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2018 Journal Article Behavioural phenotypes: working towards translational research through research partnershipsAdams, D., Heussler, H. and Gray, K. M. (2018). Behavioural phenotypes: working towards translational research through research partnerships. Journal of Intellectual Disability Research, 62 (8), 661-663. doi: 10.1111/jir.12513 |
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2018 Conference Publication Hopes, fears and beliefs about clinical trials for children with Angelman syndrome, 22q11.2 deletion syndrome and other rare genetic disordersAdams, D., O'Reilly, E. and Heussler, H. (2018). Hopes, fears and beliefs about clinical trials for children with Angelman syndrome, 22q11.2 deletion syndrome and other rare genetic disorders. 21st SSBP International Research Symposium, Melbourne, VIC Australia, 28 - 30 August 2018. Chichester, West Sussex, United Kingdom: Wiley-Blackwell Publishing. doi: 10.1111/jir.12512 |
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2018 Journal Article Research protocol: the initiation, design and establishment of the Global Angelman Syndrome RegistryTones, M., Cross, M., Simons, C., Napier, K. R., Hunter, A., Bellgard, M. I. and Heussler, H. (2018). Research protocol: the initiation, design and establishment of the Global Angelman Syndrome Registry. Journal of Intellectual Disability Research, 62 (5), 431-443. doi: 10.1111/jir.12482 |
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2018 Journal Article Associations between sleep hygiene and sleep problems in adolescents with ADHD: A cross-sectional studyMartin, Christina A., Hiscock, Harriet, Rinehart, Nicole, Heussler, Helen S., Hyde, Christian, Fuller-Tyszkiewicz, Matthew, McGillivray, Jane, Austin, David W., Chalmers, Alexa and Sciberras, Emma (2018). Associations between sleep hygiene and sleep problems in adolescents with ADHD: A cross-sectional study. Journal of Attention Disorders, 24 (4), 545-554. doi: 10.1177/1087054718762513 |
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2018 Journal Article Health-related quality of life in 22q11.2 deletion syndrome: The child's perspectiveJoyce, Patrick, O'Rourke, Claudia, McDermott, Brett and Heussler, Helen (2018). Health-related quality of life in 22q11.2 deletion syndrome: The child's perspective. Journal of Paediatrics and Child Health, 54 (3), 311-315. doi: 10.1111/jpc.13746 |
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2018 Journal Article Barriers to engagement in early intervention services by children with permanent hearing lossMcLean, Tricia J., Ware, Robert S., Heussler, Helen S., Harris, Suzanne M. and Beswick, Rachael (2018). Barriers to engagement in early intervention services by children with permanent hearing loss. Deafness and Education International, 21 (1), 1-15. doi: 10.1080/14643154.2018.1528745 |
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2018 Conference Publication Melatonin for insomnia in stimulant-treated ADHD – the value of N-of-1 trialsNikles, J., Heussler, H., McGree, J., Senior, H., Melaku, M. and Mitchell, G. (2018). Melatonin for insomnia in stimulant-treated ADHD – the value of N-of-1 trials. UQCCR 10th Birthday, Brisbane, QLD Australia, 2018. |
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2018 Journal Article Associations between neuropsychological, neurobehavioral and emotional functioning and either narcolepsy or idiopathic hypersomnia in children and adolescentsLudwig, Beris, Smith, Simon and Heussler, Helen (2018). Associations between neuropsychological, neurobehavioral and emotional functioning and either narcolepsy or idiopathic hypersomnia in children and adolescents. Journal of Clinical Sleep Medicine, 14 (4), 661-674. doi: 10.5664/jcsm.7066 |
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2018 Conference Publication Protocol for cost effectiveness analysis and longitudinal study of melatonin therapy in children with ADHD and sleep problems: an N-of-1 trialEdelson, Jaclyn, Nikles, Jane, Byrnes, Josh, Heussler, Helen, Mitchell,Geoff and Melaku, Megdi (2018). Protocol for cost effectiveness analysis and longitudinal study of melatonin therapy in children with ADHD and sleep problems: an N-of-1 trial. Louisiana Chapter of the American College of Physicians meeting, Louisiana, United States, 2018. |
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2018 Conference Publication Melatonin for insomnia in stimulant-treated ADHD – the value of N-of-1 trialsNikles, J., Heussler, H. and McGree, J. (2018). Melatonin for insomnia in stimulant-treated ADHD – the value of N-of-1 trials. NHMRC Symposium on Research Translation, Sydney, NSW Australia, 2018. |
