
Overview
Background
Dr Bena Brown is a clinician/researcher who brings her passion for caring for people with cancer and their families to her current role in the FNCWR team, where her focus is on delivering projects that optimise survivorship and cancer health services for Aboriginal and Torres Strait Islander people. These projects include implementing novel models of care such as navigation and health behaviour intervention, optimising communication and access to services through the development and evaluation of culturally responsive resources.
Bena has more than 60 peer-reviewed publications, has presented at multiple national and international conferences, and has been awarded over $3.6 million in research grants.
She is also an Advanced Speech Pathologist (Cancer Care) at Brisbane's Princess Alexandra Hospital and provides RHD supervision for higher-degree students in the School of Health and Rehabilitation Sciences in UQ's Health and Behavioural Sciences Faculty. Bena is a member of the Human Research and Ethics Committees at Metro South Health and serves on State-wide committees for the Queensland Collaborative for Cancer Survivorship and the Clinical Oncological Society of Australia (COSA) Patient-Reported Outcome Working Group.
Outside her research and clinical career, Bena is mum to two boisterous boys, a keen yogi, and passionate student and board member at Vulcana Circus.
Availability
- Dr Bena Brown is:
- Available for supervision
Fields of research
Research interests
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Cancer Care
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Survivorship
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Novel service delivery models using telehealth
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Patient-centred care
Research impacts
Through the marriage of Bena's research to clinical cancer care, a number of service delivery improvements, changes in clinical practice, and models of care have been developed to optimise the healthcare received in Queensland hospitals. Bena's PhD examined the impact of novel, intensive radiotherapy regimens on swallowing, nutrition, and quality of life in patients with head and neck cancer. The outcomes of this body of work defined the altered fractionation radiotherapy regimen adopted at the Princess Alexandra Hospital. Bena's work in developing an electronic patient-reported outcome platform "ScreenIT", and subsequently "My HealthMy Way" has given patients, and their families, a voice to drive the cancer healthcare they need, when they need it, by the professional most able to support them. This has resulted in streamlined clinical care, reduction in low value care, and cost-efficiencies of $400,000 per year for hospital using this ePRO system. Through the supervision of Bena's clinician-research RHD students, further changes to health professional communication skills training in cancer care have been adopted, assessment and management of distress during cancer treatment has been optimised, and the identification and assessment of lymphoedema better managed. Bena is currently interested in supporting students who idenitfy as Aboriginal and/or Torres Strait Islander or student who wish to work in the area of improving cancer outcomes for Aboriginal and Torres Strait Islander people, their families and communities.
All of Bena's research endeavours are aimed at improving the experience and outcomes of Australians with cancer - either by direct translation of research findings into clinical care, or optimising the care provided by health professionals.
Works
Search Professor Bena Brown’s works on UQ eSpace
2025
Journal Article
Clinical Swallow Examination Following Laryngectomy: An International e-Delphi Consensus Process
Wilson, Sarah E., Brown, Bena and Burns, Clare L. (2025). Clinical Swallow Examination Following Laryngectomy: An International e-Delphi Consensus Process. Dysphagia. doi: 10.1007/s00455-024-10785-0
2024
Journal Article
A Pilot Study on the Collection of Adverse Event Data from the Patient Using an Electronic Platform in a Cancer Clinical Trial Unit
Grahvendy, Minna, Brown, Bena and Wishart, Laurelie R. (2024). A Pilot Study on the Collection of Adverse Event Data from the Patient Using an Electronic Platform in a Cancer Clinical Trial Unit. Drugs - Real World Outcomes, 11 (4), 1-10. doi: 10.1007/s40801-024-00461-y
2024
Journal Article
Patient Reported Outcome Measures in cancer care: a hybrid effectiveness-Implementation trial to optimise Symptom control and health service Experience (PROMISE)–protocol for a randomised controlled trial of electronic self-reporting of symptoms versus usual care during and following treatment in patients with cancer
Webb, Penelope M, Brown, Amy, Brown, Bena, Collins, Louisa G, Crawford Williams, Fiona, Doupain, Kerrie, Eastgate, Melissa, Fennelly, Vicki, Girgis, Afaf, Hartel, Gunter, Ladwa, Rahul, Martin, Karen, Mason, Robert, McGuire, Peter, Miller, Elizabeth, O’Brien, Suzanne, Packer, Rebecca, Pinkham, Mark B, Sabesan, Sabe, Sanmugarajah, Jasotha, Slapp, Georgia, Tapsall, Doreen, White, Jeanie, Wishart, Laurelie R, Wyld, David and Chan, Raymond J (2024). Patient Reported Outcome Measures in cancer care: a hybrid effectiveness-Implementation trial to optimise Symptom control and health service Experience (PROMISE)–protocol for a randomised controlled trial of electronic self-reporting of symptoms versus usual care during and following treatment in patients with cancer. BMJ Open, 14 (11) e090836, 1-10. doi: 10.1136/bmjopen-2024-090836
2024
Journal Article
What are the functional outcomes and service experiences of patients with head and neck cancer treated during the COVID-19 pandemic?
