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Dr Kathy Ellem
Dr

Kathy Ellem

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Phone: 
+61 7 334 69013

Overview

Background

Dr Kathy Ellem is a Senior Lecturer in the School of Nursing, Midwifery and Social Work at The University of Queensland, Australia. She has previously practiced as a social worker in both government and non-government sectors, working with children, young people and their families in disability and child protection services. As a social worker, she has been actively involved in casework; case management; behavioural intervention; group work; community development; and individual, citizen and systems advocacy. She has taken on family leadership roles in the disability sector, including her former role as President of Queensland Parents for People with a Disability. She is a member of the Queensland board of the Australasian Society for Intellectual Disability, and committee member of Queensland Advocacy Incorporated and Community Living Association.

Kathy completed her PhD in social work at the University of Queensland, researching the experiences of people with intellectual disability in the Queensland prison system. Her research expertise includes participatory research methodologies (including narrative, digital and arts-based research) with people with impaired cognitive capacity; the intersectionality of disability and the criminal justice system; disability workforce development; family-centred practice and capacity building of families who have a loved one with a disability; self-advocacy for people with an intellectual disability; and families who have been forced to relinquish care of their child with a disability. Her work focuses on how both teaching and research can influence positive change in social work practice and in the lives of vulnerable people.

Kathy currently leads the Honours research course for the Bachelor of Social Work (Hons) and supervises research higher degree students in the fields of disability, mental health and health.

Availability

Dr Kathy Ellem is:
Available for supervision

Fields of research

Qualifications

  • Bachelor (Honours) of Social Work, The University of Queensland
  • Doctor of Philosophy, The University of Queensland
  • Postgraduate Diploma, Queensland University of Technology
  • Member, Australasian Society for Intellectual Disability, Australasian Society for Intellectual Disability
  • Member, Disability and Intimate Citizenship Research and Advocacy Hub, Disability and Intimate Citizenship Research and Advocacy Hub
  • Member, Intellectual Disability Education and Training Expert Advisory Group, Intellectual Disability Education and Training Expert Advisory Group

Research interests

  • People with cognitive disability and the criminal justice system

    The experiences of people with intellectual disability and other cognitive disabilities as accused persons - including interactions with police, courts, youth justice and correctional facilities.

  • Young people with complex support needs

    Young people who are at significant risk of social exclusion and adverse life experiences, including young people with developmental, cognitive, psychosocial, physical impairment and other health conditions. How systems and services respond to this group

  • Inclusive research methodologies

    Life story work, arts-based methods, digital life stories, body-mapping research.

  • Families of people with a disability

    Person-centred planning; family-centred practice; National Disability Insurance Scheme; families who have relinquished care of their loved one with a disability.

Works

Search Professor Kathy Ellem’s works on UQ eSpace

42 works between 2008 and 2025

1 - 20 of 42 works

2025

Book Chapter

Disability hate speech and hate crimes: assessing the role of the Convention on the Rights of Persons with Disabilities in tackling disability-based animus

Lord, Janet E., Pons, William I., Stein, Michael Ashley, Ellem, Kathy and Harpur, Paul (2025). Disability hate speech and hate crimes: assessing the role of the Convention on the Rights of Persons with Disabilities in tackling disability-based animus. Disability hate crime: perspectives for change. (pp. 148-165) edited by Leah Burch and David Wilkin. Abingdon, Oxfordshire, United Kingdom: Routledge. doi: 10.4324/9781003442004-11

Disability hate speech and hate crimes: assessing the role of the Convention on the Rights of Persons with Disabilities in tackling disability-based animus

2024

Journal Article

Diminishing their voice through choice? How ‘self-placing’ in out-of-home care affects children and young people’s participation in decision-making

Venables, Jemma, Cullin, Joel, Ellem, Kathy and Healy, Karen (2024). Diminishing their voice through choice? How ‘self-placing’ in out-of-home care affects children and young people’s participation in decision-making. European Journal of Social Work, 1-14. doi: 10.1080/13691457.2024.2408429