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2018 Journal Article Congenital Heart Disease Long-Term Improvement in Functional Health Program: A Partnership and Integrated Approach to Improving the Long-Term Functional Health of Children with Congenital Heart DiseaseEagleson, K., Campbell, M., Stocker, C., Webb, K., Heussler, H., McAlinden, B., Alphonso, N. and Justo, R. (2018). Congenital Heart Disease Long-Term Improvement in Functional Health Program: A Partnership and Integrated Approach to Improving the Long-Term Functional Health of Children with Congenital Heart Disease. Heart, Lung and Circulation, 27, S394. doi: 10.1016/j.hlc.2018.06.791 |
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2017 Conference Publication Sleep disorders in individuals with neurodevelopmental disordersHeussler, H. and Wiggs, L. (2017). Sleep disorders in individuals with neurodevelopmental disorders. 20th SSBP Educational Day and Research Symposium, Leiden, Netherlands, 14 - 16 September 2017. Chichester, West Sussex United Kingdom: Wiley-Blackwell. doi: 10.1111/jir.12399 |
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2017 Journal Article Paediatric palliative care and intellectual disability-a unique contextDuc, Jacqueline K, Herbert, Anthony Robert and Heussler, Helen S (2017). Paediatric palliative care and intellectual disability-a unique context. Journal of Applied Research in Intellectual Disabilities, 30 (6), 1111-1124. doi: 10.1111/jar.12389 |
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2017 Journal Article A web-based, patient driven registry for Angelman syndrome: the global Angelman syndrome registryNapier, Kathryn R., Tones, Megan, Simons, Chloe, Heussler, Helen, Hunter, Adam A., Cross, Meagan and Bellgard, Matthew I. (2017). A web-based, patient driven registry for Angelman syndrome: the global Angelman syndrome registry. Orphanet Journal of Rare Diseases, 12 (1) 134, 134. doi: 10.1186/s13023-017-0686-1 |
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2017 Journal Article Does a brief, behavioural intervention, delivered by paediatricians or psychologists improve sleep problems for children with ADHD? Protocol for a cluster-randomised, translational trialSciberras, E., Mulraney, M., Heussler, H., Rinehart, N., Schuster, T., Gold, L., Hayes, N. and Hiscock, H. (2017). Does a brief, behavioural intervention, delivered by paediatricians or psychologists improve sleep problems for children with ADHD? Protocol for a cluster-randomised, translational trial. BMJ Open, 7 (4) e014158, e014158. doi: 10.1136/bmjopen-2016-014158 |
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2017 Journal Article Rationale for and design of the "POSTA" study: evaluation of neurocognitive outcomes after immediate adenotonsillectomy compared to watchful waiting in preschool childrenWaters, Karen A., Chawla, Jasneek, Harris, Margaret-Anne, Dakin, Carolyn, Heussler, Helen, Black, Robert, Cheng, Alan, Burns, Hannah, Kennedy, John D. and Lushington, Kurt (2017). Rationale for and design of the "POSTA" study: evaluation of neurocognitive outcomes after immediate adenotonsillectomy compared to watchful waiting in preschool children. BMC Pediatrics, 17 (1) 47. doi: 10.1186/s12887-016-0758-8 |
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2017 Conference Publication At what age do children demonstrate an understanding of the vocabulary associated with sleep?Ludwig, B., Heussler, H. and Smith, S. (2017). At what age do children demonstrate an understanding of the vocabulary associated with sleep?. World Sleep 2017, Prague, Czech Republic, October 7-11, 2017. Amsterdam, Netherlands: Elsevier BV. doi: 10.1016/j.sleep.2017.11.586 |
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2017 Conference Publication Is there an association between perceived hypersomnolence and academic results?Ludwig, B., Heussler, H. and Smith, S. (2017). Is there an association between perceived hypersomnolence and academic results?. World Sleep 2017 , Prague, Czech Republic, October 7-11, 2017. Amsterdam, Netherlands: Elsevier BV. doi: 10.1016/j.sleep.2017.11.585 |
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2017 Conference Publication Evaluation of behavioural outcomes in children with down syndrome and co-existing sleep problemsChawla, J. and Heussler, H. (2017). Evaluation of behavioural outcomes in children with down syndrome and co-existing sleep problems. World Sleep Congress, Prague, Czech Republic, 7-11 October 2017. Amsterdam, Netherlands: Elsevier. doi: 10.1016/j.sleep.2017.11.145 |
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2017 Conference Publication Cognitive outcomes in children with mild obstructive sleep disordered breathingChawla, J., Heussler, H., Dakin, C., Burns, H., Black, R., Waters, K., Lushington, K. and Harris, M. -A. (2017). Cognitive outcomes in children with mild obstructive sleep disordered breathing. World Sleep Congress, Prague, Czech Republic, 7-11 October 2017. Amsterdam, Netherlands: Elsevier. doi: 10.1016/j.sleep.2017.11.146 |
