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2020 Journal Article Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL studyEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Viecelli, Andrea K., Campbell, Scott B., van Eps, Carolyn, Isbel, Nicole M., Cooper, Bruce A., Harris, David C., Pollock, Carol A., Wong, Muh Geot and Johnson, David W. (2020). Rate of decline in residual kidney function pre and post peritoneal dialysis initiation: A post hoc analysis of the IDEAL study. PLoS ONE, 15 (11 November) e0242254, 1-14. doi: 10.1371/journal.pone.0242254 |
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2020 Journal Article International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019Evangelidis, Nicole, Tong, Allison, Howell, Martin, Teixeira-Pinto, Armando, Elliott, Julian H., Azevedo, Luciano Cesar, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Crowe, Sally, Douglas, Ivor S., Flemyng, Ella, Horby, Peter, Lee, Jaehee, Lorca, Eduardo, Lynch, Deena, Marshall, John C., McKenzie, Anne, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad, Povoa, Pedro, Reid, Mark, Sakr, Yasser, Shen, Ning, Smyth, Alan R., Snelling, Tom, Strippoli, Giovanni F. M. ... Craig, Jonathan C. (2020). International survey to establish prioritized outcomes for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1612-1621. doi: 10.1097/CCM.0000000000004584 |
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2020 Journal Article Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregiversBaumgart, Amanda, Manera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Ruiz, Lorena, Wang, Angela Yee-Moon, Yip, Terence, Fung, Samuel K.S., Tong, Matthew, Lee, Achilles, Cho, Yeoungjee, Viecelli, Andrea K., Sautenet, Benedicte, Teixeira-Pinto, Armando, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Scholes-Robertson, Nicole, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin and Tong, Allison (2020). Meaning of empowerment in peritoneal dialysis: focus groups with patients and caregivers. Nephrology Dialysis Transplantation, 35 (11), 1949-1958. doi: 10.1093/ndt/gfaa127 |
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2020 Journal Article Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysisEthier, Isabelle, Cho, Yeoungjee, Hawley, Carmel, Pascoe, Elaine M., Roberts, Matthew A., Semple, David, Nadeau-Fredette, Annie-Claire, Sypek, Matthew P., Viecelli, Andrea, Campbell, Scott, van Eps, Carolyn, Isbel, Nicole M. and Johnson, David W. (2020). Effect of patient- and center-level characteristics on uptake of home dialysis in Australia and New Zealand: A multicenter registry analysis. Nephrology Dialysis Transplantation, 35 (11), 1938-1949. doi: 10.1093/ndt/gfaa002 |
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2020 Journal Article Core outcomes set for trials in people with coronavirus disease 2019Tong, Allison, Elliott, Julian H., Azevedo, Luciano Cesar, Baumgart, Amanda, Bersten, Andrew, Cervantes, Lilia, Chew, Derek P., Cho, Yeoungjee, Cooper, Tess, Crowe, Sally, Douglas, Ivor S., Evangelidis, Nicole, Flemyng, Ella, Hannan, Elyssa, Horby, Peter, Howell, Martin, Lee, Jaehee, Liu, Emma, Lorca, Eduardo, Lynch, Deena, Marshall, John C., Gonzalez, Andrea Matus, McKenzie, Anne, Manera, Karine E., McLeod, Charlie, Mehta, Sangeeta, Mer, Mervyn, Morris, Andrew Conway, Nseir, Saad ... Craig, Jonathan C. (2020). Core outcomes set for trials in people with coronavirus disease 2019. Critical Care Medicine, 48 (11), 1622-1635. doi: 10.1097/CCM.0000000000004585 |