Diminishing their voice through choice? How ‘self-placing’ in out-of-home care affects children and young people’s participation in decision-making

2024

Journal Article

Start with a vision: our thoughts on the Disability Royal Commission’s Recommendations for employment for people with intellectual disabilities

O’Dea, Paul, Cherry, Michael, Ellem, Kathy and O’Connor, Morrie (2024). Start with a vision: our thoughts on the Disability Royal Commission’s Recommendations for employment for people with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 1-9. doi: 10.1080/23297018.2024.2377995

Start with a vision: our thoughts on the Disability Royal Commission’s Recommendations for employment for people with intellectual disabilities

2024

Journal Article

Don’t judge a book by its cover: what the Disability Royal Commission can do for parents with intellectual disabilities

Derzsi, Rhiannon, Ellem, Kathy and O’Connor, Morrie (2024). Don’t judge a book by its cover: what the Disability Royal Commission can do for parents with intellectual disabilities. Research and Practice in Intellectual and Developmental Disabilities, 1-9. doi: 10.1080/23297018.2024.2384699

Don’t judge a book by its cover: what the Disability Royal Commission can do for parents with intellectual disabilities

2024

Journal Article

Approaches to Supporting Young People in Out-of-Home Care Who ‘Self-Place’ in Unapproved Locations: Perspectives of Statutory Child Protection Practitioners

Venables, Jemma, Warrell, Chloe, Cullin, Joel, Ellem, Kathy and Healy, Karen (2024). Approaches to Supporting Young People in Out-of-Home Care Who ‘Self-Place’ in Unapproved Locations: Perspectives of Statutory Child Protection Practitioners. The British Journal of Social Work. doi: 10.1093/bjsw/bcae131

Approaches to Supporting Young People in Out-of-Home Care Who ‘Self-Place’ in Unapproved Locations: Perspectives of Statutory Child Protection Practitioners

2024

Journal Article

Working Individually and collectively: assisting young people with cognitive disability transitioning from statutory systems

Venables, Jemma, Ellem, Kathy and Nathanson, Caitlin (2024). Working Individually and collectively: assisting young people with cognitive disability transitioning from statutory systems. Journal of Applied Youth Studies. doi: 10.1007/s43151-024-00141-2

Working Individually and collectively: assisting young people with cognitive disability transitioning from statutory systems

2024

Journal Article

Who funds published disability research in Australia?

Smith-Merry, Jennifer, Darcy, Simon, Dew, Angela, Hemsley, Bronwyn, Imms, Christine, O'Donovan, Mary-Ann, Gallego, Gisselle, McVilly, Keith, Gilroy, John, Carey, Gemma and Ellem, Kathy (2024). Who funds published disability research in Australia?. Journal of Disability Policy Studies. doi: 10.1177/10442073241228840

Who funds published disability research in Australia?

2024

Journal Article

Building capacity to engage in co-produced research: reflections from a digital storytelling project

Harris, Paul, Ellem, Kathy, Gallagher, Hilary, Burgess, Ashley, Abson, Louise and Sunderland, Naomi (2024). Building capacity to engage in co-produced research: reflections from a digital storytelling project. Disability and Society, 39 (5), 1256-1275. doi: 10.1080/09687599.2022.2138267

Building capacity to engage in co-produced research: reflections from a digital storytelling project

2023

Book Chapter

Relationship-Based Practice with People with a Mild Intellectual Disability Who Have Been Socially Marginalised and Excluded

Ellem, Kathy and Venables, Jemma (2023). Relationship-Based Practice with People with a Mild Intellectual Disability Who Have Been Socially Marginalised and Excluded. Disability Practice. (pp. 101-120) Singapore: Springer. doi: 10.1007/978-981-99-6143-6_6

Relationship-Based Practice with People with a Mild Intellectual Disability Who Have Been Socially Marginalised and Excluded

2023

Other Outputs

Insights from people with lived experience of disability and the justice system: summary report

Ellem, K., Dowse, L., Rowe, S., Holland, L., Cullin, J., Parker, M. and Henderson, C. (2023). Insights from people with lived experience of disability and the justice system: summary report. Brisbane, QLD, Australia: Department of Justice and Attorney-General.