Day, Sarah, Mabb, Kira, Nixon, Jodie, Williames, Jocelyn, Emlyn-Jones, Mair, Davis, Kate, Barrett, Christie, Wishart, Laurelie and Brown, Bena (2024). What are the functional outcomes and service experiences of patients with head and neck cancer treated during the COVID-19 pandemic?. Supportive Care in Cancer, 32 (9) 620. doi: 10.1007/s00520-024-08811-w
2024
Journal Article
‘How your spirit is travelling’—understanding First Nations peoples’ experiences of living well with and after cancer
de Groot, Anneliese, Brown, Bena, Lindsay, Daniel, Gall, Alana, Hewlett, Nicole, Hickman, Amy and Garvey, Gail (2024). ‘How your spirit is travelling’—understanding First Nations peoples’ experiences of living well with and after cancer. International Journal of Environmental Research and Public Health, 21 (6) 798. doi: 10.3390/ijerph21060798
2024
Journal Article
Adverse event reporting in cancer clinical trials: incorporating patient-reported methods. A systematic scoping review
Grahvendy, Minna, Brown, Bena and Wishart, Laurelie R. (2024). Adverse event reporting in cancer clinical trials: incorporating patient-reported methods. A systematic scoping review. The Patient - Patient-Centered Outcomes Research, 17 (4), 335-347. doi: 10.1007/s40271-024-00689-4
2024
Journal Article
Systematic review of Aboriginal and Torres Strait Islander peoples’ experiences and supportive care needs associated with cancer
Gilroy, John, Henningham, Mandy, Meehan, Drew, Nila, Farhana, McGlone, Joanna, McAtamney, Amanda, Whittaker, Kate, Brown, Bena, Varlow, Megan and Buchanan, Tanya (2024). Systematic review of Aboriginal and Torres Strait Islander peoples’ experiences and supportive care needs associated with cancer. BMC Public Health, 24 (1) 523, 1-13. doi: 10.1186/s12889-024-18070-3
2024
Journal Article
Clinical validation of a tissue-agnostic genome-wide methylome enrichment molecular residual disease assay for head and neck malignancies
Liu, G., Huang, S. H., Ailles, L., Rey-McIntyre, K., Melton, C. A., Shen, S. Y., Burgener, J. M., Brown, B., Zhang, J., Min, J., Wang, Y., Hall, O., Jones, J. T., Budhraja, K., Provance, J. B., Sosa, E. V., Licon, A., Williams, A., Bratman, S. V., Allen, B. A., Hartman, A. R. and De Carvalho, D. D. (2024). Clinical validation of a tissue-agnostic genome-wide methylome enrichment molecular residual disease assay for head and neck malignancies. Annals of Oncology, 36 (1), 108-117. doi: 10.1016/j.annonc.2024.08.2348
2024
Book Chapter
Survivorship
Brown, Bena, Packer, Rebecca L., Bickford, Jane and Ward, Elizabeth C. (2024). Survivorship. Head and neck cancer: treatment, rehabilitation, and outcomes. (pp. 557-578) edited by Elizabeth C. Ward and Corina J. van As-Brooks. San Diego, CA, United States: Plural Publishing.
