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2021 Journal Article Development of an international Delphi survey to establish core outcome domains for trials in adults with glomerular diseaseCarter, Simon A., Logeman, Charlotte, Howell, Martin, Cattran, Dan, Lightstone, Liz, Bagga, Arvind, Barbour, Sean J., Barratt, Jonathan, Boletis, John, Caster, Dawn J., Coppo, Rosanna, Fervenza, Fernando C., Floege, Jürgen, Hladunewich, Michelle A., Hogan, Jonathan J., Kitching, A. Richard, Lafayette, Richard A., Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H., Scholes-Robertson, Nicole, Trimarchi, Hérnan, Zhang, Hong, Cho, Yeoungjee, Dunn, Louese, Gipson, Debbie S., Liew, Adrian, Sautenet, Benedicte, Viecelli, Andrea K. ... Craig, Jonathan C. (2021). Development of an international Delphi survey to establish core outcome domains for trials in adults with glomerular disease. Kidney International, 100 (4), 881-893. doi: 10.1016/j.kint.2021.04.027 |
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2021 Journal Article Perspectives on blood pressure by patients on haemo- and peritoneal dialysisEvangelidis, Nicole, Sautenet, Benedicte, Manera, Karine E., Howell, Martin, Craig, Jonathan C., Viecelli, Andrea K., O'Lone, Emma, Scholes-Robertson, Nicole, Johnson, David W., Cho, Yeoungjee, Tomson, Charles, Wheeler, David C. and Tong, Allison (2021). Perspectives on blood pressure by patients on haemo- and peritoneal dialysis. Nephrology, 26 (1) nep.13775, 62-69. doi: 10.1111/nep.13775 |
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2020 Journal Article Peritoneal dialysis versus haemodialysis for people commencing dialysisPei, Juan, Ethier, Isabelle, Hudson, Rebecca E, Hawley, Carmel M, Johnson, David W, Campbell, Scott B, Francis, Ross S, Wong, Germaine, Craig, Jonathan C, Viecelli, Andrea K and Cho, Yeoungjee (2020). Peritoneal dialysis versus haemodialysis for people commencing dialysis. Cochrane Database of Systematic Reviews, 2020 (11) CD013800. doi: 10.1002/14651858.CD013800 |
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2020 Journal Article Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED studySee, Yong Pey, Cho, Yeoungjee, Pascoe, Elaine M., Cass, Alan, Irish, Ashley, Voss, David, Polkinghorne, Kevan R., Hooi, Lai Seong, Ong, Loke-Meng, Paul-Brent, Peta-Anne, Kerr, Peter G., Mori, Trevor A., Hawley, Carmel M., Johnson, David W. and Viecelli, Andrea K. (2020). Predictors of arterio-venous fistula failure: a post-hoc analysis of the FAVOURED study. Kidney360, 1 (11), 1259-1269. doi: 10.34067/kid.0002732020 |
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2020 Journal Article Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in AustraliaDuncanson, Emily, Bennett, Paul N., Viecelli, Andrea, Dansie, Kathryn, Handke, William, Tong, Allison, Palmer, Suetonia, Jesudason, Shilpanjali, McDonald, Stephen P. and Morton, Rachael L. (2020). Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring with Feedback Trial (SWIFT) pilot: Protocol for a qualitative study in Australia. BMJ Open, 10 (11) e039014. doi: 10.1136/bmjopen-2020-039014 |
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2020 Journal Article Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysisEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Roberts, Matthew A., Semple, David, Nadeau-Fredette, Annie-Claire, Sypek, Matthew P., Viecelli, Andrea, Campbell, Scott, van Eps, Carolyn, Isbel, Nicole M. and Johnson, David W. (2020). Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis. Nephrology Dialysis Transplantation, 35 (11), 1938-1949. doi: 10.1093/ndt/gfaa002 |
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2020 Journal Article Core outcomes set for trials in people with coronavirus disease 2019Tong, Allison, Elliott, Julian H., Azevedo, Luciano Cesar, Baumgart, Amanda, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Cho, Yeoungjee, Cooper, Tess, Crowe, Sally, Douglas, Ivor S., Evangelidis, Nicole, Flemyng, Ella, Hannan, Elyssa, Horby, Peter, Howell, Martin, Lee, Jaehee, Liu, Emma, Lorca, Eduardo, Lynch, Deena, Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Manera, Karine E., McLeod, Charlie, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad ... Craig, Jonathan C. (2020). Core outcomes set for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1622-1635. doi: 10.1097/CCM.0000000000004585 |