Insights from people with lived experience of disability and the justice system: summary report

2023

Other Outputs

The need for the Universities ACCORD to expressly recognise the educational and work rights of persons with cognitive disabilities

Harpur, Paul, Ellem, Kathy, Hardy, Fotina, Stein, Michael Ashley and Schormans, Ann Fudge (2023). The need for the Universities ACCORD to expressly recognise the educational and work rights of persons with cognitive disabilities. Brisbane, Australia:

The need for the Universities ACCORD to expressly recognise the educational and work rights of persons with cognitive disabilities

2023

Journal Article

Abuse is everybody’s business. Commentary on “Two scandals: the death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain” (Hough 2022)

Cherry, Michael, O’Dea, Paul, Ellem, Kathy and O’Connor, Morrie (2023). Abuse is everybody’s business. Commentary on “Two scandals: the death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain” (Hough 2022). Research and Practice in Intellectual and Developmental Disabilities, 10 (1), 83-86. doi: 10.1080/23297018.2023.2170272

Abuse is everybody’s business. Commentary on “Two scandals: the death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain” (Hough 2022)

2022

Other Outputs

Finding out about the ARROS PLACE program: Supporting young people with cognitive disability and experiences of child protection &/or youth justice involvement

Venables, Jemma, Ellem, Kathy and Nathanson, Caitlin (2022). Finding out about the ARROS PLACE program: Supporting young people with cognitive disability and experiences of child protection &/or youth justice involvement. Brisbane, QLD Australia: The University of Queensland.

Finding out about the ARROS PLACE program: Supporting young people with cognitive disability and experiences of child protection &/or youth justice involvement

2022

Journal Article

Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities

Ellem, Kathy, Harris, Paul and Strnadová, Iva (2022). Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 19 (4), 360-369. doi: 10.1111/jppi.12426

Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities

2022

Journal Article

If you don’t fight for it, you won’t get it. Commentary on “The National Disability Insurance Scheme: voices of adults with intellectual disability” (Lloyd et al., 2022)

O’Dea, Paul, Cherry, Michael, Ellem, Kathy and O’Connor, Morrie (2022). If you don’t fight for it, you won’t get it. Commentary on “The National Disability Insurance Scheme: voices of adults with intellectual disability” (Lloyd et al., 2022). Research and Practice in Intellectual and Developmental Disabilities, 9 (1), 1-3. doi: 10.1080/23297018.2022.2055488

If you don’t fight for it, you won’t get it. Commentary on “The National Disability Insurance Scheme: voices of adults with intellectual disability” (Lloyd et al., 2022)

2022

Journal Article

The future of disability research in Australia: protocol for a multi-phase research agenda-setting exercise

Smith-Merry, Jennifer, O'Donovan, Mary-Ann, Dew, Angela, Hemsley, Bronwyn, Imms, Christine, Carey, Gemma, Darcy, Simon, Ellem, Kathy, Gallego, Gisselle, Gilroy, John, Guastella, Adam, Marella, Manjula, McVilly, Keith and Plumb, Jenny (2022). The future of disability research in Australia: protocol for a multi-phase research agenda-setting exercise. JMIR Research Protocols, 11 (1) e31126, e31126. doi: 10.2196/31126

The future of disability research in Australia: protocol for a multi-phase research agenda-setting exercise

2021

Other Outputs

Mapping disability research in Australia

Smith-Merry, J., Gallego, G., Yen, I., Imms, C., Dew, A. and Research Agenda Consortium (2021). Mapping disability research in Australia. Sydney, NSW, Australia: The University of Sydney.

Mapping disability research in Australia

2021

Conference Publication

Undergraduate students with caregiving responsibilities relying on substance use to cope with stress

Jauncey-Cooke, J., Ellem, K., Peacock, A., Hawley, G., Drayton, J. and Le Brocque, R. (2021). Undergraduate students with caregiving responsibilities relying on substance use to cope with stress. Higher Education Research and Development Society of Australasia, Brisbane, QLD Australia, 8-10 July 2021.