2023
Conference Publication
Strategies for sustainability: Implementation insights for long-term sustainment of programs that routinely collect Patient Reported Outcomes in cancer care clinical settings
Mazariego, Carolyn, Krzyzanowska, Monica, Lovas, Mike, Delaney, Geoff, Jefford, Michael, Chan, Raymond, Anazodo, Antoinette, Brown, Bena, Millar, Lesley, Roberts, Natasha and Koczwara, Bogda (2023). Strategies for sustainability: Implementation insights for long-term sustainment of programs that routinely collect Patient Reported Outcomes in cancer care clinical settings. LONDON: BMC.
2023
Journal Article
Safety and acceptability of a modified swallowing impairment screening assessment via nasendoscopy following head and neck cancer treatment: a feasibility study
Pitt, Rachael, Hutchison, Alana, Pigott, Amanda and Brown, Bena (2023). Safety and acceptability of a modified swallowing impairment screening assessment via nasendoscopy following head and neck cancer treatment: a feasibility study. Speech, Language and Hearing, 27 (3) 2248696, 222-233. doi: 10.1080/2050571x.2023.2248696
2023
Journal Article
A prospective, longitudinal and exploratory study of head and neck lymphoedema and dysphagia following chemoradiotherapy for head and neck cancer
Jeans, Claire, Brown, Bena, Ward, Elizabeth C., Vertigan, Anne E., Pigott, Amanda E., Nixon, Jodie L., Wratten, Chris and Boggess, May (2023). A prospective, longitudinal and exploratory study of head and neck lymphoedema and dysphagia following chemoradiotherapy for head and neck cancer. Dysphagia, 38 (4), 1059-1071. doi: 10.1007/s00455-022-10526-1
2023
Journal Article
Fear of cancer recurrence among Aboriginal and Torres Strait Islander women diagnosed with breast cancer
Butler, Tamara, Smith, Ben, Pilatti, Kirsten, Brown, Bena, Anderson, Kate, Morris, Bronwyn and Garvey, Gail (2023). Fear of cancer recurrence among Aboriginal and Torres Strait Islander women diagnosed with breast cancer. Current Oncology, 30 (3), 2900-2915. doi: 10.3390/curroncol30030222
2022
Journal Article
A prospective observational cohort study examining the development of head and neck lymphedema from the time of diagnosis
Pigott, Amanda, Brown, Bena, White, Nicole, McPhail, Steven, Porceddu, Sandro, Liu, Howard, Jeans, Claire, Panizza, Ben and Nixon, Jodie (2022). A prospective observational cohort study examining the development of head and neck lymphedema from the time of diagnosis. Asia-Pacific Journal of Clinical Oncology, 19 (4), 473-481. doi: 10.1111/ajco.13843
2022
Journal Article
Caregiver burden in head and neck cancer dysphagia cases
Nund, Rebecca L. and Brown, Bena (2022). Caregiver burden in head and neck cancer dysphagia cases. Perspectives of the ASHA Special Interest Groups, 7 (3), 879-884. doi: 10.1044/2022_persp-21-00313
2022
Journal Article
Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study
Mazariego, C., Jefford, M., Chan, R. J., Roberts, N., Millar, L., Anazodo, A., Hayes, S., Brown, B., Saunders, C., Webber, K., Vardy, J., Girgis, A. and Koczwara, B. (2022). Priority recommendations for the implementation of patient-reported outcomes in clinical cancer care: a Delphi study. Journal of Cancer Survivorship, 16 (1), 33-43. doi: 10.1007/s11764-021-01135-2
2021
Journal Article
Using dosimetric information to guide dysphagia management in patients with head and neck cancer: clinicians’ knowledge and experiences
Hutchison, Alana, Nund, Rebecca Louise, Brown, Bena, Ward, Elizabeth C. and Wishart, Laurelie (2021). Using dosimetric information to guide dysphagia management in patients with head and neck cancer: clinicians’ knowledge and experiences. International Journal of Speech-Language Pathology, 24 (4), 1-10. doi: 10.1080/17549507.2021.1984578
2021
Journal Article
Association between objective ratings of swallowing and dysphagia-specific quality of life in patients receiving (chemo)radiotherapy for oropharyngeal cancer
Wishart, Laurelie R., Harris, Grace B., Cassim, Nabeela, Alimin, Stephanie, Liao, Ting, Brown, Bena, Ward, Elizabeth C. and Nund, Rebecca L. (2021). Association between objective ratings of swallowing and dysphagia-specific quality of life in patients receiving (chemo)radiotherapy for oropharyngeal cancer. Dysphagia, 37 (4), 1014-1021. doi: 10.1007/s00455-021-10364-7
2021
Journal Article
Head and neck lymphoedema: research challenges during the COVID-19 pandemic