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2020 Journal Article Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New ZealandEthier, Isabelle, Cho, Yeoungjee, Davies, Christopher E., Hawley, Carmel M., Campbell, Scott B., Isbel, Nicole M., Pascoe, Elaine M., Polkinghorne, Kevan R., Roberts, Matthew, See, Emily J., Semple, David, van Eps, Carolyn, Viecelli, Andrea K. and Johnson, David W. (2020). Variability and trends over time and across centres in haemodialysis weekly duration in Australia and New Zealand. Nephrology, 26 (2) e13782, e13782-163. doi: 10.1111/nep.13782 |
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2020 Journal Article A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group studyLogeman, Charlotte, Cho, Yeoungjee, Sautenet, Benedicte, Rangan, Gopala K, Gutman, Talia, Craig, Jonathan, Ong, Albert, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Tze-Wah Kao, Juliana, Gansevoort, Ron T, Perrone, Ronald, Harris, Tess, Torres, Vincent, Fowler, Kevin, Pei, York, Kerr, Peter, Ryan, Jessica, Johnson, David, Viecelli, Andrea, Geneste, Clair, Kim, Hyunsuk, Kim, Yaerim, Howell, Martin, Ju, Angela, Manera, Karine E, Teixeira-Pinto, Armando, Parasivam, Gayathri and Tong, Allison (2020). A sword of Damocles': patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study. BMJ Open, 10 (10) e038005, e038005. doi: 10.1136/bmjopen-2020-038005 |
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2020 Journal Article Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionalsO’Lone, Emma, Howell, Martin, Viecelli, Andrea K., Craig, Jonathan C., Tong, Allison, Sautenet, Benedicte, Herrington, William G., Herzog, Charles A., Jafar, Tazeen H., Jardine, Meg, Krane, Vera, Levin, Adeera, Malyszko, Jolanta, Rocco, Michael V., Strippoli, Giovanni, Tonelli, Marcello, Wang, Angela Yee-Moon, Wanner, Christoph, Zannad, Faiez, Winkelmayer, Wolfgang C. and Wheeler, David C. (2020). Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals. Nephrology Dialysis Transplantation, 35 (10), 1761-1769. doi: 10.1093/ndt/gfaa008 |
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2020 Journal Article Novel trial strategies to enhance the relevance, efficiency, effectiveness, and impact of nephrology researchDansie, Kathryn, Viecelli, Andrea K., Pascoe, Elaine M., Johnson, David W., McDonald, Stephen, Clayton, Philip and Hawley, Carmel (2020). Novel trial strategies to enhance the relevance, efficiency, effectiveness, and impact of nephrology research. Kidney International, 98 (3), 572-578. doi: 10.1016/j.kint.2020.04.050 |
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2020 Journal Article Disparities in end-stage kidney disease care for children: a global surveyLalji, Rowena, Francis, Anna, Wong, Germaine, Viecelli, Andrea K., Tong, Allison, Teixeira-Pinto, Armando, McCulloch, Mignon, Bello, Aminu K., Levin, Adeera, Lunney, Meaghan, Osman, Mohamed A., Ye, Feng, Jha, Vivekanand, Feehally, John, Harris, David C. and Johnson, David W. (2020). Disparities in end-stage kidney disease care for children: a global survey. Kidney International, 98 (3), 527-532. doi: 10.1016/j.kint.2020.04.058 |
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2020 Journal Article Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionalsNatale, Patrizia, Gutman, Talia, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M., Cho, Yeoungjee, Viecelli, Andrea K., Craig, Jonathan C., Jesudason, Shilpanjali, Chapman, Jeremy R., Johnson, David W., Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Wong, Germaine, Teixeira-Pinto, Armando, Strippoli, Giovanni F M and Tong, Allison (2020). Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionals. Nephrology, Dialysis, Transplantation, 35 (5), 755-764. doi: 10.1093/ndt/gfaa044 |