Undergraduate students with caregiving responsibilities relying on substance use to cope with stress

2020

Journal Article

Transcending the professional–client divide: supporting young people with complex support needs through transitions

Ellem, Kathy, Smith, Louisa, Baidawi, Susan, McGhee, Adrienne and Dowse, Leanne (2020). Transcending the professional–client divide: supporting young people with complex support needs through transitions. Child and Adolescent Social Work Journal, 37 (2), 109-122. doi: 10.1007/s10560-020-00651-x

Transcending the professional–client divide: supporting young people with complex support needs through transitions

2020

Journal Article

Commentary on “Community practitioners supporting young men with borderline intellectual functioning in the criminal justice system: capability for voice and agency” (Catalano, 2019)

Ellem, Kathy (2020). Commentary on “Community practitioners supporting young men with borderline intellectual functioning in the criminal justice system: capability for voice and agency” (Catalano, 2019). Research and Practice in Intellectual and Developmental Disabilities, 7 (1), 49-53. doi: 10.1080/23297018.2019.1683759

Commentary on “Community practitioners supporting young men with borderline intellectual functioning in the criminal justice system: capability for voice and agency” (Catalano, 2019)

Funding

Past funding

  • 2022 - 2023
    Evaluation of National Counselling and Referral Service Counselling within Correctional Centres
    Commonwealth Department of Social Services
    Open grant
  • 2022 - 2023
    Insights from people with lived experience of disability and the justice system
    Queensland Department of Justice and Attorney-General
    Open grant
  • 2021 - 2022
    Enhancing outcomes for young people in out-of-home care who 'self-place': optimising practice and policy responses
    UQ Knowledge Exchange & Translation Fund
    Open grant
  • 2021 - 2022
    Holistic, Flexible and relationship-based service delivery: Perspectives of workers and young people regarding the development of peer led skills and advocacy groups
    Community Living Association Inc
    Open grant
  • 2021 - 2022
    National Disability Research Agenda
    University of Sydney
    Open grant
  • 2021
    Police Responses to People with Disability ¿ A Report for the Disability Royal Commission
    University of New South Wales
    Open grant
  • 2021
    Young people with cognitive disability transitioning to adulthood: experiences of violence, abuse, neglect and exploitation
    The Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (referred to as the Disability Royal Commission)
    Open grant
  • 2019
    NDIS Commission's Worker Screening Literature Review and Evaluation Framework
    NDIS Quality and Safeguards Commission
    Open grant
  • 2018 - 2019
    Lost in Transition: supporting young people with complex support needs (ARC Linkage Project Administered by UNSW)
    University of New South Wales
    Open grant
  • 2011
    ResTeach 2011 0.2 FTE School of Social Work and Human Services
    UQ ResTeach
    Open grant
  • 2010 - 2012
    UnitedCare Postdoctoral Fellowship
    UnitingCare Queensland
    Open grant

Supervision

Availability

Dr Kathy Ellem is:
Available for supervision

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Supervision history

Current supervision

  • Doctor Philosophy

    Understanding the Recovery Journey of National Disability Insurance Scheme (NDIS) Participants with Psychosocial Disability: Implications for Social Work

    Principal Advisor

    Other advisors: Dr John Drayton

  • Doctor Philosophy

    Exploring patient-led recording for adults with Down syndrome and their social supports

    Principal Advisor

    Other advisors: Dr Robyne Le Brocque

  • Doctor Philosophy

    Towards Social Justice for the Hijra Community

    Principal Advisor

    Other advisors: Dr Heena Akbar, Dr Dorothee Hölscher

  • Doctor Philosophy

    Normalising Ability Diversity through Career Transitions: Disability at Work

    Associate Advisor

    Other advisors: Professor Paul Harpur

Media

Enquiries

For media enquiries about Dr Kathy Ellem's areas of expertise, story ideas and help finding experts, contact our Media team:

communications@uq.edu.au