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2020 Journal Article Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrumentJu, Angela, Teixeira-Pinto, Armando, Tong, Allison, Smith, Alice C., Unruh, Mark, Davison, Sara N., Dapueto, Juan, Dew, Mary Amanda, Fluck, Richard, Germain, Michael J., Jassal, Sarbjit V., Obrador, Gregorio T., O’donoghue, Donal, Viecelli, Andrea K., Strippoli, Giovanni, Ruospo, Marinella, Timofte, Delia, Sharma, Ankit, Au, Eric, Howell, Martin, Costa, Daniel S. J., Anumudu, Samaya, Craig, Jonathan C. and Rutherford, Claudia (2020). Validation of a core patient-reported outcome measure for fatigue in patients receiving hemodialysis: The SONG-HD fatigue instrument. Clinical Journal of the American Society of Nephrology, 15 (11), 1614-1621. doi: 10.2215/CJN.05880420 |
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2020 Journal Article Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL studyEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Viecelli, Andrea K., Campbell, Scott B., van Eps, Carolyn, Isbel, Nicole M., Cooper, Bruce A., Harris, David C., Pollock, Carol A., Wong, Muh Geot and Johnson, David W. (2020). Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study. PLoS ONE, 15 (11 November) e0242254, 1-14. doi: 10.1371/journal.pone.0242254 |
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2020 Journal Article International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019Evangelidis, Nicole, Tong, Allison, Howell, Martin, Teixeira-Pinto, Armando, Elliott, Julian H., Azevedo, Luciano Cesar, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Horby, Peter, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Marshall, John C., McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad, Povoa, Pedro, Reid, Mark, Sakr, Yasser, Shen, Ning, Smyth, Alan R., Snelling, Tom, Strippoli, Giovanni F. M. ... Craig, Jonathan C. (2020). International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1612-1621. doi: 10.1097/CCM.0000000000004584 |
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2020 Journal Article Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregiversBaumgart, Amanda, Manera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Ruiz, Lorena, Wang, Angela Yee-Moon, Yip, Terence, Fung, Samuel K.S., Tong, Matthew, Lee, Achilles, Cho, Yeoungjee, Viecelli, Andrea K., Sautenet, Benedicte, Teixeira-Pinto, Armando, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Scholes-Robertson, Nicole, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin and Tong, Allison (2020). Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrology Dialysis Transplantation, 35 (11), 1949-1958. doi: 10.1093/ndt/gfaa127 |
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2020 Journal Article Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New ZealandEthier, Isabelle, Cho, Yeoungjee, Davies, Christopher E., Hawley, Carmel M., Campbell, Scott B., Isbel, Nicole M., Pascoe, Elaine M., Polkinghorne, Kevan R., Roberts, Matthew, See, Emily J., Semple, David, van Eps, Carolyn, Viecelli, Andrea K. and Johnson, David W. (2020). Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand. Nephrology, 26 (2) e13782, e13782-163. doi: 10.1111/nep.13782 |
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2020 Journal Article A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group studyLogeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri and Tong, Allison (2020). A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study. BMJ Open, 10 (10) e038005, e038005. doi: 10.1136/bmjopen-2020-038005 |
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2020 Journal Article Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionalsO’Lone, Emma, Howell, Martin, Viecelli, Andrea K., Craig, Jonathan C., Tong, Allison, Sautenet, Benedicte, Herrington, William G., Herzog, Charles A., Jafar, Tazeen H., Jardine, Meg, Krane, Vera, Levin, Adeera, Malyszko, Jolanta, Rocco, Michael V., Strippoli, Giovanni, Tonelli, Marcello, Wang, Angela Yee-Moon, Wanner, Christoph, Zannad, Faiez, Winkelmayer, Wolfgang C. and Wheeler, David C. (2020). Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals. Nephrology Dialysis Transplantation, 35 (10), 1761-1769. doi: 10.1093/ndt/gfaa008 |
