken, Patrick, Bollmann, Saskia, Bollmann, Steffen, Chang, Jeryn, Chidley, Kali, Dempsey-Jones, Harriet, Eftekhari, Zeinab, Gillespie, Jennifer, Henderson, Robert D., Kiernan, Matthew C., Ktena, Ira, McCombe, Pamela A., Ngo, Shyuan T., Taubert, Shana T., Whelan, Brooke-Mai, Ye, Xincheng, Steyn, Frederik J., Tu, Sicong and Barth, Markus (2025). Segmentation of the human tongue musculature using MRI: Field guide and validation in motor neuron disease. Computers in Biology and Medicine, 196 (Part B) 110824, 1-13. doi: 10.1016/j.compbiomed.2025.110824 |
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2025 Conference Publication Ulviprubart pharmacokinetics, pharmacodynamics (PK/PD), and safety: phase 1 study results in patients with inclusion body myositis (IBM)Needham, M., Henderson, R., Liang, C., Soler-Ferran, D., Wilkins, J. and Greenberg, S. (2025). Ulviprubart pharmacokinetics, pharmacodynamics (PK/PD), and safety: phase 1 study results in patients with inclusion body myositis (IBM). 30th World Muscle Society Congress, Vienna, Austria, 7-11 October 2025. London, United Kingdom: Elsevier. doi: 10.1016/j.nmd.2025.105477 |
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2025 Conference Publication Risk factors for dose-limiting, chronic and severe chemotherapy-induced peripheral neuropathyLi, Tiffany, Timmins, Hannah C., Horvath, Lisa G., Harrison, Michelle, Grimison, Peter, Friedlander, Michael, Marx, Gavin, Boyle, Frances, Wyld, David, Henderson, Robert, King, Tracy, Baron-Hay, Sally, Kiernan, Matthew C., Barnes, Elizabeth H., Goldstein, David and Park, Susanna B. (2025). Risk factors for dose-limiting, chronic and severe chemotherapy-induced peripheral neuropathy. Australian and New Zealand Association of Neurologists Clinical Neurophysiology Workshop, Gold Coast, QLD, Australia, 6-9 October 2024. Shannon, Ireland: Elsevier. doi: 10.1016/j.clinph.2025.2110921 |
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2025 Journal Article Identification of passive wrist-worn accelerometry outcomes for improved disease monitoring and trial design in motor neuron diseaseHoldom, Cory J., Pilkar, Rakesh, Guo, Christine C., Eijk, Ruben P.A van, Sethi, Nadia, Henderson, Robert D., Ngo, Shyuan T. and Steyn, Frederik J. (2025). Identification of passive wrist-worn accelerometry outcomes for improved disease monitoring and trial design in motor neuron disease. eBioMedicine, 117 105779, 1-14. doi: 10.1016/j.ebiom.2025.105779 |
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2025 Journal Article An annotated multi-site and multi-contrast magnetic resonance imaging dataset for the study of the human tongue musculatureRibeiro, Fernanda L., Zhu, Xiangyun, Ye, Xincheng, Tu, Sicong, Ngo, Shyuan T., Henderson, Robert D., Steyn, Frederik J., Kiernan, Matthew C., Barth, Markus, Bollmann, Steffen and Shaw, Thomas B. (2025). An annotated multi-site and multi-contrast magnetic resonance imaging dataset for the study of the human tongue musculature. Scientific Data, 12 (1) 790, 790. doi: 10.1038/s41597-025-05092-8 |
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2025 Journal Article Reldesemtiv in Amyotrophic Lateral Sclerosis: Results From the COURAGE-ALS Randomized Clinical TrialShefner, Jeremy M., Cudkowicz, Merit E., Genge, Angela, Hardiman, Orla, Al-Chalabi, Ammar, Andrews, Jinsy A., Chio, Adriano, Corcia, Philippe, Couratier, Philippe, de Carvalho, Mamede, Heiman-Patterson, Terry, Henderson, Robert D., Ingre, Caroline, Johnston, Wendy, Ludolph, Albert, Maragakis, Nicholas J., Miller, Timothy M., Mora, Jesus S., Petri, Susanne, Simmons, Zachary, van den Berg, Leonard H., Zinman, Lorne, Kupfer, Stuart, Malik, Fady I., Meng, Lisa, Simkins, Tyrell J., Wei, Jenny, Wolff, Andrew A., Rudnicki, Stacy A. and COURAGE ALS Study Grp, (2025). Reldesemtiv in Amyotrophic Lateral Sclerosis: Results From the COURAGE-ALS Randomized Clinical Trial. JAMA Neurology, 82 (5), 477-485. doi: 10.1001/jamaneurol.2025.0241 |