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2020 Journal Article Identifying outcomes important to patients with glomerular disease and their caregiversCarter, Simon A., Gutman, Talia, Logeman, Charlotte, Cattran, Dan, Lightstone, Liz, Bagga, Arvind, Barbour, Sean J., Barratt, Jonathan, Boletis, John, Caster, Dawn, Coppo, Rosanna, Fervenza, Fernando C., Floege, Jürgen, Hladunewich, Michelle, Hogan, Jonathan J., Kitching, A. Richard, Lafayette, Richard A., Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H., Scholes-Robertson, Nicole, Trimarchi, Hérnan, Zhang, Hong, Azukaitis, Karolis, Cho, Yeoungjee, Viecelli, Andrea K., Dunn, Louese, Harris, David, Johnson, David W. ... on behalf of the SONG-GD Investigators (2020). Identifying outcomes important to patients with glomerular disease and their caregivers. Clinical Journal of the American Society of Nephrology, 15 (5), 673-684. doi: 10.2215/cjn.13101019 |
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2020 Journal Article Identifying critically important vascular access outcomes for trials in haemodialysis: an international survey with patients, caregivers and health professionalsViecelli, Andrea K., Howell, Martin, Tong, Allison, Teixeira-Pinto, Armando, O'Lone, Emma, Ju, Angela, Craig, Jonathan C., Hooi, Lai-Seong, Lee, Timmy, Lok, Charmaine E., Polkinghorne, Kevan R., Quinn, Robert R., Vachharajani, Tushar J., Vanholder, Raymond, Zuo, Li, Tordoir, Jan, Pecoits-Filho, Roberto, Yuo, Theodore, Kopperschmidt, Pascal, Smith, Rob, Irish, Ashley B., Mori, Trevor A., Pascoe, Elaine M., Johnson, David W. and Hawley, Carmel M. (2020). Identifying critically important vascular access outcomes for trials in haemodialysis: an international survey with patients, caregivers and health professionals. Nephrology, Dialysis, Transplantation, 35 (4), 657-668. doi: 10.1093/ndt/gfz148 |
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2020 Journal Article Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) consensus workshopManera, Karine E., Johnson, David W., Craig, Jonathan C., Shen, Jenny I., Gutman, Talia, Cho, Yeoungjee, Wang, Angela Yee-Moon, Brown, Edwina A., Brunier, Gillian, Dong, Jie, Dunning, Tony, Mehrotra, Rajnish, Naicker, Saraladevi, Pecoits-Filho, Roberto, Perl, Jeffrey, Wilkie, Martin, Tong, Allison, Levin, Adeera, Liew, Adrian, Cueto Manzano, Alfonso, Abu Alfa, Ali, Neu, Alicia, Baumgart, Amanda, Bernier-Jean, Amelie, Kelly, Amy, Figueiredo, Ana, Matus, Andrea, Viecelli, Andrea, Ju, Angela ... SONG-PD Workshop Investigators (2020). Establishing a core outcome set for peritoneal dialysis: report of the SONG-PD (Standardized Outcomes in Nephrology–Peritoneal Dialysis) consensus workshop. American Journal of Kidney Diseases, 75 (3), 404-412. doi: 10.1053/j.ajkd.2019.09.017 |
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2020 Journal Article Patient and caregiver perspectives on sleep in dialysisDe Silva, Iresha, Evangelidis, Nicole, Hanson, Camilla S., Manera, Karine, Guha, Chandana, Scholes-Robertson, Nicole, Craig, Jonathan C., Johnson, David, Cho, Yeoungiee, Viecelli, Andrea K. and Tong, Allison (2020). Patient and caregiver perspectives on sleep in dialysis. Journal of Sleep Research, 30 (4) e13221, 1-9. doi: 10.1111/jsr.13221 |
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2020 Journal Article Core outcome domains for trials in autosomal dominant polycystic kidney disease: an international Delphi surveyCho, Yeoungjee, Rangan, Gopala, Logeman, Charlotte, Ryu, Hyunjin, Sautenet, Benedicte, Perrone, Ronald D., Nadeau-Fredette, Annie-Claire, Mustafa, Reem A., Htay, Htay, Chonchol, Michel, Harris, Tess, Gutman, Talia, Craig, Jonathan C., Ong, Albert C.M., Chapman, Arlene, Ahn, Curie, Coolican, Helen, Kao, Juliana Tze-Wah, Gansevoort, Ron T., Torres, Vicente, Pei, York, Johnson, David W., Viecelli, Andrea K., Teixeira-Pinto, Armando, Howell, Martin, Ju, Angela, Manera, Karine E. and Tong, Allison (2020). Core outcome domains for trials in autosomal dominant polycystic kidney disease: an international Delphi survey. American Journal of Kidney Diseases, 76 (3), 361-373. doi: 10.1053/j.ajkd.2020.01.005 |