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2020 Journal Article Disparities in end-stage kidney disease care for children: a global surveyLalji, Rowena, Francis, Anna, Wong, Germaine, Viecelli, Andrea K., Tong, Allison, Teixeira-Pinto, Armando, McCulloch, Mignon, Bello, Aminu K., Levin, Adeera, Lunney, Meaghan, Osman, Mohamed A., Ye, Feng, Jha, Vivekanand, Feehally, John, Harris, David C. and Johnson, David W. (2020). Disparities in end-stage kidney disease care for children: a global survey. Kidney International, 98 (3), 527-532. doi: 10.1016/j.kint.2020.04.058 |
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2020 Journal Article Novel trial strategies to enhance the relevance, efficiency, effectiveness, and impact of nephrology researchDansie, Kathryn, Viecelli, Andrea K., Pascoe, Elaine M., Johnson, David W., McDonald, Stephen, Clayton, Philip and Hawley, Carmel (2020). Novel trial strategies to enhance the relevance, efficiency, effectiveness, and impact of nephrology research. Kidney International, 98 (3), 572-578. doi: 10.1016/j.kint.2020.04.050 |
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2020 Journal Article Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionalsNatale, Patrizia, Gutman, Talia, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M., Cho, Yeoungjee, Viecelli, Andrea K., Craig, Jonathan C., Jesudason, Shilpanjali, Chapman, Jeremy R., Johnson, David W., Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Wong, Germaine, Teixeira-Pinto, Armando, Strippoli, Giovanni F M and Tong, Allison (2020). Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionals. Nephrology, Dialysis, Transplantation, 35 (5), 755-764. doi: 10.1093/ndt/gfaa044 |
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2020 Journal Article Identifying outcomes important to patients with glomerular disease and their caregiversCarter, Simon A., Gutman, Talia, Logeman, Charlotte, Cattran, Dan, Lightstone, Liz, Bagga, Arvind, Barbour, Sean J., Barratt, Jonathan, Boletis, John, Caster, Dawn, Coppo, Rosanna, Fervenza, Fernando C., Floege, Jürgen, Hladunewich, Michelle, Hogan, Jonathan J., Kitching, A. Richard, Lafayette, Richard A., Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H., Scholes-Robertson, Nicole, Trimarchi, Hérnan, Zhang, Hong, Azukaitis, Karolis, Cho, Yeoungjee, Viecelli, Andrea K., Dunn, Louese, Harris, David, Johnson, David W. ... on behalf of the SONG-GD Investigators (2020). Identifying outcomes important to patients with glomerular disease and their caregivers. Clinical Journal of the American Society of Nephrology, 15 (5), 673-684. doi: 10.2215/cjn.13101019 |
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2020 Journal Article Identifying critically important vascular access outcomes for trials in haemodialysis: an international survey with patients, caregivers and health professionalsViecelli, Andrea K., Howell, Martin, Tong, Allison, Teixeira-Pinto, Armando, O'Lone, Emma, Ju, Angela, Craig, Jonathan C., Hooi, Lai-Seong, Lee, Timmy, Lok, Charmaine E., Polkinghorne, Kevan R., Quinn, Robert R., Vachharajani, Tushar J., Vanholder, Raymond, Zuo, Li, Tordoir, Jan, Pecoits-Filho, Roberto, Yuo, Theodore, Kopperschmidt, Pascal, Smith, Rob, Irish, Ashley B., Mori, Trevor A., Pascoe, Elaine M., Johnson, David W. and Hawley, Carmel M. (2020). Identifying critically important vascular access outcomes for trials in haemodialysis: an international survey with patients, caregivers and health professionals. Nephrology, Dialysis, Transplantation, 35 (4), 657-668. doi: 10.1093/ndt/gfz148 |
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2020 Journal Article Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) consensus workshopManera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Gutman, Talia, Cho, Yeoungjee, Wang, Angela Yee-Moon, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin, Tong, Allison, Levin, Adeera, Liew, Adrian, Cueto Manzano, Alfonso, Abu Alfa, Ali, Neu, Alicia, Baumgart, Amanda, Bernier-Jean, Amelie, Kelly, Amy, Figueiredo, Ana, Matus, Andrea, Viecelli, Andrea, Ju, Angela ... SONG-PD Workshop Investigators (2020). Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) consensus workshop. American Journal of Kidney Diseases, 75 (3), 404-412. doi: 10.1053/j.ajkd.2019.09.017 |