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2025 Journal Article An fMRI dataset for appetite neural correlates in people living with Motor Neuron DiseaseChang, Jeryn, Lv, JingLei, Guo, Christine C., Lucia, Diana, Bollmann, Saskia, Garner, Kelly, McCombe, Pamela A., Henderson, Robert D., Shaw, Thomas B., Steyn, Frederik J. and Ngo, Shyuan T. (2025). An fMRI dataset for appetite neural correlates in people living with Motor Neuron Disease. Scientific Data, 12 (1) 466, 1-8. doi: 10.1038/s41597-025-04828-w |
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2025 Journal Article Appetite loss in patients with motor neuron disease: impact on weight loss and neural correlates of visual food cuesChang, Jeryn, Shaw, Thomas B., McCombe, Pamela A., Henderson, Robert D., Lucia, Diana, Guo, Christine C., Lv, Jinglei, Garner, Kelly, Bollmann, Saskia, Ngo, Shyuan T. and Steyn, Frederik J. (2025). Appetite loss in patients with motor neuron disease: impact on weight loss and neural correlates of visual food cues. Brain Communications, 7 (2) fcaf111, 1-14. doi: 10.1093/braincomms/fcaf111 |
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2025 Journal Article Persistent high levels of perceived fatigue are not associated with hypermetabolism in patients with amyotrophic lateral sclerosisBuckett, Lauren E., Holdom, Cory J., Howe, Stephanie L., McCombe, Pamela A., Henderson, Robert D., Al-Chalabi, Ammar, Steyn, Frederik J. and Ngo, Shyuan T. (2025). Persistent high levels of perceived fatigue are not associated with hypermetabolism in patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26 (5-6), 485-494. doi: 10.1080/21678421.2025.2471429 |
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2025 Journal Article Optimism in inclusion body myositis: a double-blind randomised controlled phase III trial investigating the effect of sirolimus on disease progression in patients with IBM as measured by the IBM Functional Rating ScaleBadrising, Umesh A., Henderson, Robert, Reddel, Stephen, Corbett, Alastair, Liang, Christina, Reardon, Katrina, Ghaoui, Roula, Bulsara, Max, Brady, Stefen, Brusch, Anna, Chan, Doris, Coudert, Jerome D., Fairchild, Timothy, Jain, Gayatri, Kiernan, Matthew C., Leonard, Dag, Lloyd, Thomas, Schmidt, Jens, McDermot, Michael P., Sanders, Lauren, Lowe, Christine, van der Kooi, Anneke J., Weihl, Chris, Mohassel, Payam, Simpson, Marion, Carrol, Antonia, Cooper, Ian, Beer, Kelly, Hiscock, Krystyne ... Needham, Merrilee (2025). Optimism in inclusion body myositis: a double-blind randomised controlled phase III trial investigating the effect of sirolimus on disease progression in patients with IBM as measured by the IBM Functional Rating Scale. Clinical and Experimental Rheumatology, 43 (2), 316-325. doi: 10.55563/clinexprheumatol/zvffa0 |
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2025 Journal Article Routine blood biochemical biomarkers in amyotrophic lateral sclerosis: Systematic review and cohort analysisNona, Robert J., Henderson, Robert D. and McCombe, Pamela A. (2025). Routine blood biochemical biomarkers in amyotrophic lateral sclerosis: Systematic review and cohort analysis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26 (3-4), 1-19. doi: 10.1080/21678421.2024.2435976 |
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2024 Journal Article Evaluation of NUN-004, a novel engineered ephrin antagonist, in healthy volunteers and patients with amyotrophic lateral sclerosis: a phase I/Ib, open-label, escalating dose and extended access studyGerometta, Michael, Henderson, Robert D., Friend, Richard, Cooper, Leanne T., Zhao, Jing, Boyd, Andrew W. and Bartlett, Perry F. (2024). Evaluation of NUN-004, a novel engineered ephrin antagonist, in healthy volunteers and patients with amyotrophic lateral sclerosis: a phase I/Ib, open-label, escalating dose and extended access study. Clinical Drug Investigation, 45 (1) e24636, 17-28. doi: 10.1007/s40261-024-01410-x |
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2024 Journal Article Central neurodegeneration in Kennedy’s disease accompanies peripheral motor dysfunctionTu, Sicong, Li, Tiffany, Carroll, Antonia S., Mahoney, Colin J., Huynh, William, Park, Susanna B., Henderson, Robert, Vucic, Steve, Kiernan, Matthew C. and Lin, Cindy S-Y (2024). Central neurodegeneration in Kennedy’s disease accompanies peripheral motor dysfunction. Scientific Reports, 14 (1) 18331, 18331. doi: 10.1038/s41598-024-69393-5 |