Pigott, Amanda, Brown, Bena, Trevethan, Megan, Porceddu, Sandro, McCann, Andrew, Pitt, Rachael and Nixon, Jodie (2021). Head and neck lymphoedema: research challenges during the COVID-19 pandemic. British Journal of Community Nursing, 26 (Sup10), S6-S15. doi: 10.12968/bjcn.2021.26.Sup10.S6
2021
Journal Article
Rethinking the meaning of 'wellness' for a person with cancer: a qualitative study to explore what elements constitute 'wellness'
Nixon, Jodie, Chan, Raymond, McKinnell, Emma, Ward, Elizabeth, Pinkham, Elizabeth, Wishart, Laurelie, Miller, Elizabeth and Brown, Bena (2021). Rethinking the meaning of 'wellness' for a person with cancer: a qualitative study to explore what elements constitute 'wellness'. Asia-Pacific Journal of Oncology Nursing, 8 (4), 360-368. doi: 10.4103/apjon.apjon-212
Funding
Past funding
Supervision
Availability
- Dr Bena Brown is:
- Available for supervision
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Supervision history
Current supervision
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Doctor Philosophy
"Cancer Tracks": Establishing a best practice approach for supporting First Nations patients undergoing Head and Neck Cancer Care
Principal Advisor
Other advisors: Professor Elizabeth Ward, Dr Tamara Butler
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Doctor Philosophy
Lymphoedema following head and neck cancer treatment: Prevalence, risk factors, and functional impact on swallowing and quality of life
Principal Advisor
Other advisors: Professor Elizabeth Ward
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Master Philosophy
An electronic, Patient-Reported platform for capturing Adverse Event data in the Cancer Trials Unit of the Princess Alexandra Hospital (ePRAE-CTU)
Principal Advisor
Other advisors: Dr Laurelie Wishart
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Master Philosophy
An electronic, patient-reported platform for capturing adverse event data in the Cancer Trials Unit of the Princess Alexandra Hospital
Principal Advisor
Other advisors: Dr Laurelie Wishart
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Doctor Philosophy
"Cancer Tracks": Establishing a best practice approach for supporting First Nations patients undergoing Head and Neck Cancer Care
Principal Advisor
Other advisors: Professor Elizabeth Ward, Dr Tamara Butler
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Master Philosophy
Dysphagia following laryngectomy and pharyngolaryngectomy
Associate Advisor
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Master Philosophy
Clinical and radiological examination of swallowing following laryngectomy: International e-Delphi consensus processes.
Associate Advisor
Completed supervision
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2024
Doctor Philosophy
Lymphoedema following head and neck cancer treatment: Prevalence, risk factors, and functional impact on swallowing and quality of life
Principal Advisor
Other advisors: Professor Elizabeth Ward
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2020
Doctor Philosophy
Distress in Head and Neck Cancer: Addressing the problem, supporting the person, enhancing health professional engagement
Principal Advisor
Other advisors: Dr Amanda Pigott
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2020
Doctor Philosophy
Utilising Dosimetric Information to Enhance the Clinical Management of Dysphagia in Patients Undergoing (Chemo) Radiotherapy for Head and Neck Cancer
Principal Advisor
Other advisors: Professor Elizabeth Ward, Dr Laurelie Wishart
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2019
Doctor Philosophy
Optimising head and neck cancer survivorship with speech pathology care: Identifying patient and service needs to improve the management of patients treated with (chemo)radiotherapy
Principal Advisor
Other advisors: Professor Elizabeth Ward
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2017
Doctor Philosophy
Examining the use of telepractice for delivering intensive, prophylactic swallowing therapy to patients with head and neck cancer undergoing (chemo)radiotherapy
Associate Advisor
Other advisors: Professor Elizabeth Ward
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2014
Doctor Philosophy
Dysphagia following non-surgical management for head and neck cancer: Using the ICF to explore the rehabilitation needs of survivors and their carers
Associate Advisor
Other advisors: Professor Elizabeth Ward, Professor Nerina Scarinci
Media
Enquiries
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