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2020 Journal Article Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshopsHanson, Camilla S., Craig, Jonathan C., Logeman, Charlotte, Sinha, Aditi, Dart, Allison, Eddy, Allison A., Guha, Chandana, Gipson, Debbie S., Bockenhauer, Detlef, Yap, Hui-Kim, Groothoff, Jaap, Zappitelli, Michael, Webb, Nicholas J.A., Alexander, Stephen I., Furth, Susan L., Samuel, Susan, Neu, Alicia, Viecelli, Andrea K., Ju, Angela, Sharma, Ankit, Au, Eric H., Desmond, Hailey, Shen, Jenny I., Manera, Karine E., Azukaitis, Karolis, Dunn, Louese, Carter, Simon A., Gutman, Talia, Cho, Yeoungjee ... Salih, Zeynab (2020). Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops. Kidney International, 98 (3), 553-565. doi: 10.1016/j.kint.2020.05.054 |
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2019 Journal Article Identifying patient-important outcomes in polycystic kidney disease: An international nominal group technique studyCho, Yeoungjee, Sautenet, Benedicte, Gutman, Talia, Rangan, Gopala, Craig, Jonathan C, Ong, Albert C, Chapman, Arlene, Ahn, Curie, Coolican, Helen, Kao, Juliana T-W, Gansevoort, Ron, Perrone, Ronald D, Harris, Tess, Torres, Vicente, Pei, York, Kerr, Peter G, Ryan, Jessica, Johnson, David W, Viecelli, Andrea K, Geneste, Claire, Kim, Hyunsuk, Kim, Yaerim, Oh, Yun Kyu, Teixeira-Pinto, Armando, Logeman, Charlotte, Howell, Martin, Ju, Angela, Manera, Karine E and Tong, Allison (2019). Identifying patient-important outcomes in polycystic kidney disease: An international nominal group technique study. Nephrology, 24 (12), 1214-1224. doi: 10.1111/nep.13566 |
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2019 Journal Article Standardized Outcomes in Nephrology—Glomerular Disease (SONG-GD): establishing a core outcome set for trials in patients with glomerular diseaseCarter, Simon A., Lightstone, Liz, Cattran, Daniel, Bagga, Arvind, Barbour, Sean J., Barratt, Jonathan, Boletis, John, Caster, Dawn, Coppo, Rosanna, Fervenza, Fernando C., Floege, Jürgen, Hladunewich, Michelle, Hogan, Jonathan J., Kitching, A. Richard, Lafayette, Richard, Malvar, Ana, Radhakrishnan, Jai, Rovin, Brad H., Zhang, Hong, Gutman, Talia, Howell, Martin, Logeman, Charlotte, Shen, Jenny I., Teixeira-Pinto, Armando, Alexander, Stephen I., Cho, Yeoungjee, Craig, Jonathan C., Harris, David, Johnson, David W. ... Tong, Allison (2019). Standardized Outcomes in Nephrology—Glomerular Disease (SONG-GD): establishing a core outcome set for trials in patients with glomerular disease. Kidney International, 95 (6), 1280-1283. doi: 10.1016/j.kint.2019.01.047 |
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2019 Journal Article Principles and strategies for involving patients in research in chronic kidney disease: report from national workshopsGutman, Talia, Tong, Allison, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M., Craig, Jonathan C., Jesudason, Shilpanjali, Chapman, Jeremy R., Johnson, David W., Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Workshop Investigators and Viecelli, Andrea (2019). Principles and strategies for involving patients in research in chronic kidney disease: report from national workshops. Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 35 (9), 1585-1594. doi: 10.1093/ndt/gfz076 |
